CW Dragon

hey, I've found a lot of relief, some of the melodies are gone and/or have faded.

When i wear my earplugs to sleep, the melodies from my left ear go straight over to my right ear. So I feel something is off with my brain. I have no idea what's going on (left ear is the bad ear).

did you ever had an audiogram done? do you still have melodies? do you have musical ear syndrome?

@CW Dragon i hope once my ear heals it will go back to baseline,my question is why does this ear keep getting infected? Second time in 7 months, just as it was getting much better. Do you medications make it go away? Btw my audiogram is normal

I've tried both prednisone and amoxicillin at different times and still my middle ear is swollen and in pain. I'm going to an ENT neurologist to see if she can help me ease the pain. I figure it's just a very very long healing time. Does it feel like an acid burning pain in your ear? I pray this pain goes away by End of year.

I went to an ENT about a month ago who stuck a camera up my eustachian tube and said it looked "crusty" but didn't offer any advice on what to do next. I should have pushed if it's normal for it to be that way.

I want to switch up to something with a longer span such as Klonopin/Clonazepam. Longer half life, and I hear good things about it on this website in regards to T control. Will ask my doc about Ativan too and see what he says.

DON't do that. Klonopin has mamde people so worse, that they committed suicide. stay on avitan as long as you can.

Definitely won't do that now, still on xanax with upped dose

@KoolKat - tell me more, I have never heard of them. https://www.ohsu.edu/oregon-hearing-research-center - this right? I'm browsing thru their website rn

@KoolKat - Was it this OHRC newsbit from 2018https://www.sciencedaily.com/releases/2018/10/181015104537.htm? This is from 2018

I know when I click on the Tinnitus Researching webpage https://www.ohsu.edu/ent/tinnitus-program - it gives me a page not found error.

It's basically whenever I take a shower, then it lowers in volume (but still audible) after as soon as I turn off the water. It's crazy. like it needs to maintain a level that I can constantly hear it.

That Happens to both me and my Wife's T. She's completely unbothered by her T. I'm extremely jealous of that. But ours will temporarily spike right after a high freq like running water or any such. Always returns to baseline. It's like the injured hairs are being triggered or something

Yep white noise like this running water + fans + wind is what spikes me, it's in the end my brain will place emphasis on the T to make sure I hear even over this white noise.

But at least they don't have hyperacusis?

I've never found any occurrence of removal of the auditory cortex in scientific literature (as a treatment for tinnitus). Would love to know more about it.

Wouldn't you lose the ability to balance?

Lol. I fewl ya. Try a little lofi/hiphop. Low volume of course. Inuse spotify but this also works https://youtu.be/UfYv8l-G0dA

added to my favorites, ty

I spent 10 minutes trying to figure out what she is writing in the diary... lol

What was the news you were referring to?

OTO-413 higher dosage failure for clinical improvements. There's a thread in the research news section for it

Ah yeah :(

Ah Boston is a nice city, crazy roads and traffic though. Moved up from Dunkin Donuts to Cannoli as my morning breakfast, I'm addicted. Will have to bring a half dozen or so on my way back to the midwest

Cannolis. Have you been spending time in the North End? Roads are crazy. Traffic is awful. Kick DD to the curb. Go to Kane’s Donuts on Rt 1 Saugus. Best donuts ever.

In Framingham, will check out Kane's tho tomorrow. I did go to Mike's pastries, maybe next time I am here I can hit up RT1 Saugus.

it is funny, right? You never focus on your ears.. until you have problems with them. Then you can't de-focus.

Yep that's all I think about. Only when I'm sleeping I don't. I'm somewhat eager to get sleep now. 9pm yes! Bedtime!

It is really common, that the Tinnitus will settle to other levels during the first year, or ven subside fully. Just give it time.

Got to, no other choice. Two years I'm gonna give it. Success stories is keeping me alive.

You will learn to life with it, i promise it to you. I never thought, that i can do it, but i did and got better over time.

Yeah, I feel you. Just like I wish the noise would dissipate and it's driving me crazy. This ringing melody. I always had tinnitus but it was a low hum and I'd have to be in complete silence to hear it. I'm praying the other ear ringing turns into hiss or just goes away (it was hissy for a moment, and then at other times the ringing went away). So that's giving me hope

Yeah, I'm begging the hissing sound to come back. That's what keeps me going. It's like a ringing with different tones all similar that step over each other randomly. Best way I can describe it, the more closed I hold my ear, the more stable the ringing becomes I guess

I feel your pain bro :(