Participant Experience: Vagus Nerve Stimulation (VNS) Paired With Tones for Tinnitus

You do not listen to white noise in this treatment.....

 

@BrStan@ U are right (I was scepticle abt whole that idea and whole mechanicsm of neudromodultion, since start of talking here 3, 4 yeas ago) But as I know because of that trials level of Neuromodultion that was almost same as placebo results, Neuromodulation has canceled as product. They could not get to the market. So, if VNS wants to hit the market they have to have trials and some good results. Right?

 

Agree. Playing tones lower and higher than your t and stimulating the nerve with electrical current will lower ones t doesn't make any sense to me. Reducing T intensity and creating a drug or procedures for that will not be in my life time. I am on my 36 now. They need to figure out how and why it starts. And when they find that model they could start working on a strategies attacking it's components. But for my own observation they don't do that what they do is hit and miss. Because they don't know the t origin they play a lottery.
And yes dear markoana if they want to hit the market they need to show the world if they guessed the right numbers.

 

Pessimist as usual

 

I'm a strong believer in serendipity....so you do not really "need" to know the cause to get a treatment. History is full of inventions/discoveries that where made more or less as an happy accident.

Read this artical:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3508154/

 

Electrical stimulation has a bright future, if u have 10 min just look at this,

Deep Brain Stimulation Surgery to treat...

. I was really delighted after seeing this results, also watched same treatment for treamor, tourette syndrom etc... It si more than promising!

It look incredible but it works!

 

This fuckin condition shouldnt even exist.

 

Microtransponder hopes to be cleared by the European Union to start selling the tinnitus therapy there late this year
http://spectrum.ieee.org/tech-talk/...ights-stroke-tinnitus-by-retraining-the-brain

Is it true here ?

 

I'm doing the tVNS from http://www.tinnitustreatmentcentre.com/ with notched sound. I just started it and I do it for about a week now. The weirdest thing after every 2 hour therapy is that my T is lower for sure but the somatic noise of turning my neck or clenching my jaw is 99% gone. As if my nervous system is calmed due to the tVNS device.
I'm just a week in, and I will stick to the program and do it every day minimum of 2 hours a day. I know it will not get rid of my T completely , but if it is getting lower I'm a happy guy!

 

@RicoS

So as I see here this device reduces the noise and calms nervous system, are you sur that it's not a palcebo effect ?

 

I do not know yet...to early to tell, but I monitor the effect after every treatment and it is always the same. But lets not be to joyful right now and let me do this 8 - 12 weeks. Is my T lower already? I do not know...the intensity is less , but than again...it can also be placebo because you are happy to try something new.
I keep you all posted in my progress!

 

@RicoS

is it working?

 

Agreed. Why does this even exist right? fight everyday though. Just fight it. One day at a time.

 

@Benedikt I do not know yet for a fact...my T is way lower at for a couple of weeks only with a spike this week because I had to drill 2 holes in the wall and I thought my earplugs that I had were enough protection but it was not so my T spiked to an extreme level but settled down after a good night sleep.

I use the tVNS and my T is about 60% lower at the moment but perhaps it also because I deal with other anxiety issues that I am more focused on right now so my focus is not on my T like it is allways.

So this can mean different things...

1) tVNS works and my mind just shifted to something else to bug me with
2) My brain think my anxiety disorder is more important than my T and is focussing on that. If that is the case that means that my brain CAN tune it out when I do not have my anxiety disorder anymore
3) 1 and 2 both apply

What I do know for a fact : The frequency targeted with the tVNS device does not fill my head anymore (even before the new anxiety symptoms). For example...when I went in to the toilet my T was very loud and filled up my whole head. After using the tVNS for about 8 weeks...the sound was still the same but less intrusive and was more on my left side instead of my whole head. Also it seems now that the sounds comes from outside my head.....which makes it more easier to ignore because you can think about it as if some device is still on.
Also when i used the tVNS device ...my frequency that was targeted became less loud but other tones that were not targeted came more to the forground.

As of now I will not use it anymore until my anxiety disorder is manageble because I really do not know if the progress I made with T has only become like this because of the tVNS or my brain shifting to something else making new neurologic pathways so it seems my T is less intrusive.

