PortugalTheMan
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Dec 7, 2021 at 10:49 AM
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PortugalTheMan

Member, Male, from Portugal

Who else here did everything to get relief from the T? I even helped with the research for free, whenever I could. Nov 30, 2021

PortugalTheMan was last seen:
Dec 7, 2021 at 10:49 AM
    1. PortugalTheMan
      PortugalTheMan
      6 months without silence. Why does my body still want silence?
      1. 999 and kuromi like this.
    2. PortugalTheMan
      PortugalTheMan
      It's my electrocochleography today, I haven't slept at all, I'm scared that my T will get worse.
      1. Stacken77
        Stacken77
        Jul 22, 2021
        PortugalTheMan likes this.
      2. PortugalTheMan
        PortugalTheMan
        @Stacken77 Piercing the eardrum is not pleasant. the sounds were about 30 seconds each at 100db, 90db and 50db. My T didn't change and the exam was fine. So the exam went well.
        Jul 22, 2021
        Wrfortiscue, kuromi and Stacken77 like this.
    3. PortugalTheMan
      PortugalTheMan
      Thursday I will do the electrocochleography. I will ask for a maximum of 50db. it's safer that way right?
      1. Steph1710 likes this.
    4. PortugalTheMan
      PortugalTheMan
      I learned today of a person who has meniere with vertigo and severe hearing loss, but does not have tinnitus. How is it possible?
      1. Steph1710 likes this.
      2. Steph1710
        Steph1710
        They are incredibly unlucky and incredibly lucky at the same time.
        Jul 18, 2021
        PortugalTheMan likes this.
    5. PortugalTheMan
      PortugalTheMan
      Whether the OTO-313 works effectively for the acute treatment of tinnitus. Will people with chronic tinnitus be forgotten?
      1. Diesel
        Diesel
        No.
        Jul 14, 2021
        JPGL, PortugalTheMan and Steph1710 like this.
    6. PortugalTheMan
      PortugalTheMan
      The first step in finding our cure is to understand why person A has hearing loss and tinnitus and person B only has hearing loss.
      1. JPGL likes this.
      2. Stacken77
        Stacken77
        @PortugalTheMan That's a really good starting point. I firmly believe genetics are a huge predisposition in developing tinnitus - it runs in my and many others families. But I believe most people can develop tinnitus if they suffer a powerful acoustic trauma that blows out a bigger part of hearing suddenly.
        Jul 13, 2021
        GCS, kuromi and PortugalTheMan like this.
      3. PortugalTheMan
        PortugalTheMan
        @Stacken77
        My father has a hearing loss, my grandfather hardly heard anything and didn't have tinnitus.
        but I think I would go through seeing the genes or what is different between these people and us, and trying to change it so that we don't have tinnitus.

