Loui
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Jul 2, 2022 at 10:06 AM
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Nov 12, 2020
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Gender:
Female
Location:
Sweden

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Loui

Member, Female, from Sweden

I pretend to like people everyday. That’s called being an adult and that’s why we’re allowed to buy alcohol.... Dec 4, 2020

Loui was last seen:
Viewing thread Scored 100% on My Hearing Tests — Still Have Ringing (and Lots of Questions), Jul 2, 2022 at 10:06 AM
    1. Damocles
      Damocles
      hoppas du mår bra
      1. View previous comments...
      2. Loui
        Loui
        @Damocles what are you studying? I’ve had a busy spring working full time and studying part-time. Also my tinnitus have been manageable, almost a nonissue at times. I visit the forum now and then to keep up with the research. I try not to read too much about tinnitus because don't what to think about it. Maybe you should also try to take a break and focus your attention elsewhere?
        Jun 26, 2022 at 10:16 PM
        Damocles likes this.
      3. Damocles
        Damocles
        Ah, that's awesome.

        As for me, I'm on a sort of general course studying English Literature and History to gain credits for university. Still not sure what to apply for when I finish.

        Also, I've had severe tinnitus for 13 years now, and am as habituated as one can get; so you don't have to worry about me.

        I mostly just come on here to chat and mess around.
        Jun 29, 2022 at 2:53 PM
      4. Damocles
        Damocles
        Anyway, keep going strong @Loui.

        I'd say we're both doing great!
        Jun 29, 2022 at 2:53 PM
    2. DooDooBrain
      DooDooBrain
      I'm struggling; that's how I'm doing.
    3. Damocles
      Damocles
      You boil your meatballs also, @Loui? (͠≖_ʖ͠≖)
      1. Stacken77 likes this.
      2. View previous comments...
      3. Damocles
        Damocles
        I'm not sure @Stacken77. For all we know, it was @Loui who taught YOUR classmate how to boil an entire meal in a pan.

        Beats a microwave dinner, undoubtedly.
        Nov 30, 2021
        Stacken77 likes this.
      4. Loui
        Loui
        @Damocles I don't cook Swedish meatballs normally, but if I would then I suppose I’d fry them in a pan. When I do Italian meatballs I fry them and then let them boil in homemade tomato sauce.
        Nov 30, 2021
        Steph1710, Damocles and Stacken77 like this.
      5. Damocles
        Damocles
        Is the right answer.

        @Stacken77, you need some cooking lessons from @Loui.

        ( ͠° ͟ʖ ͠°)
        Nov 30, 2021
        Steph1710 likes this.
    4. DooDooBrain
      DooDooBrain
      That sucks hard. The good news is that Lyme is treatable and you should mostly recover.
      1. LilSass likes this.
      2. Loui
        Loui
        It wasn’t lyme and all test results came back clear. All my symptoms are gone and I feel better again. If I’m lucky it was just a pinched nerve. I suppose the future will tell. How are you?
        Nov 23, 2021
        Damocles and DooDooBrain like this.
    5. DooDooBrain
      DooDooBrain
      I'm struggling at work myself. Retirement seems like a dream to me haha. I just need to make it to the ear surgery.
    6. DooDooBrain
      DooDooBrain
      Lyme? You remember ever being bitten by a tick? I suppose it's pretty common. Yeah "Long-Covid" has affected many, so I wouldn't be surprised. Either way, it sucks.
      1. Wrfortiscue likes this.
      2. Loui
        Loui
        Yes I was bitten by one in late august, when running in the forest. I still have some nerve pain that comes and goes. A few weeks ago I was in real pain. Could barely drive because my arms hurt badly.
        Nov 8, 2021
        Damocles likes this.
      3. Damocles
        Damocles
        Ticks make me scared of going in grass and trees @Loui; I don't want them to get me.

