The Day the Music Had to Stop...

@glynis

Dear Glynis
Any particular person’s words to you are merely their own opinion, their own take on things.
Well so what?
Great Big Hairy Bananas, as my highly philosophical misus always says.

We all have a right to an opinion of course, but whatever you do, do not run away with any idea that they are necessarily in the right, and that you are consequently in the wrong.
Nobody is infallible, though our natural instincts do give us a guide.

You do seem to be attracting plenty of support over the past few days, from numerous sources, I might add.
Very best wishes, and keep up the good work glynis,
Love
Dave
xxx

 

“Yippee !!
Tha’s my gal !!”

 

@glynis please accept my apology for my um...you know what (which I guess will not be my tag line)...

You are special and do so much for everyone and anyone. So glad you are back as a moderator! I understand the upsetting email that happened to me on this side of the world with someone else. That is why I was scared to open my profile thing which I need to figure out now.

@Jazzer and @Ed209 @Jiri @emmalee and everyone big hugs. I will have to come back later tonight.

 

@Jazzer how are things going btw?

 

Hi @Jcb
Noisy and tough, to be honest with you mate,
together with the collapse of my jazz career

My lovely misus Sylvie qualified as a clinical hypnotherapist many years ago and we are working on a project to produce a well targeted hypnotherapy script to tackle the mind’s obsession with noise.

I plan to be less obvious on these pages for a bit, to concentrate on this little project.
I’ll let you know how it goes Jcb.

 

Oh Glynis...I understand. I was in the same exact position years ago. You do not deserve to be spoken or written to in such a manner even if that person was upset. You stood up for your beliefs and listened to your gut intuition which takes time to hear after being hurt. Sigh...

I feel bad you lost a friend over this.

Again I am so sorry. But I think this has given me a strength also.

Hugs....

 

@Jazzer this is because of you. I will change my avatar. My strength is beginning to happen again. Just gotta learn to curb the cussing.

I love the program you and Sylvie will be working on. This is the exact program that helped me. We can talk about it more. I think I mentioned about the sail boat and the lapping of the water and in later sessions the introduction of more sounds like the waves crashing to shore, the sounds of children in the background and the cries of seagulls. Each session introduced a new sound into the hypnosis stage. There was guided meditation as I went through the hypnosis.

It is late here and I always log everything off at 7:00 pm my time because my brain needs to detach from tech stuff. But I promised I would come back on tonight after working on a project.

I think a lot of us are more understanding now of each other.....

 

Of course, you do what’s best for you and concentrate on moving forward. Hopefully this little project will help you get back some peace and normality (well as normal as it can be with the fecking noises dancing away in our heads haha) I’m wishing you the best man, you’re one of the good ones

 

“Ooh goody goody gumdrops,
- I like being a good one xx”

 

Star - would it be okay to say I approve of the new avatar?
(.....have to be so careful these days....) x

 

@Starthrower A nice new avatar you've got.

Btw, flippin' amazing how far you've made it in life even with tinnitus. I do hope that stage passes for me too, one day. I mean, I'm sure it will (death closes all) lol but it'd be nice to still achieve smth in the meantime.

My misfortune was that I allowed an unprofessional psychiatrist to take care of myself. I was given a lot of drugs and now I gotta face up to the sad consequences. I don't even know if what I'm dealing now with is a noise-induced t., drug-induced t., stress-induced t. or a combo of them all.. so at least I try to offer the little smth I learned about those drugs to people who either directly message me here or in threads. Welp, 'big up yourself' you've done great.

J.

 

@Jazzer @Jiri thank you! Yeah I really shook changing the avatar thing. I love seeing Jazzer an @Ed209 photos. And @glynis when it was her photo! The background is just outside my backyard. I should post more photos but I am technically disabled.....I fumble around and push the wrong buttons and the computer goes all haywired and stresses me out.

@Jiri you will be here also. I never thought I would be able to say that I am okay. Yeah it still sucks and the noise is still there but I am able to understand it for the most part.

 

See, I'm not too sure about that. Last week I stopped taking my antidepressant. Now I'm tapering off from benzos after 6 months nonstop use + another antiepileptic drug. 3:24 a.m. here and I kinda know it's going to be just another sleepless night for me. It's not even the ringing in the ears, it's the noise inside of my head. A loud static buzzing noise

So I just stay awake and am wandering around TT talk, listening to others people stories and I can feel their pain. I've got a huge respect for those who did not give in, are still here and lead normal or semi-normal lives even with this bs.

