Now Visual Snow. Really?

Hi all,

Just recovering from a month long tinnitus spike I got a keratitis and started obsessing over my eyes a lot, one day I came across a post about visual snow here and when I looked for it for a few days it appeared.

I freaked out and now I can see it almost everywhere.

Has anyone had a similar experience? I'm blaming myself now for giving me this in addition to the tinnitus.

It's harder to ignore because I see it in almost every light condition. It's like a very fine static that covers everything.

Any advice would be really appreciated, I know that many here are affected by VS too. Thanks in advance.

 

Get your eyes checked by a cornea specialist and if they say it's fine, leave it alone and you will start to ignore it. Make sure it's a cornea specialist - for me, it was the first sign of a serious eye disease, which doctors failed to catch. I don't notice it anymore unless I go looking for it (unlike my tinnitus, ha!).

 

Sorry to hear that. I got keratitis after a course of Prednisone, probably because of the immunosuppression. What did you have?

 

Keratoconus. It's a pain in the arse and should have been diagnosed much sooner. But eh, doctors are incompetent.

 

For those who have visual snow, good news.

Visual Snow News – Promising results in VSS Treatment Study

"In early 2020, the Visual Snow Initiative (VSI) received an email from a person who had been successfully treated for their Visual Snow Syndrome (VSS). Although the VSI receives thousands of suggestions and “solutions” to the VSS mystery, we always follow-up and try to remain objective while investigating any and all claims.

This particular person further stated that their doctor, Dr. Terry Tsang, was able to reduce their VSS symptoms, which allowed them to return to the quality of life they had enjoyed prior to developing a debilitating case of VSS. Over the next several months, we followed up with Dr. Tsang, who shared her experience treating her VSS patients. We were also able to speak with several of her VSS patients, who told us of similar success in regaining their lives through Dr. Tsang’s treatments.

There was no doubt that she had developed a VSS treatment protocol that significantly improved VSS symptoms for many of her patients. At about the same time, the VSI learned about Dr. Charles Shidlofsky (Dr. S), who reportedly fully eliminated VSS static in a baseball player. We were, of course, skeptical. But as we did with Dr. Tsang, we followed-up with Dr. S and even had the opportunity to interview the baseball player. He confirmed to us that after seeing Dr. S, he no longer has VSS and is back to playing baseball.

What we found out is that Dr. Tsang and Dr. S had independently developed their respective treatments and, although they had never met, their methods for treating VSS patients were so coincidently similar that we thought perhaps they were on to something promising.

The VSI asked Dr. Tsang and Dr. S. whether they would be willing to collaborate on a VSS Study and they agreed. As a team, they created a VSS protocol with an independent system for evaluating and treating VSS patients. Since January 2021, they have been treating VSS patients as a part of the ongoing study with excellent results.

Their treatment is NOT a cure, and it has not worked for everyone; however, it has provided the majority of their VSS patients significant improvement in their quality of life, while reducing their VSS symptoms.

After the study concludes at the end of 2021, Dr. Tsang, and Dr. S plan to educate the VSS and medical community about their protocol and treatment. By year end, they will have optimized their treatment protocol so their findings can be shared worldwide through a VSI Medical Conference (t/b/a in-person or virtually), currently planned for 2022. Our shared goal is to help as many people as possible get their life back on track.

Dr. Tsang, Dr. S, and the VSI have received hundreds of inquiries asking to disclose their specific treatment. However, please understand that because VSS has so many visual and non-visual symptoms and varies from person-to-person, their treatment is customized for the individual patient and is not a standardized, one-size-fits-all method. We remain optimistic that their VSS treatment protocol will continue to yield positive results and be the first-ever effective treatment for VSS."

 

Old thread, but I relate a lot. I realized I have visual snow in a similar way. Read a post about it on this forum, thought to myself: "Well, at least I only have problems with my ears." The next day I realized that the static I see over everything is not normal.

I have no idea how long I've had this, but probably many years since I was so used to it I didn't pay attention to it. I've definitely noticed it many times before, especially after excessive screentime, which I guess I attributed it to. But now I realize it's always there. There must be a lot of people with mild visual snow that doesn't interfere with everyday tasks who don't even realize that it is abnormal. I wonder if I developed it slowly over the years from too many hours spent staring at excessively bright screens without regular breaks.

Before my tinnitus got bad enough for me to realize something was wrong, I definitely had mild tinnitus for a while that didn't bother me enough to even question if it was abnormal. It is amazing what our brains can adapt to. I wish I never learned about visual snow. Now it feels like the floodgates are open and I can't ignore it because I know it is 'wrong'.

I am also worried about my phone and computer making the problem permanently worse, since there's no consensus on the causes/triggers and I feel like it developed slowly over time. Of course, being on an SSRI constantly from age 13 to 20 probably affected my brain as well, wouldn't surprise me if that played a role. Not to mention the fact that I hit my head a couple of times as a kid. Add tinnitus, anxiety and autism to the mix, which all seem to be correlated with visual snow, and it would probably be strange if I didn't have some degree of it.

 

Anyone heard about this having an effect on tinnitus as well?

Dr. Tsang/Dr. Shidlofsky’s “Visual Snow Study”: Further Insight & Summit

 

Do you also have visual snow syndrome and what did your QEEG indicate?

Visual Snow Initiative Virtual Summit 2022