        ⊃゜Д゜)⊃
        Nov 10, 2021
        Stacken77 likes this.
      4. Damocles
        Damocles
        Hold me? ヽ(◕‸◕)ノ
        Nov 10, 2021
        LilSass, Stacken77 and buttercake like this.
    7. DooDooBrain
      DooDooBrain
      When is your appointment?
      1. Loui
        Loui
        I have none. Currently, I'm waiting for some test results. The doctor think it's Lyme disease. If not they’ll probably say it's post covid.
        Nov 5, 2021
        LilSass likes this.
    8. DooDooBrain
      DooDooBrain
      I believe you'll return to your career someday and be successful.
      1. Loui
        Loui
        I have a good job currently but of course I want to advance. It's the only way to early retirement
        Nov 5, 2021
        Damocles and DooDooBrain like this.
    9. DooDooBrain
      DooDooBrain
      I hear you LOUD and clear (pun intended). Let's suffer together haha. Thanks again for your support. I'll keep you apprised.
    10. DooDooBrain
      DooDooBrain
      Can't have tinnitus or hyperacusis if you're dust! Good plan! What is your job btw?
      1. Loui
        Loui
        I’m a real estate manager. I was planning to advance in my career but have put it on hold for now. I’m too distracted with health issues and do not feel like myself.
        Nov 3, 2021
        Damocles likes this.
    11. DooDooBrain
      DooDooBrain
      I'm on disability for a rib surgery I had in September. I have to get surgery on my elbows too soon (cubital tunnel syndrome). I can also say the hyperacusis affects mental health and use that for disability (who wouldn't be depressed with T/H?) Yeah maybe if your case, don't bother with surgery. Might is pretty bad like I said. SCREAMING KIDS OMG THO. Like a kick in my brain's crotch!
      1. Loui
        Loui
        Sounds like a rough year for you. I suppose T/H affects us all differently. I try to have a positive outlook in life but It gets harder with every health issue that comes in my way. I hope you can do the surgery for H too and that it's successful.
        Nov 3, 2021
        DooDooBrain likes this.
    12. DooDooBrain
      DooDooBrain
      Thanks for your support too. Let us know how it goes. You'll do okay I'm sure.
    13. DooDooBrain
      DooDooBrain
      And YES, no amount of money is worth good health. I get what you're saying. I plan to change jobs at least or be on disability pay until I get the hyperacusis surgery. Tinnitus though: I know I can do nothing about that until Susan Shore's device releases in 2022, so I'll live with it. BTW, there is a surgeon in Europe who does a similar operation to Silverstein for hyperacusis. Maybe you could consider?
      1. Loui
        Loui
        Are you able to get disability for tinnitus and hyperacusis? My job is very meaningful for me so I would never quit. My hyperacusis is very mild as in I’m bothered by sirens and screaming kids. As long as it stays this way I wouldn’t consider surgery. If I could know that my tinnitus would stay the samt I wouldn’t be bothered by that either. It’s the fact that it can get worse that are the stress factor for me.
        Nov 2, 2021
      2. Loui
        Loui
        I have my hopes in Thanos pill. I think he’ll be the one that solves the tinnitus and hyperacusis mystery.
        Nov 2, 2021
    14. DooDooBrain
      DooDooBrain
      Perhaps it's fibromyalgia? I have that condition - though it's more a diagnosis of exclusion. I have a sense hyperacusis is related in some fashion via our nervous system. The acoustic damage I received (or many received) probably "pushed" our brains over the edge. Don't be discouraged though; it's definitely real. Science finds more evidence increasingly. There are many ways to cope with it.
      1. Loui
        Loui
        It's not fibromyalgia since my symptoms aren't constant. Lucky me but something is of with my nervous system. I do to think we tinnitus/hyperacusis people have of over active nervous system. Also I’m super scared of afflictions since being traumatized with these shit conditions so I get worried as soon as something goes wrong.
        Nov 2, 2021
        LilSass likes this.
    15. Damocles
      Damocles
      @Loui, you need to follow me and @Stacken77 now, or imma have to set a smörgåstårta on you. (`⌒´)
      1. View previous comments...
      2. Loui
        Loui
        Nov 2, 2021
        Damocles likes this.
      3. Stacken77
        Stacken77
        @Loui I det fagra landskapet Blekinge.
        Nov 2, 2021
        Damocles likes this.
      4. Loui
        Loui
        Nov 2, 2021
        Damocles and Stacken77 like this.
    16. DooDooBrain
      DooDooBrain
      Thanks. You're being realistic; I respect that. Unfortunately my career goals require I have better sound tolerance that I currently do, so in a way, I'm being realistic. To me, not trying at least is the equivalent of death. I hope you manage your current crisis. Just know you have some support from across the pond (don't know how Swedes say it).
