Long Time Lurker

Discussion in 'Introduce Yourself' started by Jonnydoeuk, Aug 12, 2018.

    1. Jonnydoeuk

      Jonnydoeuk Member

      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Loud noise
      Been a long time lurker on this site tinnitus. Started in 2015. Horrible when I first got it but was able to manage it through the years until I was stood inches away from very loud fireworks going off which made it in both ears terrible massive worse and so having put up with it for the past month and not being able to get through it have began to seriously consider ending my life - scary - but just not liveable.

      I’m broken literally, can’t enjoy things anymore, luckily no children but adore my nieces and nephews but with this worsening tinnitus I just can’t enjoy their company even no more !

      I know it’s going to have a massive negative impact on my family. I worry about my poor mum who I worry won’t take the news well but I can’t live have ear maskers and they don’t even mask the noise.

      Even sleep my escape at one time is now affected and my nights are broken sleeps suddenly awoken and gripped by the noise

      Just wanted to vent and good luck to all those fighting this terrible affliction:(
       
      • Hug Hug x 4
    2. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
    3. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      just hang in there and check the research threads its the only real hope
       
    4. OnceUponaTime
      Wishful

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
      @Jonnydoeuk
      So sorry you are suffering this way. Like Contrast said, read the new research threads, there's much hope for something to help us all. Please do not give up. Sometimes it takes months for a spike to calm down. Rest your ears as much as you can, give it some time. It is important that you get some sleep so try hot baths at night, massages, aromatherapy, sound machines, a good quiet movie with no loud sound effects, talk to your mom.... You have to keep trying. Take one day at a time. We are here if you need to talk.

      I'll say a prayer for you and hope you can soon start sleeping better.
       
    5. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Noise induced
      @Jonnydoeuk
      Please read the post below and click on the links.
      All the best
      Michael

      New to tinnitus what to do?


      The onset of tinnitus can be difficult for a lot of people to cope with. It comes in many forms and intensities and no two people experience it the same. When it is mild, moderate or occasionally heard in quiet surroundings it is usually not too bothersome and a person can go about their daily affairs quite happily and unperturbed by this anomaly. This type of tinnitus usually comes on gradually and in some cases it’s associated with hearing loss, as we get older and the usual treatment is the wearing of hearing aid/s.

      Tinnitus can be also be caused by an underlying medical problem, build up of ear wax (cerumen). Jaw problems. Some medications and even irregular blood flow through the body causing Pulsatile tinnitus. One of the most common causes is exposure to loud noise or music that has been played at high levels that can affect the cochlea in the ear. This type of tinnitus can be loud, intrusive and very debilitating. Often leaving a person at a loss and not knowing which way to turn to escape the noise. I fully understand how difficult it can be for someone new to this condition to take this in and believe it to be factual.

      If you are having difficulty sleeping you might have been advised to try a nighttime sedation or an ant-depressant to help cope with the stress and anxiety that often accompanies tinnitus. These medications can be helpful especially in the early stages and they don’t have to be taken long term, so it’s something to consider. They can act as a safety net so you don’t become too down.

      A referral to ENT will usually be recommended. In the mean time try to keep occupied with something you like doing, as it helps to distract the brain from focusing on the tinnitus. Avoiding quiet rooms during the day by playing low-level non-intrusive music such as classical in the background can be helpful.

      At night a sound machine placed by the bedside playing nature sounds or listening to favourite mp3 tracks or Cds are good. Keeping the volume just below the tinnitus is ideal and set to play throughout the night until morning. It takes time to get used to sound therapy so please stay with it. Whilst in a deep sleep it supplies the brain and auditory system with sound enrichment. Over time the tinnitus is pushed further into the background helping to make its perception less noticeable during waking hours.

      In the early stages of tinnitus, if one chooses not to use sound enrichment sleeping can sometimes be difficult and there is also the chance of the tinnitus becoming more intrusive as sleeping in a quiet room can allow the brain to increase it’s own background activity. In doing so it will also increase the tinnitus making it more intrusive during waking hours.

