Unfortunately I'm Here to Stay:

Fortuna117

Member
Author
Feb 22, 2019
70
Tinnitus Since
07/2018
Cause of Tinnitus
Noise Induced
Initial Causation:
Ruptured eardrum in September 2018.

November 2018 performed research on tinnitus vowed to change my diet, avoid loud noises and avoid nootropics as there is no cure for tinnitus and everything has side effects.

December 2018 visited an ENT who performed a Webber test and hearing test stating that he was sure the tinnitus was a temporary condition as it was a simple rupture.


Early January 2019:

On Doctors orders gave my pet bird away to a family friend and developed hyperacusis hence I asked my parents to be quite around the house.

They refused this made me feel isolated and I felt an urgency to fix the problem before it gets worse.

So I ordered stuff from a naturopath.

Created a drug monitoring system where I would start the drug for 4 days, stop, test the frequency range, and test the Tinnitus Loudness.


Late January 2019:

I started to swear each time a loud car passed my window. Because of this I was kicked out of home.

I stayed with my grandparents who became annoyed that I was watching TV all day.

Please know I was a university student at this time on semester break.

They also stated on multiple occasions that my condition was bullshit.


Early February 2019:

Moved back to my parents house who kicked me out again for swearing and stated that I needed to live with my narcissistic father from this point forward.


Mid February 2019:

I had locked myself in the upstairs room and was feeling isolated during my time of grief.

This resulted in me researching a couple of more drugs NAC, Acetyl L Carnitine, and Sarcosine.

The Sarcosine as it was in a magazine by the American Tinnitus Association and people had reported success with Glycine.

Please understand that at this point my brain was in panic mode and was no thinking logically.


In early March 2019:

My father had kicked me out of his home for taking his keys (long story) but no one was right in this situation.

Returned back home to a mum who still had not forgiven me for swearing in the house so I stayed at a hotel.

The next day I bought some flowers and was going to apologise to my mum, when I arrived I saw the Sarcosine.

Because I was not sure if my mum would forgive. me and my brain was tired from all the shit that was going on around me I decided against doing further research on the drug.

This was despite my inner voice begging me to do more research.

Luckily, I was allowed back at my parents home.

But because of the previous experience I was scared about being kicked out so my mind was focusing on that issue instead of the drug protocols.


Early April:

Decided to look up Sarcosine… Shit the drug is extremely excitotoxic which would explain the pulsatile tinnitus.

Went back to the ENT asymmetrical hearing loss and webber test localised to the right ear.

The tinnitus is so loud that on multiple occasions I have cried, been admitted to a mental hospital, and have tried killing myself.

Loud as no longer able to block over traffic.

Guess I am part of the permanent (until death) tinnitus club even sadder is that the original tinnitus is gone.

Even the psychologist I see told my family they needed cure their behaviour to which they responded "we will not be manipulated".

So not a real supportive family.
 
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I sometimes feel that the more research we do the more we listen to our tinnitus, try to stay away for a while from researching tinnitus and try to relax, things will settle down.
 
It is very real and I'm sorry it is a shock to you and you are misunderstood by your family. You can only nurse it so far, because you have to get back to a routine of life. You are in the beginning stages of this horrible affliction, but after a while it can get better and it can take a long time.

You have to take baby steps and deep breaths and you will move forward.
 
It is very real and I'm sorry it is a shock to you and you are misunderstood by your family.

That is what the therapist stated she said the whole family was not understanding the condition.

Hell they did nothing until I started cutting myself.

They now state it is more of a mental condition.

When I first had it they threatened to put me in a mental hospital.

The reason they kicked me out in first plsce was because my swearing was interfering with their TV time.

They actually refuse to share blame for this situation.
 
It's unfortunate but people without tinnitus will have a hard time understanding our condition. I have met people who won't understand the pain that we have to go through and thought that people who kill themselves because of the suffering is stupid. Yes, that includes family members...

Because it is subjective and they don't hear it and even though a lot of people have it, no one talks about it. I guess we just have to accept the fact that it's hard to find someone who understands or be compassionate about tinnitus sufferers. I guess also this is why a forum like this exists.
 
What a horrific set of circumstances, and choices by your family. Not having just the basics of a habitation/dwelling is surely tough. I am sorry for the crap you've had and the constant "panic" mode you have been in.

I only want to point out that focusing, if possible, on your daily tasks, schoolwork whatever, may help get your mind off the constant focus on the T.

Good luck! :)
 
What a horrific set of circumstances, and choices by your family. Not having just the basics of a habitation/dwelling is surely tough. I am sorry for the crap you've had and the constant "panic" mode you have been in.

I only want to point out that focusing, if possible, on your daily tasks, schoolwork whatever, may help get your mind off the constant focus on the T.

Good luck! :)


Exactly.

Was in panic mode 24/7 a day.

Afraid of being kicked out and afraid of having my hyperacusis set off 24/7.

Eventually I just snapped.
 
It's unfortunate but people without tinnitus will have a hard time understanding our condition. I have met people who won't understand the pain that we have to go through and thought that people who kill themselves because of the suffering is stupid. Yes, that includes family members...

Because it is subjective and they don't hear it and even though a lot of people have it, no one talks about it. I guess we just have to accept the fact that it's hard to find someone who understands or be compassionate about tinnitus sufferers. I guess also this is why a forum like this exists.

The worst offender was my stepfather.

He stated I always having ringing in my ears after getting out of the pool.

That I should stop complaining about a little problem.

He even opened up the front doors and back doors of our house even though I asked for them to be closed.

Please know our house is situated in neighbourhood where people love to rev their cars and we have construction 24/7 a day.
 

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