Also I am a hardcore BTS (back to silence) partitioner ..... I really believe this helped me a lot to. I keep talking positive to my self. Every time T bothers me I said "It's ok...I will be alright...I do not have time for you now" or I imagened a volume meter which was at max in red ...and visualize that it slowly lowers the volume and the volume meter went to green. Of course in the beginning nothing happend but the more I did this imagery trick it seemed I had more control over my T. I will NOT stop the BTS method ....because I really believe ( know ) that it works...but you have to believe that it works...If you are doing it and just say those things but deep inside you do not believe it...it will not work in my opinion.

So what is my conclusion of the tVNS device.....well still not sure.... if my T comes back to the old volume I am sure I am less stressed about it because I know it can go back to this now. But if it come back I will use the tVNS device right away and monitor its effect just like i did now.

I kept a diary of my progress but when I read it...to much has happend (ups and downs) where I can say...well it was 100% the tVNS device.

What was a 100% fact that it did change my head full of sound to a sounds that seems to come outside of my head. Even if it was just as loud the perception of something coming outside of your head instead of inside my head was a great relieve. Also when in a silent room my T cranked up in volume but over the time I used the tVNS (before i did the BTS method) it did not crank up in volume to the extreme anymore...but perhaps this also had to do with the fact that the perception of the sound is now outside of my head on the left side instead of all in my head filling up my head with this loud eeeeeeeeeeeeeeeeeeeeeee sound.

In no way did the tVNS something negative to my T....the only scare thing is that if you have used it for 2 hours straight (in my case) my T became very very very loud....but that is normal. It will go down after a few minutes. The best sound to listen to for me was nature sounds (trees in the wind) ....I could not listen to white noise for 2 hours it just was to monotoon.

If anybody has questions just ask because I typed this very quickly because I promised an update.
I have to deal with my other anxiety disorders also and they costing me a lot of energy besides T.
If my T stays like it is now....I could live with it without a problem. But like I said my mind has shifted to other troublesome symptoms that I really do not like and that also makes my T lower. Because it seems your brain is not that good in multitasking about stuff that bothers you. Like you mind can only have 1 or 2 things that it is bothered about and forget the 3rd for a while.

Sorry if I am not totaly clear about the tVNS but I try to be as honest as possible.
Did my T became less in this period I used it ............YES FOR A FACT....perhaps 50% to 60%.....
Is it all because of the tVNS device.....I do not know. I have had 2.3 years hardcore T and this year it became worse and worse and since i did the tVNS and BTS method and got new anxiety disorder symptoms it became lower in volume. That is all i can say. If I know more I will post it hear. What does happen now is that T is not 100% on my mind anymore.....

 

Neuromodulation is sold a lot, but people trow it in garbage, it is up to 10khz. It is not medicine therefore need not patent and right to be sold.

 

it is same as HIFU, totaly same:

Tony can drink from his cup for the first time...

 

@RicoS

what tVNS device are you using?

 

He is using SaluSTIM device
https://www.tinnitustalk.com/threads/salustim-—-tvns-therapy-device.8839/page-3#post-151430

 

http://www.hsric.nihr.ac.uk/topics/serenity-system-to-treat-tinnitus/download

 

This looks so promising! Anyone got any updates on this?

 

When will this treatment be offered in the US?

 

This had a clinical trial back in April last year at 4 sites in the US. They said results would be in by late 2015. They never posted them. Now they're saying results will be posted this spring.

 

So isn't it already spring time? Bring them!

 

After the results are released, there is going to be another clinical trial in the US (I'm assuming it will be in the US.) They have said they are looking to release it in Europe, this year most likely. It probably won't be out in the US for a few years.

 

Hmm. I'm from Europe but I wonder why they won't release it at the same time all over the world.

 

I've been curious about this. The only thing I can think of is that medical devices/treatments require more clinical trials to be approved in the US.

 

What were the four sites? I only heard about the one at UT-Dallas.

 

not sure...i know Detroit was one.

 

labrat10687Member u are ok? alive? some news?

God bless u

 

And this is summer now..

Will there any news for this study actually?