Running and AIED (Autoimmune Inner Ear Disease)

Discussion in 'Health Talk' started by JJ Webb, Jun 13, 2019.

    1. JJ Webb

      JJ Webb Member

      Tinnitus Since:
      October 2010
      Cause of Tinnitus:
      Idiopathic possible allergies
      Before I was diagnosed with AIED and tinnitus 9 years ago, I was in shape and did a lot of running.

      Now, 9 yeas later I am 30 lbs heavier because I can no longer run. When I do, I get a massive headache. It takes a few hours for my head to "decompress".

      Anyone else have this experience and if so what do you do for exercise?
       
    2. Juan

      Juan Member

      Tinnitus Since:
      08/2014
      Cause of Tinnitus:
      Several causes
      How were you diagnosed with AIED? Which tests did you do?

      I dont do much exercise, I just walk a lot. Vitamin D is important, being in the sun a bit every day!
       
    3. AUTHOR
      AUTHOR
      JJ Webb

      JJ Webb Member

      Tinnitus Since:
      October 2010
      Cause of Tinnitus:
      Idiopathic possible allergies
      I was first diagnosed with Ménière’s disease. Then they ran bloodwork (AGI??) and found that I was steroid responsive which was AIED conclusive.
      I live in Tennessee and have severe allergies to most of the trees. My ENT said that my AIED is believed to be cause by allergies.. I have bi-lateral hearing loss and tinnitus in both ears. It started with my right ear and then 4 months later my left. ...
       
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    4. Juan

      Juan Member

      Tinnitus Since:
      08/2014
      Cause of Tinnitus:
      Several causes
      How do you cope with these hearing issues?

      I am starting to lose hearing and it is a lot harder to undersand speech in noise. It's a new thing for me.. how do you manage?
       
    5. AUTHOR
      AUTHOR
      JJ Webb

      JJ Webb Member

      Tinnitus Since:
      October 2010
      Cause of Tinnitus:
      Idiopathic possible allergies
      At first if was difficult but be encouraged! You will get use to a new normal! It may take a little while but you will be fine. I use a hearing aid (from Sams) in my left ear when I go out to dinner or in a room with a lot of background noise. I need to go paint my daughters room now but lets keep in touch!:rolleyes: I can tell you some things that have worked for me!
       
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