The Positivity Thread

Hello to everyone and hope we are all doing good?

I originally did this post as a stand-alone post but thinks it’s better suited in here as it’s a positivity thread.


I’m not the best writer or putting my feelings into words so I apologise if this is scatted.

Only had T little over 2 months and I feel a bit of a fraud as mine is not as bad as a good few of you.... it’s still one of the worse things I have dealt with. Never thought “noise” in my ears could be so rough.

Haven’t had the easiest of lives as many people don’t and thought I was emotionally strong till this struck me outa nowhere and felt like it utterly destroyed my soul.

I’ve had so many ups and downs with this and don’t think I’ve cried as much even when I lost my parents, it’s hard to describe how much this has taken over my life. I’m scared to do anything or leave my house, lost my appetite and haven’t had a good nights sleep since this (didn’t sleep much anyway)

It’s so strange that this “noise” takes over your every bit of your life, being, mental health.

The strange thing is I honestly didn’t think I could not get through this and I’m still not sure if I can but I went for a meal last night and wore my ear plugs...... guess what it didn’t kill me!

I know other people suffer with H as well so everyday noises can affect them on another level, but me going out for a few hours with my partner as given me a boost and hope.

Today I feel like this is not gunna take over my life and I will beat it....
I need to keep hope inside me and think this will go away one day and even if it doesn’t I will learn to live with it and not let it take over my life. If I don’t try to think like this and stay postive I may well lose the will to live and I’m not prepared to do that.
To quote a song that inspired me when I was younger and lost my parents

“Well there's a bridge and there's a river that I still must cross
As I'm going on my journey
Oh, I might be lost
And there's a road I have to follow, a place I have to go
Well no-one told me just how to get there
But when I get there I'll know
Cause I'm taking it
Step By Step, Bit by Bit,
Stone By Stone (Yeah), Brick by Brick (Oh, yeah)
Step By Step, Day By Day, Mile by mile (ooh, ooh, ooh)
And this old road is rough and ruined
So many dangers along the way
So many burdens might fall upon me
So many troubles that I have to face
Oh, but I won't let my spirit fail me
Oh, I won't let my spirit go
Until I get to my destination”

Not the biggest Whitney Houston fan.... but found this song somehow helpful.

Anyway I could wake up tomorrow and feel so lost and lonely and just want to cry, if that happens I’ll let it take it’s course and not let it beat me. I know I’m gunna feel like absolute s*** some days and I need to try and make myself know that’s ok and it’s not the end of the world and I’ll get through it.

I know some people don’t like the word “ hope” but you know what that’s all that’s keeping me going and I’m trying to smile a lot more as well. Hopefully one day there will be a cure and help so many lost and hurt people.


I want to genuinely want to thank everyone who has written posts on here, replied to my questions and worries and other people’s as well. I know many posts of different worried people and subjects have been written many many times but the majority seem not to even care and still answer which I think is such a good and positive thing.
I appreciate everybody’s point of view wether it be postive or negative because sometimes you just want to rant and not feel postive and that’s ok, as long as you don’t let it take over.

This forum has helped me a lot and is so important as you know there are other people feeling the same as you and there’s somebody who will give you hope, advice and a good dose of reality.

Even in the darkest times you need to find that little bit of light as cheesy as that sounds, you do what you feels best and helps make you get through this “hell” as long as it’s not harming you more and always reach out if your feeling down, lost, lonely and know you’ll never be alone. Wether it’s talking to people on here or family and friends just don’t try to do this on your own.

Just try and be nice to each other even when you don’t feel like it.

Please don’t give up hope and try to take things step by step, bit by bit.

 

Need to stay positive. My tinnitus comes and goes. I hope and pray that someday it will go away for good.

 

Positivity is key

 

YOU CAN OVERCOME ANYTHING WITH THE RIGHT MINDSET

 

Is that fishbone?

 

...Maybe...

 

A POSITIVE MINDSET OVERCOMES EVERYTHING

 

Hi guys haven't been on here a while. Just wanted to say my Tinnitus went away completley after being with me for around 5 or so months. It was mild tinnitus and could only be heard in a quiet room but it's gone completley and i hope it never makes a comeback (been 3 months sound free).

Wanted to post because i still havent forgot the support on here and that it can actually go away.

 

I'm so happy for you! Enjoy your silence and protect your ears.

 

For an hour or so I've actually felt kinda okay for no reason and tinnitus is now at 1/10. Though it might be the reason why I feel okay or maybe it's the other way around, who knows. Might as well be the mirtazapin starting to kick in.

 

Thank you for this thread. I’m not in a good place right now. Medication has made my ears ring off the hook along with my usual heartbeat in my ears plus there’s the sensitivity issue.

So thanks for being here.

 

Today I'm noticing that I hear somewhat clearer and I can barely hear my tinnitus so this might mean that my hearing is actually healing and coming back.

 

After a 2 hour sleep this aft i woke up to silence.
Hope it lasts

 

I hope you will sleep for 4 hours tonight!

