Newbie in Living Hell... :(

So sorry you are going through this. Regarding your high blood pressure medication have you noticed if the pharmacy changed manufacturers? Especially if it is generic. There was a special on blood pressure medication my husband takes and it was stated that one should immediately go check the medication out with his/her doctor because that particular medication (from India) had several reported issue cases.

 

It is impossible to avoid setbacks and spikes. But you definitely can do what you can to minimize the chance that you get exposed to one of those loud noises, and that should be enough (everyone who got better has had experiences of being exposed to noises and it interfering with their healing, so don't get too upset when you get exposed to noises and get a spike). Also please keep in mind that trying to protect one's ears can itself get debilitating.

So please use your common sense and don't overdo it.

 

Thank you Candy, I really appreciate it. You are so right about monitoring it and focusing on it. It's all I do because it's such a new phenomena to my ears/head. It's the first thing I search out when I wake up... which ear is louder today and how loud is loud. I am obsessing over it and I know in my heart and head that is the worst thing I can do.

It's so strange how TMJ is overlooked and while I am not kidding myself into believing it could be that simple, just to have it dismissed so easily was like a slap in the face.

I do have good days and bad days. Yesterday was so good. I was able to even watch a bit of tv without having it react too badly but now today it's ringing loud... or loud to me. Of course I'm fixated on it. Yesterday I was able to keep busy at home... today I'm in my quiet office at work. I should be working but all I hear are the high squeal of the cricket field in my head.

Thanks again for your kind words. xx

 

At this point I feel if I don't look for answers I will never know how to deal with this. I feel if I at least knew the underlying cause I could work better towards minimizing it. Guess with this condition that isn't the case. That is the greatest shame for sufferers. It makes no sense on how one day the ringing is lessened than other days. I can't wrap my head around that. I think that has to be one of the hardest parts for a newbie.

I will search, thank you.

 

That is good advice. I also read somewhere here that if you overprotect to the point of obsession you have less chance of accepting and at least habituating to it. Common sense is definitely the best. Thank you.

 

Good idea. I have a call into my kidney/hypertension specialist to see about changing meds or at least looking at mine. I don't think they were even working as good before this because my blood pressure was running higher. I will see what he has to say. Mine is on the list of bad ones to take but I think every medication under the sun is so that in itself is very overwhelming.

 

@Kells I wore white noise generators in the beginning - there was no way I was going to listen to that sound in the office... I had them on very low.

 

Unfortunately right now my tinnitus is made worse by white noise because of the pitch. I found one YouTube video that hides it enough where I can concentrate a but but I don’t know if it’s making it worse.

 

I want to thank every single person who responded to my current nightmare. I am praying for every single person here but I think I need to stop coming. I couldn’t help see the posts from those who want to die and commit suicide and it’s sending my anxiety about this into overdrive. I just want to cry and feel more like my life is over. I’ll never get better with that mindset because I did have those dark thoughts after just a week.

Love to you all. xx

 

@Kells try not to be so scared reading many of our thoughts and experiences. I know at first years ago I felt like you did. It was scary. Everyone's situation is so different. I was thrown onto this tinnitus planet with no prior knowledge.

I also felt my life was over. But it just takes some time to adjust to this noise in the head. And you are taking all the right steps. Don't loose yourself.

Focus on the most important aspects for you and those you connect with.

Do a little research on the medications you are taking. I would find exactly where they were manufactured usually in a country like Vietnam or India. Sometimes these places change aspects of medications. And sometimes the pharmacy changes manufacturers without you knowing. I always check that out before leaving the pharmacy.

Hug to you.

 

@Kells. I will try to do the same, after this wobble, I need to pull myself back together for the kids sake. Wishing you all the best, thank you for your prayers.

 

@Kells I sure hope you see some diminution of your T. As to the prednesone...you were give a pretty low dose. I was given 60mg. Maybe your low dosage was given because the ENT didn't think there was true damage. And just to pass along about that 'window' , my ENT said prednesone for acoustic trauma was effective (the sooner the better) but within the first 30days.

Glad you had some 'good' days already! Good luck.