Pulsatile Tinnitus and Head Position

I'm 60 and have had tinnitus since my teens. However, in the last ten years or so I've noticed what I believe is called pulsatile tinnitus in my left ear. It's extremely annoying and particularly bad when I lie in bed.

But I've recently noticed it's greatly reduced if I raise my head while lying. If I lie flat it's terrible, but if I raise my head it's almost gone.

That gives me some hope as I'm in very good health and my hearing if quite good. Do others notice this effect with pusatile tinnitus? Does that effect indicate a possible course of treatment?

 

Hey. I'm afraid I am not sure in regards to pulsatile tinnitus (PT). I suffer from tinnitus (T) caused by fluid in the ear, and it feels like my T gets worse when I lie down, my guess because of movement in the ear. There is a section underneath this support section called Pulsatile Tinnitus support, so you may find some more answers there.

PT can sometimes be a sign of a vascular problem, so it might be worthwhile going to the doctor's to get blood pressure checked etc. It is very rare for it to be serious e.g. a warning of a stroke, and many people live with PT all the time without it being linked to a health problem, but please get checked out anyway. See an ENT, and if he is clueless on the subject I read that sometimes a neurologist is better to talk to. As little as ENTs know about regular T, they seem to know even less about PT, but a neurologist knows more. I would pose this question in the support section of the PT area (go further down the screen) as you are likely to get more people with more knowledge on PT

 

You might also want to read about Bening Paroxysmal Positional (!!!) Vertigo - https://www.tinnitustalk.com/threads/benign-paroxysmal-positional-vertigo-and-tinnitus.4036/

 

Unfortunately, holding my head at a twenty degree or so angle isn't terribly practical. And I can't simply prop it up on a pillow. I must hold my head at an incline without support. That's the bad news. The good news is it's extremely effective. That's what leads to believe there may be some hope.

I've self-diagnosed pulsatile tennitus as it's rhythmic, like a wave. However, it seems to be slightly slower than my pulse.

My tone isn't hissing, but rather, a loud rhymthic tone. Until ten years ago or so I had the same tone, only constant and it really didn't bother me. My PT is in the left ear only, much louder and very rhythmic.

 

Just thought I would throw my hat in so to speak. My PT seemed to coincide when I had major dental reconstruction 5 years ago, in May, the PT started in August that year. Its taken me all this time to piece everything together. I am 64, had PT for 5 years and have just finished April 2014] another round of tests. MRI, MRA, MRV, and Ultrasound. There is no arterial problems or vascular disease or at least the surgeons cant see any reason....but my osteopath did pick up with me that my PT gets worse when my neck and back needs its 3 months MOT. After the physio its great. Thats what prompted getting the vertebral artery scanned as the consultant didn't do it first time round.

I have just had extended allergy patch testing done at my Hospital and turns out I have a allergy to gold. I also have two gold crown fillings. I also have Oral Lichen Planus, that started about the same time as my dental work, and the worse ulcers are adjacent to the gold/amalgam fillings. Get the drift???
Any ways, this May I am having the gold crowns removed, and June a quadrant of amalgams at timed intervals. I shall then commence a full mercury chelation programme. Please check out Andrew Hall Cutler books, mercury toxicity. It is available on line. I am convinced many of my problems are due to mercury toxicity, and following my other lab tests [I paid for] show very high levels of mercury, lead, cadmium and beryllium. So have my work cut out. Unfortunate, all of this is way out of the league of my GP, but there are some brilliant forums on all of this, and a lot ties in with T. Also google ototoxic drugs....http://www.medscape.com/viewarticle/515901
Good luck

 

How do you get mercury levels checked? Is there a special laboratory for it and can it be done long distance?

 

That very same thing happened to me for about 4 weeks and now it's resolved some. I suspect allergies in my case.

 

Yes I have it in left ear if I turn my head to the right, especially when lying down. I sympathise!

 

who would you recommend I see to rule out PT and/or investigate causes?

 

About 2 or 3 years Karen, I believe it is related to Glue Ear which I have all the time and for which the ENT consultant has given me steroid nasal drops and hearing aids; the PT is not constant however; I would love to to have MRI scan for this as it affects not only me hearing, tinnitus, and sense of well being, but also how I communicate and interact with the world; the way talking becomes so uncomfortable and even distressing has completely changed my outlook and character; I have come off dairy products, all alcohol and am taking herbal medicine and probably will start fasting soon to help the body eliminate toxins but it seems relent less at time of writing, very depressing at times. I've stopped being able to work and am desperate really to find an answer. Sorry to go on.

 

Hi Karen - thanks for your reply!

Yes, I am going to pester the ENT department about an MRI or CT scan; they just don't suggest these things; I told them I could just about live with the Tinnitus (no choice!) but alongside the breathing and heartbeat etc, the echo of my voice, when I speak, like a really grating metallic, or 'comb-and-paper' effect. It's making normal life and communication an ordeal, to the point where I just don't want to speak to anyone; it's so uncomfortable and difficult to describe, but overwhelmingly loud. Sometimes I get very distressed, other times I get by by pushing my temples very hard, or blocking up the ear canal which can give a little relief; I talk to people like this a lot now, pushing my temple in. People generally don't understand even if I try to explain.

I'm trying to accept this but at the same time I don't want to lose hope for a solution.

I'm bringing up a family, play all over the UK weekly in a touring band, and doing a degree; two full - on house moves last year, so stress has been high. This can't have helped. I also try to meditate now but I can't seem to mentally get through the incessant white noise and tinnitus. I go to sleep every night with an ipod on playing masking and relaxation tracks, some of which are soundscapes I wrote recorded in the 90s well before I had tinnitus!

Gotta push the doctor for an MRI - but I suspect I have Eustachian Tube Dysfunction (ETD) or Patulous Eustachian Tube, or even Superior Canal Dehisence, as these feature very similar symptoms but are different conditions. I'm learning a lot about the workings of the ear, but without a scan I am stumbling on self-diagnosis!

Could write pages, better stop.

Thanks
Simon

 

Yes I will - thanks Karen. Yes I do have hyperacusis, especially at bedtime, a small noise can send a shockwave like you'd never believe. Other 'normal' sounds can be really painful or uncomfortable. Do you have it?
Anyway, I'll post again when I know more.
Best wishes to you
Simon

 

Hey Simon, your symptoms totally sound like superior canal deshisence... I hope you get to the bottom of this! I understand your pain. I too have vascular tinnitus. What is your pt like? Is it a thud or a whooosh whoosh?

 

I have the same problem with head position. Most of the time my T is dull and quiet but as soon as I lay my head down it spikes. It goes away after a couple of hours of sleep, but I haven't had a calm, relaxing night sleep for almost a year. I can sleep, I just don't enjoy it anymore. Anyone have any tips or advice for this?

 

Thanks! I will try that tonight.

 

I'm new on T talk can yaw explain the difference in T and PT.