 

Thank you Mikael.
Had a peaceful night.
Hoping you are ok too.

 

I slept again this afternoon for 2 hours and again woke up to silence.
There must be an angel watching me.

 

Woke up to silence... There you go. Have the Dr. Prescribe sleep and lots of it. I would be all over that.

 

Thanks Krispin.
I take .5 clonazepam at about 1pm in the afternoon and wake at about 4.
Its hit and miss with the quiet T sometimes.
I dont know if its the sleep or the clonazepam or maybe both but when it happens its bliss.
Thank you

 

Third time in two weeks.
Its a hatrick.
Layed down at 1 and got up at 3 with glorious silence.
Just staying in the moment with no anxiety and a very quiet home.
I can hear the seagulls cry outside.
Its a great day.

 

I am very new to Tinnitus and very new to this forum, just found it last Saturday and SO happy that I did. I have been reading non-stop and I want to say that my plan is to do my absolute best to stay calm and stay as positive as I can. This thread has made me feel so much better already. My appointment with the ENT specialist isn't until the 10th of May and I need to remain positive and stay as calm as I can until then. Doing the opposite would only be detrimental.

When I am in the middle of a full blown tinnitus storm I put on my nikes and go for a long walk and then come home and do some yoga stretches while listening to soft Zen music. This helps to distract me and as an added bonus, it helps me to fall asleep.

 

Woke up this morning and my T ear was completely blocked, as in no hearing what-so-ever. The day before my T started (March) I made a remark to a friend that my left ear was completely stopped up, the next morning I awoke to tinnitus in the ear. After a couple of days the hearing came back about 50 per cent and has stayed that way, until this morning.

The silver lining with this new development is that the T is muffled a bit. A beautiful, albeit chilly, morning with plenty of sunshine....just have to find my walking shoes.

ETA.... Found them!

 

Feeling stronger in myself today.
Not sure why?
T had been quiet fòr amost 24 hours.
My home is nice and quiet and this morning im just listening to the school kids playing in the schoolyard.
Its a happy sound. Kids are precious and innocent and love to play.
A good day!

 

I agree @David Dubros, kids are precious and innocent. Their laughter can never be too loud! Feeling stronger is a wonderful feeling, I hope tomorrow is a repeat of today for you.

 

So, after finding my walking shoes, I went for an extra long walk. Along the way I met the neighborhood cat who, interesting enough, is completely deaf. He has been a fixture in this community for 15 plus years and he never fails to make his way down a very long driveway to greet anyone who is willing to take the tame to fuss over him. Today he seemed considerably slower as he journeyed out to say hello. Mostly he wants to be scratched behind his ears and have his neck massaged, so it is worth his while to venture out, even though his arthritis is much worse of late. His meow is more like a holler, lol. Due to his deafness this has always been the case, according to his owner.

I made a fuss over him as usual and as I walked away I found myself wondering what it must be like for him to live in a world of complete silence......or does he actually hear just a smidge? I guess I will never know.

Tomorrow I will have to remember to take my phone and get a photo of him, he is so unique.

His name is Alex.

 

I didn't see Alex, today. He was likely napping soundly.

I have found that I need to keep the wind out of my ear when walking, even the slightest breeze seems to aggravate the tinnitus, resulting in a louder than usual pitch. On a positive note, I made a trip to Michaels and bought some very pretty yarn. I am going crochet a couple of snug headbands to protect my ears when I walk.

 

I'm giving up coffee, as of this morning. I drink more than I should and I take it strong and black. This isn't the first time I have tried to give it up, but I didn't have tinnitus then. For me, personally, the tinnitus seems a bit better in the morning when I first get up.....but after one cup of coffee the tinnitus is noticeably louder. Not sure if the caffeine is stimulating the tinnitus, but I will find out.

Not going to go cold turkey, though, this only causes headaches and other unpleasant symptoms. I am going to have a cup of tea at mid-morning and another cup in the late afternoon. No coffee, just tea.

Wish me luck.

 

Quoting myself here.....

I finished a headband last night. I worked on it while listening to a lovely, soft rain video that was posted on the forum yesterday. Going to walk soon and see if it keeps the wind out of my ears.

I still need to get some good earplugs. My ears are small and I need them to be soft to be able to tolerate them.

 

I have small ears too. Get custom ear plugs. They're expensive so see if any local colleges have an audiologist division and they usually make the custom ear plugs cheap.

 

@Shera, thank-you for the advice, it is greatly appreciated. I am wondering if the Hearing Clinic where my appointment is, with the ENT specialist, would have them. They would most likely be expensive, though. I will do a google search for my area. Again, thank-you.

 

@emmalee

I'm a cat person too. Though I'm ok with pretty much any animal that isn't aggressive toward me. We don't have many outdoor cats where I live but a friendly hello from a kitty always makes my day too.

I should take your advice on the walks. I tend to come hear when my T spikes. A walk would probably do much better.