Restless Leg Syndrome

Discussion in 'General Chat' started by Ricardo1991, Mar 17, 2016.

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    1. Ricardo1991

      Ricardo1991 Member

      Tinnitus Since:
      Cause of Tinnitus:
      Signs seem to point to head/ neck injury!
      Hey all,
      Just posting this because my friend made me feel not so alone today. She has RLS, she's 28 and she said she's had it all of her life. She doesn't know why but she said that her mom used to take her to the ER when she was a baby because she would cry and kick all the time.
      She showed me a support forum for RLS that she had seen and in my opinion it was very very similar to the horror stories we see on here!
      My point being is that I guess as humans, when we have an onset condition whatever it may be - we will try our best to make it the most shitty time of our lives because our lives were so 'normal.' Which our lives were normal, because we had silence (well, sort of. I've had tinnitus before it was a tiny little whir and almost sounded like a seashell/ train in both ears).
      It's been a slow process for me, but I know that habituation is what I'm working towards.
      I have put myself in the mindset that this condition will be here forever, it is a part of me now, who I am and part of my body. I will try my best to look hot (lol), to be happy, to travel, to make others happy and to give my husband a great life full of laughter and support.
      I think at first I didn't want to habituate because I wanted this noise to be gone, completely gone. However, that very well might not be the case. I've had it for almost 3 months already and in these 3 months I've been the most miserable in my life. Not necessarily because of the Tinnitus, but because I put my life on hold because of this stupid noise. It's just noise! I am constantly checking to see if it's still there, afraid that it will get louder, afraid that it will flare up, afraid that my hearing will get worse. While these fears are valid, there is not much we can do about it except be happy and make others happy.
      I strongly believe that us as people with conditions, we have huge hearts and love which is why we are afraid that this noise is taking over our lives which it isn't.

      My friend has RLS and we've been hiking, drinking, swimming, everything and she never mentioned it. I noticed that she was always moving and stuff but I honestly thought she was always stretching and just moving around, but she said that her legs are in constant pain and sometimes she gets flare ups (similar to our spikes lol) but she says that she LIVES with it.

      Anyways, I am not sure if my post will reach many people or give them an epiphany, but in my case I guess it's just a self realization that things can only really get better.

      Like I said, I was afraid of habituating because I wanted this condition to just GO AWAY but that isn't necessarily going to just happen. I know I have a lot of love to give and I won't waste it on tinnitus.
      • Hug Hug x 1

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