 

I understand the loud static buzzing @Jiri. That one comes and goes in my brain. This is year one for you so take it easy on yourself right now. Sleep is an issue for me also. Back then I went without it for the most part.

One thing I do is stop all tech stuff after a certain hour. My brain reacts to the computer and cell phone which I still cannot talk on very much. I work on staying away from that when I need to relax my brain. And I keep the lights dimmed low. So for me at 7:00 pm it is computer off. Cell phone off. I do my meditation stuff and watch a few TV programs.

And it is that time now..... : (

The static buzz for me was nerve damage caused by a bad root canal. That one eventually went away. So I think you are now tapering off and the nerves are reacting but will or should naturally heal. That is what happened for me.
I sometimes don't talk about this because someone will debunk it with why that is impossible. But...it wasn't for me.
And it will be the same for you Jiri.

First try staying off the computer if possible when you are needing sleep. I know this is hard because you get bored and what else is there to do? And it becomes habit to get lost in the stories. Put yourself first. Always.

It is great we have connected.

Night for now but probably morning for you!!

 

That's clever that you don't talk on your cell phone too much: Tinnitus and cell phones: the role of electromagnetic radiofrequency radiation.

I've never tried meditation before. My t. is 'reactive' and currently ramped up. I guess, if I knew it couldn't get any worse I'd habituate. Right now I'm totally isolated. Just looking around to make friends here who'd support me in case of emergency. See, some of my good friends have just sorta disappeared. I think bec I'm no longer 'all fun and smileys.'

I was a dreamer, but also a doer. I worked my bum off real hard to get where I wanted and I always kept telling myself, as long as you're healthy - you can do it. Now, that's no longer the case.

That is finally some good news. Yes, the word "I can debunk them all" - famous words of one user here. Personal experiences matter to me a lot. The reason for that is I can feel there's a glimmer of hope.

I should be seeing my dentist some time soon and I'm real scared. I also enrolled myself to a cognitive behavioral therapy class but guess what? They were brutal honest with me. They said they can help me with my H but that there's also a possibility my T. will get worse. I was like, I'm sorry, what? Exactly what every tinnitus sufferer wants to 'hear.'

I can try, but I'm just rolling in my bed because of the noise, and I ain't gonna lie I know the drugs have their dirty hands in that too. I basically started seeing death everywhere. I just don't want to start another thread about it here. I see so many people suffering around this place. I'd rather be on the helping side than just posting another thread "please help, I'm drowning." I'm a postgrad student so before jumping into conclusions I need to gather the right piece of information. Then, based on the info the right decisions can be made. Roughly translated what I was taught by one of my lecturers. Also, sorry for my English. It's not my 1st lang. and I noticed I'm getting brain fog these days too.

I am very greatful for every good person I can keep in touch with. Now more than ever.

It is morning over here, I can hear the birds already chirping outside

 

Hey @Jiri checking in on you. It is still today for me. Probably morning time for you.

Wow. I did not realize English was not your first language! You make a lot of sense even with brain fog.

 

Oh do not be afraid to go to the dentist. My problem was a terrible specialist back then and my lack of knowledge about the procedure. If you take care of your teeth now you won't have to deal with other issues.

I remember going to a few neurobiofeedback specialists. Sorry we cannot help you.

I wonder why they said the CBT would not help your tinnitus or even make it worse? Yeah. That wasn't what you needed to hear after making the effort to try it!

 

That's terrible. Tho, I'm not really surprised. That's basically what I hear too when I go to see a 'specialist'. I think their trained in taking hope away from people. At least their honest and are not trying to sell you snake oil....

Tell me about it. I spent talking with the psychiatrist at least an hour and half. It was in the National Instute of Mental Health. She goes "Well, we do this CBT thing here and if I were you I'd keep fighting and not let tinnitus ruin your life..." that was after she asked me like a million times 'what do I expect from them', that 'they don't do miracles', 'they can help me with my H but my T could get worse' and 'if I have a mental breakdown along the way or smth I don't belong to them anymore but to a nuthouse.' See, there is always a catch. It was like talking to a lawyer rather than a head therapist in an Inpatient Ward 1: Anxiety disorders. I left with more anxieties then before I saw this lady dot Ph.D.

@Jazzer A nice figure of speech the thread title. It feels like the music has stopped playing quite literally for a lot of us here...

 

P.S.: @Starthrower would it be possible to send you a p.m.?

 

Ok don’t be letting the comment go to your head Dave

(This is a joke btw people not sure my “humour” hits it mark sometimes)