      There is a tendency for newbies to try and cure their tinnitus which is quite understandable. There are many remedies, treatments and concoctions out there. Some affordable others quite expensive. I am not averse to trying to help myself but want to say, there are charlatans and con artists eager to relieve someone in distress of their money so please be careful. Even tried and tested treatments I wouldn’t recommend a person try until they have been seen at ENT. Often a person after been seen at ENT is advised to wait a while.

      Many people habituate to tinnitus within six months sometimes a little longer and it has been known to go away. The ear is a very delicate organ and many Doctors prefer to wait before investigating further and then suggesting a treatment. If other problems are experienced such as: pain in the ears, deafness, dizziness or balance problems this is of more concern and a person will usually been seen quicker.

      It is best to have a word with your GP if you’re feeling stressed or depressed in any way, as previously mentioned there are treatments available. Leaving things alone until your ENT advises you of the next step is the best thing to do in my opinion. Don’t try to fix anything or throw large sums of money at treatments that you have no way of knowing whether you’ll get any relief.

      I advise not to listen to audio through headphones even at low volume especially if the tinnitus was "noise induced" and keep away from loud sounds. By all means go out but anywhere that plays loud music then wearing noise-reducing earplugs, the type that has attenuation filters would be a good idea. 18 to 30 decibels reduction should suffice. While reducing external sound they will not impair sound quality.

      https://www.tinnitustalk.com/threads/tinnitus-a-personal-view.18668/

      https://www.tinnitustalk.com/threads/hyperacusis-as-i-see-it.19174/

      https://www.tinnitustalk.com/threads/is-positivity-important.23150/

      https://www.tinnitustalk.com/threads/tinnitus-and-the-negative-mindset.23705/

      https://www.tinnitustalk.com/threads/inspiration.22894/

      https://www.tinnitustalk.com/threads/can-tinnitus-counselling-help.22366/

      https://www.tinnitustalk.com/threads/the-habituation-process.20767/

      https://www.tinnitustalk.com/threads/a-change-of-lifestyle.20643/

      https://www.tinnitustalk.com/threads/tinnitus-and-negative-counselling.26669/

      https://www.tinnitustalk.com/threads/acquiring-a-positive-mindset.23969/

      https://www.tinnitustalk.com/threads/the-complexities-of-tinnitus-and-hyperacusis.25733/
       
      • Like Like x 1
    6. Michael B
      No Mood

      Michael B Member Benefactor

      Location:
      San Diego
      Tinnitus Since:
      '11
      Cause of Tinnitus:
      Noise Induced
      I hope you were venting and not serious about suicide. If you are, please seek help because there is help out there not just for your current thoughts but for your tinnitus. What gets me through the rough days is the hope for a better day tomorrow. Please let the forum know you're OK.
       
    7. robHing

      robHing Member Benefactor

      Location:
      USA, NJ
      Tinnitus Since:
      2016
      Cause of Tinnitus:
      Unknown
      Hi... Welcome ...
      We all understand how suffering T is.
      Please vent your anger or ask questions ....
      any time you wish.
       
    8. John CC
      Pensive

      John CC Member Benefactor

      Location:
      Toronto, Ontario
      Tinnitus Since:
      07/2018
      Cause of Tinnitus:
      Phone ring tone directly in my ear/hearing loss 15% l, 25% r
      Hello Johnny Although I am new to this, of the things I have learned is that hope is a good thing. It can get you through a lot. It sounds like you do have people in your life to talk to, talking is great for the soul, it allows people to get the support when they need it. Venting on this forum is one of the important aspects to this forum. People understand what you are going through. Hang in there, hope and attitude to it are really important. If you have been on this site I strongly suggest you read some of the threads posted by fishbone.
      Hang in there, and venting is good.
       
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