Recently Diagnosed with Tinnitus and Having Hard Time Dealing with It

Discussion in 'Support' started by We can beat this, Dec 19, 2018.

    1. We can beat this

      We can beat this Member

      Tinnitus Since:
      12/2018
      Cause of Tinnitus:
      Hearing Loss
      Hi everyone. I was recently diagnosed and am freaking out about it. Trying very hard to stay positive and find treatments or help.

      I am 43 years old and started noticing a ringing sound mostly in my left ear that sounds like a whistling sound around 4 week’s ago. Didn’t make much of it at first. About a couple weeks ago I went to my ENT and he said the worst thing possible that it is Tinnitus. I was in denial and didn’t want to believe him.

      I have been taking care of my father who is 81 years old and he has been battling tinnitus for few years and I have seen how it has affected him and how difficult it has been for him made him. I have seen a gentle man become extremely irrational and irritated more and more. I didn’t understand it fully until now. I have since been to another ENT and hearing doctor and they confirmed it’s tinnitus. They all say to just not focus on it and to accept it.

      As the last few days have gone by, I have become extremely anxious realizing that this can be the rest of my life. It seems to have gotten worse each day and I can’t focus at work in my office and and consumed by it all day. I try playing music on my phone but it seems to work only at certain times. Then the worst part is when I get home and it’s time to get my kids ready for sleep and start to read to them and put them to sleep. The ringing sounds is most loud at night. It feels like it has gotten louder just in the last week and now starting to hear it in my right ear as well. It’s only been a couple weeks and I just can’t imagine living like this.

      I am writing this as I am laying in bed next to my young daughter waiting for her to fall asleep. Any help or advice is greatly appreciated. I plan on buying a sound machine that I got my father to help him sleep at nights. I am still hoping it is situational and due to the chronic migraines I have been getting more regularly last few months and also possibly from TMJ???

      Feeling so hopeless and scared of the future. I feel like tinnitus is probably the worst for a person like me that has anxiety and OCD about health issues. My focus is fully consumed for now by this and hoping to find some solutions and treatments to help me cope with it.

      Any advice or personal experiences that have been helpful with others suffering the same is greatly appreciated.

      So far they have said it’s probably from my heightened level of anxiety and some hearing loss that is causing it. But I ask why now? I have had same hearing loss which is very minimal for several years and also the same with my anxiety which has been ongoing for 10 years. I have two beautiful young children and a third one on the way and want to be able to beat this.

      Thanks for reading and listening to me.

      Hope we can all find success. And I will be sharing any information I get in my journey as I meet with drs. I have a special appointment in couple days with a tinnitus specialist that is supposed to give me some advise and an introduction to tinnitus and on how to accept it and learn the basics for now.
       
      • Hug Hug x 6
    2. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      • Hug Hug x 1
    3. Lane

      Lane Member Hall of Fame

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Single 25 mg dose of (anticholinergic) drug Promethazine
      Hi @We can beat this,

      I'm a BIG believer in nutritional interventions for just about any kind of health condition we may run across. A couple years ago, I ran across a remarkable article on OCD, and how a researcher in Israel discovered that a simple supplement can often dramatically improve OCD symptoms. Here's a link to a remarkable article in case you might want to check it out: -- LISTENING TO INOSITOL: CLINICAL NOTES

      I'm sharing this Inositol/OCD link because I think any brain condition that results in OCD can also result in tinnitus. And that successfully treating OCD "may" just improve tinnitus. Insitol supplementation sounds like one of the best possibilities for doing that. -- You may also want to check out THIS POST & THIS POST I made, which describes some supplements and other alternative type therapies that may be worth considering. -- All the Best...
       
      • Hug Hug x 1
      • Informative Informative x 1
    4. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      Most likely hearing loss related indeed. Why now? Because hearing damage is cumulative, and at some point the straw breaks the camel's back...
      Do you have an audiogram that you feel comfortable sharing?
       
    5. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      Is it available without a prescription?
       
    6. Lane

      Lane Member Hall of Fame

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Single 25 mg dose of (anticholinergic) drug Promethazine
      Yes, here's where I ordered mine for $20 (not saying it's the best deal, but I generally shop pretty carefully).

      Inositol Powder One Pound
       
      • Informative Informative x 1
    7. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      Thank you.

      How long have you been taking it? Are you seeing any changes in your T?
       
    8. Lane

      Lane Member Hall of Fame

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Single 25 mg dose of (anticholinergic) drug Promethazine
      I've been taking for the past 2-3 years, well before tinnitus onset earlier this year. I pretty quickly noticed that it did have a calming effect, and could understand how somebody with OCD could benefit from it--perhaps greatly. It would make sense it could help tinnitus just because of its ability to calm the brain, reducing OCD, anxiety, etc.

      I just ran across the following on this thread: -- Inositol deficiency, a literal footnote (for a foot crack!)
      ................................

      It has happened. I have dropped out of hyper/OCD and back into fatigue! No idea why. I had started inositol Oct. 22 so about 2 months for the effect to go away. -- I did have thyroid labs done, and all is normal for me (FT4 and FT3 right at mid range, TSH suppressed). -- My blood sugar is stunningly low for me. I run around 100 most of the time, and am sitting around 70 post-prandial (after a meal of eggs and some coffee) per my labs.
       
      • Useful Useful x 1
    9. Lane

      Lane Member Hall of Fame

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Single 25 mg dose of (anticholinergic) drug Promethazine
      Good information to be aware for anybody considering high doses of inositol...

      Inositol-induced mania?
      http://sci-hub.tw/10.1176/ajp.153.6.839
      (Three case examples)

      https://www.sciencedirect.com/topics/neuroscience/inositol
      Under ADHD:
      Under Anxiety Disorders:
      Under Mania and Agitation:

      INOSITOL FOR DEPRESSION AND PANIC DISORDER - starting at Page 120
      http://www.mentalhealthamerica.net/sites/default/files/MHA_CAM.pdf
      Page 125:
       
      • Informative Informative x 1
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