      1. Loui
        Loui
        It’s reasonable to try to live your life to its fullest with the limitations we have to face as tinnitus sufferers. I mean don't put your life on hold and wait for a cure. We all want to get rid of this affliction but we need to push through the struggle.
        Nov 1, 2021
        Damocles and DooDooBrain like this.
      2. Loui
        Loui
        Maybe you can find an alternative career that doesn't require better sound tolerance? My job is normally quiet and in noisier situations, I wear earplugs. I would love to function normally but I try to do my best with the situation. Most people struggle with something. We have crappy ears and a malfunctioning brain.
        Nov 1, 2021
        Damocles and DooDooBrain like this.
    17. DooDooBrain
      DooDooBrain
      "Other heath problems": I can relate. I won't ask here if it's too personal. I got injured in several places on my body working/working out. Just had rib surgery (that I basically diagnosed); getting elbow nerve surgery soon. Do you think you'll be able to manage/treat your other health issues one at a time? That's the only way that's worked for me.
      1. Loui
        Loui
        I thought my bad years were behind me but I suppose not. I’ve had nerve pains in my body and got shit scared. I’m waiting for test results. Hopefully, it's not something significant but with anxiety issues, it's not a fun wait. I hope to be back in a good spirit soon again ☺️ Health issues are the worst. Health is wealth. I hope you’ll have a good recovery
        Nov 1, 2021
    18. DooDooBrain
      DooDooBrain
      I do sometimes function without earplugs and I feel okay. But when I'm in a loud environment (like at work), I'll hear a truck horn and have a MAJOR setback, and the pain in my ear will linger for a long time. I'll feel shaken through my core. And YES, the anxiety/hyperacusis are a positive feedback loop.
      1. Loui
        Loui
        That's great that you can function without earplugs. I think it's reasonable to protect your hearing in loud environments. I do use earplugs at work sometimes too. It's better to be safe than sorry. Maybe we’ll have a better hearing when aging compared to normal people because we are so careful.
        Nov 1, 2021
        Damocles likes this.
    19. DooDooBrain
      DooDooBrain
      I'm 33, so we have something in common besides a debilitating disorder haha.
    20. DooDooBrain
      DooDooBrain
      Thus, the surgery and the tinnitus device are potentially big deals to me. I understand this will pass to some extent, but I have to help that passage along with treatment.
    21. DooDooBrain
      DooDooBrain
      I'm 2 years in. Hyperacusis a little longer. Tinnitus is bad when stressed, but the hyperacusis is bad always. I have to wear musicians earplugs just to function. Often anxious. Even if I didn't care about clubs or concerts, noise from everyday life is too much for me. And I still have a candle-like flickering flame of interest in doing stand-up comedy and acting - which require noise tolerance.
      1. Loui
        Loui
        @DooDooBrain sorry to hear about your bothersome tinnitus and hyperacusis. Have you tried to function without earplugs? I got better when I just tried to live normal. I do use earplugs when I’m in environments I find bothersome like restaurants and bars. I think the anxiety makes the whole situation worse in a lot of cases.
        Oct 31, 2021
      2. Loui
        Loui
        I manage my problems if I keep the anxiety under control. Unfortunately, my anxiety is bad right now due to other health problems and I find the tinnitus and hyperacusis more bothersome at the moment. I sincerely hope things will be back to the new normal again.
        Oct 31, 2021
      3. Loui
        Loui
        I hope your noise tolerance will get better in time and that you’ll be able to pursue your dreams. I don't want to be a downer but I think we have more sensitive ears and that we always have to be careful with load sounds. I don't count on being able to live a fully normal life. I will never be around some sounds that would be considered normal. For my part, I’m happy as long as I can pursue my career goals.
        Oct 31, 2021
        DooDooBrain and Damocles like this.
    22. DooDooBrain
      DooDooBrain
      I'm glad you're doing better. Hopefully the taper is easy.
    23. DooDooBrain
      DooDooBrain
      Definitely an older question, but have you tried Tofisopam for tinnitus/hyperacusis? It's technically a benzo, but operates much differently. Chemically, it is a 2,3-benzodiazepine, and doesn't carry the same risk for dependence.
      1. View previous comments...
      2. DooDooBrain
        DooDooBrain
        Well, benzos do help, as do antidepressants (have taken both). Which one do you take if you don't mind? Perhaps myself or another would benefit? Cymbalta helped for a while, then pooped out on me.

