New to the Forum, Looking for Support

Discussion in 'Introduce Yourself' started by rasmyth, Sep 29, 2015.

tinnitus forum
    1. rasmyth

      rasmyth Member

      Location:
      London
      Tinnitus Since:
      08/2010
      Cause of Tinnitus:
      Perforated eardrum as a baby
      Hello all!

      I'm relatively new to to forum. I've come in search for some support as I don't personally know anyone with tinnitus. My tinnitus began 5 years ago now, when I was 20. It was probably no great surprise as I suffered from many ear infections as a small child which eventually led to my left eardrum bursting. As a result I am left with a hole in that eardrum and scarring on the right eardrum. I've had MRI scans and plenty of hearing tests but the scarring and hole in my eardrums is the most likely cause, according to the specialists.

      From what I gather, many of you, like myself, found the first few months very difficult. The sounds my ears were making kept changing and I found sleep very difficult. My tinnitus eventually settled on a low buzzing/humming noise (I think it may be pulsatile). Sometimes when it's really bad I feel like I have pressure around the lower back of my skull.

      I have come to terms with having this condition for the rest of my life, I just pray that it won't get worse than it is now. I don't particularly want to take medication for this and have so far resisted any suggestion of antidepressants etc. I think accepting it and trying not to panic is the best way forward for me (though it is a vicious circle!). A huge lifesaver for me has been my sound pillow (http://www.soundoasis.com/products/sleep-sound-therapy-systems/ for any UK/EU based sufferers), it helps me mask the sounds.

      I didn't mean for this to end up quite so long but I guess my main question is, what kind of things do people do when they are having a particularly bad 'episode'?

      Many thanks for reading!

      Rasmyth
       
      • Like Like x 2
    2. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, Rasmyth, and thanks for your very nice introduction. I'm so sorry you have this condition, but it sounds like you've taken some steps in the right direction in learning to live with it.

      Like you, I resisted taking any prescription drugs at the outset of my tinnitus, and I'm so glad I did! Now, I take natural supplements, and there are some that seem to help a bit, including: Magnesium chloride, niacin, and N-acetylcistene. You could consider experimenting with supplements, one at a time, to see if any of them are helpful to you.

      I have pulsatile tinnitus, too, and it is harder to tune that out and live my life, but I do my best. Distraction, staying busy and mentally occupied, seems to help me the most. When I'm having a bad episode, I go outside and take a long walk. It gets me out of the silence of the house, and helps me cope. When I return, it seems to calm my T down a little bit.

      I'm glad you have the sound pillow, and hope that it does help with sleep. For me, sleep seems to help calm my T down when it is at its worst.

      I'm sure others will have additional suggestions for coping strategies. We're glad you've joined us. Welcome!

      Best wishes,
      Karen
       
    3. billie48
      Sunshine

      billie48 Member Benefactor Hall of Fame Ambassador Team Research

      Location:
      Vancouver, Canada
      Tinnitus Since:
      03/2009
      Welcome. You have a good attitude @rasmyth, because acceptance is a powerful approach in living with tinnitus and you are doing wise to accept this reality. You show the stamina of character by accepting T, even if it means a life time. Most people freak out at the thought of this. To your credit. You will be just fine over time.
       

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