Tinnitus for 13 Months — Still Suffering — Have Tried White Noise Generators, Mindfulness, CBT

Discussion in 'Support' started by Bazan, Jan 25, 2019.

    1. Bazan

      Bazan Member

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      Unknown
      Still struggling to be honest, I thought by now I'd be able to cope much better. I have tried everything, WNGs (still have them on), mindfulness, CBT.

      Not sure how I am ever to get to a place where I can co-exist with my tinnitus and live a life of not suffering...
       
      • Hug Hug x 8
    2. HeavyMantra
      Bugridden

      HeavyMantra Member Benefactor

      Tinnitus Since:
      Intrusive and debilitating since 2018
      Cause of Tinnitus:
      Unknown
      Describe your tinnitus?
       
    3. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      • Agree Agree x 1
    4. Bam

      Bam Member Benefactor Hall of Fame

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      Neck/stress
      I tend to agree.

      Think about it.......If your T went away or descreased in volume wouldnt it be easier and safer to tell people you got used to it? In case it comes raging back again.

      This is how ‘habituation’ was born. But it doesn’t work for those of us who don’t get the volume down unfortunately....we desperately need a cure.
       
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    5. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      the problem is tinnitus goes away but you still have hearing damage and possibly noise induced pain.
       
    6. brownbear

      brownbear Member

      Tinnitus Since:
      July 2016
      Cause of Tinnitus:
      Sudden sensorineural hearing loss ? cochlear hydrops
      @Bazan . Sorry to hear this. I didn't start to feel better until about 18 months to be honest. I'm not sure if this applies to you but one problem I had for a long time was only measuring my success by whether I was aware of my T or not. This led to constant disappointment and anxiety. I began to accept that my T was so intrusive that it was unrealistic not to perceive it. I began to measure my success more by how well I was coping with daily life. Once that happened I really began to improve mentally. The great thing is that then I began to start forgetting about it from time to time. I still have ups and downs though. I also made big breakthroughs when I started to force myself not to use any sound therapy, but you may not be ready for that. Let me know if I can help at all.
       
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    7. Bam

      Bam Member Benefactor Hall of Fame

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      Neck/stress
      Yeah I don’t give a shit about hearing damage. I just want the goddamn neurons to calm the f*** down and the noise to stop. I would happily accept 20% of my hearing for silence.
       
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    8. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      normie, as long as hearing damage exist tinnitus can come back.
       
      • Helpful Helpful x 1
    9. AUTHOR
      AUTHOR
      Bazan

      Bazan Member

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      Unknown
      loud intrusive, all day , all night,
       
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    10. Bam

      Bam Member Benefactor Hall of Fame

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      Neck/stress
      .......The gift that just keeps on giving.
       
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    11. Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Do you use Melatonin to sleep ?
       
    12. AUTHOR
      AUTHOR
      Bazan

      Bazan Member

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      Unknown
      The only thing that’s not effected is my sleep I take citapram 40mg
       
    13. dayma
      Frustrated

      dayma Member Benefactor

      Tinnitus Since:
      1/6/2018
      Cause of Tinnitus:
      UNKNOWN
      I am 13 months in basically. I am in the same boat.
       
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    14. AUTHOR
      AUTHOR
      Bazan

      Bazan Member

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      Unknown
      @brownbear thanks is as always for your advice, yiu def hit the nail in the head regarding hearing it, it impossible to not be aware of it as it’s loud / intrusive and yes I thinks it def. time to start weaning myself of the white noise , might try 3o mins a day and build it up slowly
       
    15. Ken219
      Frustrated

      Ken219 Member

      Location:
      New York Area
      Tinnitus Since:
      Summer of 1990
      Cause of Tinnitus:
      Noise exposure?
      Hang in. It takes time. As you I have very bad days but I have more okay days of what the heck.
       
    16. dellwas

      dellwas Member

      Tinnitus Since:
      02/19
      Cause of Tinnitus:
      concussion or ETD
      I use 5HTP. It helps you get into REM a lot faster than Melatonin. Totally natural, and available over the counter...
       
    17. akirakurosawa

      akirakurosawa Member

      Tinnitus Since:
      05/2020
      Cause of Tinnitus:
      tympanogram
      Hello @Bazan. I am 5 months in myself. How are you holding up 18-ish months later?
       
    18. Bill Arsenault

      Bill Arsenault Member

      Location:
      Boston.
      Tinnitus Since:
      Permanent and intrusive since 2017.
      Cause of Tinnitus:
      Medication / Noise Over Exposure
      Forget about habituation and just ride white knuckle until a cure???

      Not the best sounding advice I have heard a forum member give to another.

      You need to tap the brakes.

      Habituation to some extent is at least temporarily possible in my opinion and it is the only reason I will be able to go to work today and avoid living in the street a while longer.

      Habituation certainly does not decrease the volume of my tinnitus-
      But it does decrease my fear of the volume so that I can function and focus enough to face another day.

      I have to take what I can get now.

      Who knows how long it will be before a doctor is actually standing next to me preparing to pump FX-322 into my ears.

      Very difficult to imagine that happening anytime soon for a peasant like me.


      Best wishes to all.
      Have a great day.
       
      • Agree Agree x 1
    19. weab00
      Alone

      weab00 Member Benefactor

      Location:
      depression-ville
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      noise, whiplash; 08/20 H
      How about habituation to hyperacusis. Impossible. We need big pharma to save us.
       
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