        I hear ya about the "old life" and I hope to get some of that back via the Silverstein Hyperacusis Surgery in Florida and the Susan Shore device (hopefully coming out 2022).
        Oct 7, 2021
        IntotheBlue03 likes this.
      3. Loui
        Loui
        @DooDooBrain I’m on Sertraline 50mg for now. I consider to taper next year.

        I don't think I ever will go back to my old life. I miss the time I didn't think about sound, it just existed. I’m 32 years old, clubbing and concerts aren't that important anymore.

        I have very mild hyperacusis and the tinnitus is also quite low but unfortunately, I can hear it almost everywhere. I’m not that bothered by it anymore.
        Oct 17, 2021
        DooDooBrain likes this.
      4. Loui
        Loui
        @DooDooBrain where are you on your tinnitus journey?

        Remember this too shall pass
        Oct 17, 2021
        DooDooBrain likes this.
    24. Damocles
      Damocles
      Alpacas getting tinnitus, pretending to like people and buying alcohol now. We truly are in the end times.
      1. Steph1710, danielthor and Stacken77 like this.
      2. View previous comments...
      3. Damocles
        Damocles
        Also, loving that Swedish guys. Wish I could hear it being spoken in front of me. :(

        Maybe one day. <3
        Sep 17, 2021
      4. Stacken77
        Stacken77
        @Damocles Hah, what I wrote was a Swedish proverb. I find it hard to translate, but it kinda means "you're always the creator of your own fun". We're just fooling around about alpacas with alcohol and tinnitus; we're kinda the creators of our own fun you know, how silly it may be. lol
        Sep 17, 2021
        Damocles and Steph1710 like this.
      5. Damocles
        Damocles
        Perfect translation, in my opinion.

        Thank you for explaining, I love it!
        Oct 26, 2021
        Stacken77 likes this.
    25. Massi91
      Massi91
      hey there :)
      1. Loui
        Loui
        Hey☺️
        Aug 22, 2021
    26. Loui
      Loui
      I pretend to like people everyday. That’s called being an adult and that’s why we’re allowed to buy alcohol....
      1. Born To Slay
        Born To Slay
        I only like people after I’ve had alcohol, well, or phenibut.
        Dec 4, 2020
        Loui likes this.
      2. Exit
        Exit
        Cute photo:)
        Not taken in Sweden I presume?
        Hej from Norway
        Aug 19, 2021
      3. Loui
        Loui
        @Exit hej hej, the photo is from a alpaca farm nearby the city I live in ☺️
        Aug 22, 2021
        Exit likes this.
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  • About

    Gender:
    Female
    Location:
    Sweden
    Tinnitus Since:
    06/2018
    Cause of Tinnitus:
    Noise induced