I Was a Guinea Pig in the Autifony QUIET-1 Study, Great Results

Thanks.

 

If you are assuming it's permanent, and I hope it is for you, you can stop taking Trobalt altogether. You won't know for sure unless you are off of that stuff for a week or so.

 

I'm using it as like a painkiller. 400mg once a day isn't a high dose.

 

Well this is great! I feel good knowing that within my life time I probably hear silence once again!

 

Hi Corrine,do you have a name of who offered you this?I took part in the trial and never heard anything back from them since the final day of going to the hospital

 

Isnt that dangerous???

 

Nothing wrong with a positive mindset. Matter of fact I used to have one very flamboyant mindset myself. But as said, this **news** is inconclusive so far. Hence no celebration.

@undecided Trobalt isn't a cure. It's merely a short term fix with heavy side effects. And it's not permanent!!!

@swc5150, so there were 2 TT members who took the same med as Corrine and it didn't work for them?

@Geo, it depends on the efficacy of the meds and their long-term side effects. All meds always come with a price. The question is are you willing to pay it. As said, my dad paid with his life. Imagine being blind, bedridden and having T.
I want a real cure or a treatment that works which means real **silence** without popping pills for life. But I also work on a backup plan, a safe way out if this hell.
Heck, I'd sign a contact with the devil if I could life another decade T free. Another decade is all I need.

@Mrs D, you had no contact with any other participant in this trial? Where did you get the meds?

@Gosia, I completely agree with you even pain patients that take opiates have to detox. Long-term is never a good thing.

@Eltel, go ahead and pop Trobalt then. But you will never hab to your T when being on meds.

@RCP1, actually Benzos and Trobalt did. But then again, you won't be in need of any of those TRT did the trick in your case.

 

He seems to tolerate it quite well,and since in the Trobalt studies people were on it for half a decade without any major side effects, I would say that dannyboy is safe until Aut comes out....Well thats my personal reasoning.

 

Really? I thought u had to taper off of it.. I really suffer a lot from my loud uncontrollable changing ass t all the time it goes up and up and up after every little bang.. But im scared i think my body is too weak for something like that.. Keppra gave me a bit of side effects when it didnt give danny anything

 

Yes, they have made longitudinal trial with Trobalt and they found that those who did not drop out in the beginning due to horrible side effects, had smooth sailing for about 5 years until which time their retinas turned bluish, however sight was not affected at that point. Stay tuned for more updates on these Trobalt guinea pigs...

 

@Danny Boy seems to be in the lucky group.

 

Their still doing studies on the same people or do u mean the us TT experiments

 

GSK is still monitoring them today , yes.

 

so autifony is just a safer version of trobalt?? And do u think itll really take 5 years? I can take that much man my t and h are just dying on me ?? I can maybe hope for a year or two

 

Who else is on trobalt in here that hasnt suffered to much side effects?

 

No I said it takes 5 years to go blue, so dannyboy has plenty of slack because Aut will come out in under 5 years, if successful. Hell dannyboy could sign up for phase 3 in UK next year, if his T is still there.

No, Trobalt is not a version of Aut63, it hits totally different channels.
Its like saying a Ferrari is a better version of a Chrysler Neon.

 

Are u on any drugs?? To cope or help

 

Are those studies for epilepsy? Have they done one for timnitus with trobalt?

 

Help with what?

Yes, epilepsy. No, only TT has trialled it for T.
》》》 there is one small study on Retigabine and R-Maxipost that abolished salicylate induced T in rats.

 

As in have u taken xanax or anything else before and helped ur situation?? Or curently taking

Is danny the only one still taking trobalt on here??

 

I did take Klonopin for sleep o.5mg before bed, in the first 3 months of onset.
I believe there are a few here on Trobalt.

 

i have xanax prescription, on bad days i feel like taking one just to chill me out and probably sleep but im always eerie of it from past peoples experiences.. My bro today gave me some cbd pills for as a pain releiver or healer would these help in any way? I mean if u know abou them

 

They might help, its worth a try....as long as they are THC free.

 

Yea its only cbd. Would it somehow intefere with my t ? As in a bad way

 

<offtopic>
Xanax is a safe drug @Geo. Probably as safe as Keppra, as long as it is used as prescribed.
There's no way you're gonna get any bad side effects using a small dose like 0.25mg or 0.5mg. You'll only feel more relaxed. Don't believe every bad experience you read on the net.
There's a therapeutic dose and a therapeutic effect for benzos, just don't go over what your doctor prescribed.
</offtopic>

BTW, @Mrs D, what was the cause of your T?

 

i have a 0.25 bottle.. i had another bad spike would it calm me down were it wont affect me much my T is very very loud by the way..how long does it kick in and are off? just want it this time not planning on using it frequently

 

Read her thread carefully!
It was caused by a kiss on her ear.

 

@Geo

Xanax is a short acting benzo (about six hours) with a rapid onset of its action (you'll probably start feeling it after 10-20 minutes).
0.25mg is a very small dose, but you'll probably feel it since you don't have any benzo tolerance issues.
I'm actually pretty careless about drugs, I once took ~30mg bromazepam (like >3mg xanax) and I just felt totally relaxed and fell happily asleep. On another time I had a prescription for 25mg Lyrica (a wannabe benzo) and ended up taking around 350mg. Nothing happened, just felt a little hangover in the morning.

I'm not writing the above to condone any misuse of drugs. I'm simply noting the fact that overdosing or having truly nasty side effects from small therapeutic doses is not gonna happen.
Pulling a Judy Garland is impossible with modern drugs.

@dan

A kiss on her ear. Would that be loud noise exposure then?
How loud can a kiss be?

 

Kind of. It's the suction of the kiss. It's known as "the kiss of deaf". Google it.

 

I don't think anyone had the really nasty side effects except @Christian78, who has retina changes

I kissed my db meter. Peaked at 120 db. Wasn't the most forceful kiss I could muster though. I guess it's a mixture of a loud sound + barotrauma.