I Love You

Thanks to everyone that posts on this forum. It's really comforting to know you're not alone. It's also good to get a second opinion. And it's a good way for me to release my anxiety and get back positive hopeful posts. I check this forum every day and I really don't know how I would cope without it. My family is bored of me and my tinnitus so just actively ignore me whenever I bring it up. Here on this forum, I feel validated and listened to. So thank you all very much, it means a great deal to me

 

Good on you Neenie. This forum's a really important place for us thanks to Markku and the others. I don't talk about it with people who don't have the t. They might go looking for it.
All the best. R

 

Yes...go Neenie!!!

And thankyou to Markku etc for this support group

 

During my initial struggle a few years back, I had received kind and caring advise from many unselfish, caring people all over the world. It is amazing there are so many caring people who are willing to come to the aid of total strangers from all over the world in desperate need for help and support. I guess as the song 'We are the World' by Michael Jackson suggests, we are the world, and we are the people who can make a better day for one and other across the globe. I am forever indebted to support forums like this and others. They reflect the best spirit there is in humanity.

 

I feel the same way...

 

Me 2! People just don't understand how it feels like to have T. Really glad I found this forum!

 

Love you too.

 

Yep...same here. My friends seem to avoid me now as they have seen how much I have deteriorated. I have lost about 30 lbs (6-2 160 is NOT good) and I have had to take in a roommate to help with the rent. I look in the mirror and I don't even recognize my reflection. My friend's cats always come and sit next to me as does my neighbors dog and they both say that they NEVER do that with anyone else. I think the animals can sense that I am suffering. I live at the beach and find the ocean really helps me but I am starting to look like a homeless person and I am not that far from being one! I talk about tinnitus a lot because it is relentless and I am afraid and desperate sometimes.

 

All we have is hope and one another. For me, at least, to wish for a cure is to escape reality...we live and struggle now. Willpower alone won't see me through this or I wouldn't be here - It's good to have this place. Together we can share this hardship with real understanding and, as you said, Love. T cannot take our dignity even if it tries.

F

 

If you don't have T you have know idea how much it screw up every bit of your life and everybody around you

 

Although i'm coping pretty well with very loud tinnitus. It's nice to conversate with people who can relate to me when it comes to tinnitus. Friends and family are next to useless. Not because they don't care. But my friends can't help because we're just not good at sympathy. And family members can't understand how loud it is. But my parents try. On this forum i'm guaranteed some replies and advise from people who get it.

 

I would have lost my way completely without this forum. No one gets what's this is like except those who live with it. Even people with mild tinnitus can't fathom what screaming unmaskable T can be like.

It's especially hard to explain to my kids what this is. They don't really know why I could suffer so much. It's so hard to pretend I'm ok sometimes so they don't get more afraid. They see the weight loss and anguish and I tell them I will be ok...With their love I will be ok.

One things for sure, they are real careful with their earbuds and volume after seeing me fall apart from hearing loss and tinnitus.
I always try and show my determination, like I always told them when facing hardship:
it's not what happens to you in life, it's how you deal with it.

 

@SoulStation

My 1963 Strat for those musicians out there who love guitars. We love you too!

I miss playing in bands…maybe one day I'll be back, but never again near a drummers cymbal!

 

Sick! I'll upload a picture of my '87 strat- I don't know if I'll be back unless...well I don't know if I'll ever be back . my ears feel pretty much broken.

 

Yeah, mine feel broken too. I just hope my heart will mend enough to play out again with some friends.