Success: Tensor Tympani Tenotomy Surgery for Middle Ear Myoclonus

FlubOtic

Member
Author
Jun 18, 2025
9
Tinnitus Since
2020
Cause of Tinnitus
TMJ Issues
I'm copying most of this from my post in the MEM Facebook group for people here who might find it helpful:

I had a tensor tympani tenotomy on 7/28/25 on my right ear with Dr. Robert Saadi at UAMS. I believe I'm the second person in the Facebook group to report cutting only the tensor tympani. My stapedius was not cut. He used scissors to remove a portion of the tensor tympani, rather than just slicing it like most surgeons do. This should lower the chances of reattachment. I can already tell the muscle is now inactive. When I yawn, burp, or hiccup, only the unoperated side rumbles and contracts.

It's still too early to know the final outcome of the surgery, but I feel confident that my intense rumbling is gone. Before the procedure, just scratching the back of my head would cause a strong rumble and vibration in my ear. That no longer triggers anything in my operated ear. I also used to wake up to my ear rumbling intensely. The morning after surgery was the first day in months I woke up without that happening.

Before surgery, my surgeon and I decided it would be a good idea to try and trigger my symptoms in the operating room to figure out which muscle was causing them. He saw the tensor tympani spasm, so he cut it. That's why my stapedius was left intact. I'm not sure if this was the best decision in hindsight though.

Recovery so far has been smooth. I woke up in the recovery room and cried a little out of relief. This journey to get the surgery has been long and mentally exhausting. After waking up, I was in a lot of pain (about 8 out of 10), but the pain meds they gave me worked fast. I haven't had any pain since those first moments in recovery, and I haven't taken any pain medicine in 18 hours. The throat irritation from the breathing tube is actually worse than the ear pain.

Right now, my ear feels half deaf and full because of the packing and wick they placed inside. Both my ringing and pulsatile tinnitus are about 20 to 30 percent louder, but I'm pretty confident this will go back to normal after the packing is removed and I've healed. I'll try to keep you all updated on that.

My symptoms:
  • Episodic thumping that lasted for hours or days, usually triggered by burping, hiccuping, or yawning during stressful times. It felt like a tiny person was inside my ear canal, punching my eardrum. The thump had a deep bass frequency. – Fully resolved as of now.
  • Thump or crackle in reaction to noise. These felt and sounded different than the episodic thumps. The "crackle" isn't a high-pitched sound like the word might suggest, but it's the best word I can use to describe it post-surgery. Quick, snappy sounds in quiet rooms triggered it the most—things like dishes clanking or clicky keyboards. – I'm not sure if this has resolved yet.
  • Intense rumbling in response to noise, swallowing, yawning, stretching, scratching my head, or squeezing my eyes shut. – This symptom is fully resolved.
About three hours after surgery, I started hearing the thump or crackle again in response to noise, but it was louder and more sensitive than before (this went back to normal after waking up this morning). That has since calmed down, and I'll need to wait until the packing is removed before I know if that symptom is truly gone. If it isn't, then the stapedius is likely involved, and I'd consider revision surgery to cut it as well.

I'm happy with the results overall. My most intense and overwhelming symptom seems to be fully resolved for now.

I'll update you all with more information after August 14th, once I've spoken with my surgeon and finished recovering. A lot can change during the first 2 to 4 weeks after surgery, so don't take everything I've said here as final.
 

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Best wishes for the full recovery, but how is this a "success" story?
How is it not? I had surgery to treat my debilitating middle ear myoclonus, which causes objective tinnitus. My symptoms are completely resolved in the ear that was operated on. It cured me. There is a small chance that the muscles could reattach in the following weeks, which might require a revision surgery, but that's rare. I shared my experience because this surgery is so rarely performed, and I'm sure many people with middle ear myoclonus are looking for personal reports like mine.
 
How is it not? I had surgery to treat my debilitating middle ear myoclonus, which causes objective tinnitus. My symptoms are completely resolved in the ear that was operated on. It cured me. There is a small chance that the muscles could reattach in the following weeks, which might require a revision surgery, but that's rare. I shared my experience because this surgery is so rarely performed, and I'm sure many people with middle ear myoclonus are looking for personal reports like mine.
No disrespect meant, but you wrote that "it's still too early to know the final outcome" and that "my tinnitus is 30 percent louder."

However, I wish you a complete and speedy recovery.
 
No disrespect meant, but you wrote that "it's still too early to know the final outcome" and that "my tinnitus is 30 percent louder."

However, I wish you a complete and speedy recovery.
Ah, I see, and you're right. Based on how I worded it, it does sound less like a success than it actually is. My tinnitus being 30 percent louder is normal right now because I have packing in my right ear that blocks my hearing. This makes the tinnitus seem louder than it really is. The volume has already started to decrease since I removed the ear wick (a piece of the packing). At this rate, I expect it to return to baseline within a week.

Like you said, I did mention that it's too early to know the final outcome. But as of now, my middle ear myoclonus has gone from severe to completely resolved. I'll update again once the rest of the packing is out, but I can't imagine changing my mind about the outcome. It was so severe before the surgery that I would have noticed by now if it hadn't worked.

Thank you for the well wishes!
 
I'm also a patient at UAMS! Dr. Dornhoefner has been a lifesaver on this journey and has really helped me with chronic hearing and tinnitus issues since I was 15. I'm 24 now. Congratulations on the success story!
 

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