        Does tinnitus have a logic? does there have to be? everything in life is math :)
        Jul 13, 2021
      4. Sironketchup
        Sironketchup
        I think it might be about 1) speed of onset of hearing loss. If you develop hearing loss over time you might have lower chances of getting T than with a rapid onset 2) stress during onset of hearing loss
        Jul 13, 2021
    7. PortugalTheMan
      PortugalTheMan
      it's so scary to wake up in the middle of the night and go back to trying to fall asleep.
      1. danielthor likes this.
      2. danielthor
        danielthor
        Was there last night. My day started at 3AM
        Jul 13, 2021
    8. PortugalTheMan
      PortugalTheMan
      First dose of covid-19 vaccine, wish me luck
      1. danielthor, Steph1710, kuromi and 3 others like this.
      2. Steph1710
        Steph1710
        Good luck dude! I’m sure you’ll be fine. I was. :)
        Jul 12, 2021
        PortugalTheMan likes this.
      3. PortugalTheMan
        PortugalTheMan
        @Steph1710 I got the janssen shot, so far so good. :)
        Jul 12, 2021
        kuromi likes this.
    9. PortugalTheMan
      PortugalTheMan
      When they tell you you might have meniere's having tinnitus doesn't seem so bad anymore.
      1. View previous comments...
      2. PortugalTheMan
        PortugalTheMan
        I don't know if I have. I'm suffering in anticipation unfortunately I only have an exam on the 22nd.
        Jul 9, 2021
      3. convolution
        convolution
        Man, I would be quite surprised if you had Ménière's. It's rather rare. Plus, you do not have vertigo / dizziness. In Italian we say "non fasciarti la testa prima di averla rotta".
        Jul 9, 2021
        Christiaan likes this.
      4. Christiaan
        Christiaan
        It can indeed be quite manageable, like @aot says. Even more so, researchers in the Netherlands are currently working on a relatively new technique (clipping the endolymphatic duct) to effectively treat (maybe even fix) Ménière's disease
        Jul 9, 2021
        PortugalTheMan and convolution like this.
    10. Matchbox
      Matchbox
      Didn't you find flunarizine helped you? What happened?
      1. PortugalTheMan
        PortugalTheMan
        Hello @Matchbox .
        In May I started taking flunarizine and had relief from tinnitus, I started to have tinnitus that I only heard in quiet rooms.
        In June I stopped taking it, and after 1 month I got loud tinnitus again.
        Jul 9, 2021
      2. PortugalTheMan
        PortugalTheMan
        I went back to taking flunalizine now and it got better again.
        On Tuesday I had an appointment with my ENT to tell me how it was. And he asked to do an electrocochleogram (ECOG) because he suspects that I have meniere at a very early stage.
        Jul 9, 2021
    11. PortugalTheMan
      PortugalTheMan
      Hello everyone, yesterday my ENT asked to do an intratympanic electrocochleography? Has anyone done? Do I take risks?
    12. PortugalTheMan
      PortugalTheMan
      I'm going to have to leave the forum for a while, I get panicky and come here looking for something to cure me and I start to cry.
      1. JPGL, Christiaan, Charburchar and 2 others like this.
      2. twa
        twa
        @PortugalTheMan that is probably the best thing to do to help our condition. I enjoy talking to most of the people on the forum, but it's not always a positive place when you are hurting. Keep the faith, take good care of yourself, sending prayers for health and healing.
        Jul 5, 2021
      3. Christiaan
        Christiaan
        I'm sorry to hear/read that @PortugalTheMan . FWIW, I'll miss your sharp contributions on TT and hope you'll find your way back to this forum after a well deserved rest.
        Jul 5, 2021
        PortugalTheMan and Tanni like this.
      4. JPGL
        JPGL
        si es absolutamente terrible esto,lidiando con un mal pico,cuidate amigo,un abrazo
        Jul 5, 2021
        PortugalTheMan likes this.
    13. PortugalTheMan
      PortugalTheMan
      i want to be cured!
    14. PortugalTheMan
      PortugalTheMan
      I just had tinnitus relief from taking flunarizine, has anyone else?
      1. danielthor likes this.
      2. danielthor
        danielthor
        A lot of people report feeling relief after taking it
        Jul 2, 2021
    15. PortugalTheMan
      PortugalTheMan
      I read a post on the forum by people who want euthanasia.I got panic attacks and depression from reading this.I'm afraid to getto that point
      1. aot likes this.
      2. Charburchar
        Charburchar
        I would stay away from them type of threads, mate.
        Jul 1, 2021
        JPGL, Bill Bauer, Christiaan and 5 others like this.
      3. convolution
        convolution
        Jul 1, 2021
        Bill Bauer, aot and Charburchar like this.
      4. PortugalTheMan
        PortugalTheMan
        @Charburchar you have to be in a very deep hole to think about such a thing. right?
        Jul 1, 2021
        kuromi, aot and Charburchar like this.
    16. PortugalTheMan
      PortugalTheMan
      Dr.Drew My loud tinnitus virtually resolved within 30 minutes of first dose. Other long hauler symptoms improved especially fog and fatigue.
    17. PortugalTheMan
      PortugalTheMan
      I don't know I'm going through a spike, I don't even know how I got with it. But I'm back to negative thoughts and despair.
      1. Wrfortiscue, AfroSnowman and MBH like this.
      2. View previous comments...
      3. Wrfortiscue
        Wrfortiscue
        I agree with convolution. We can’t control tinnitus but we can control our reactions. I’m back and forth from not caring to it being devastating
        Jun 30, 2021
      4. PortugalTheMan
        PortugalTheMan
        @convolution and @Wrfortiscue many thanks.
        right now I'm calmer. but yes now you can give suggestions for series I appreciate it
        Jun 30, 2021
        Wrfortiscue likes this.
      5. convolution
        convolution
        @PortugalTheMan I am into crime stuff: True Detective (all seasons), The Killing (the American remake, but the Danish one should be good as well), Mindhunter, Red Riding, The Sinner, Broadchurch, Karrpi. Others (not nec crime): Mr. Robot, Stranger Things, Sherlock, House, Lie to Me, Devs.
        Jul 1, 2021
    18. PortugalTheMan
      PortugalTheMan
      I spent the whole day in tears over this crap. I had a month accustomed to noise, this last 3 days must have increased and I'm sad.
      1. ALS and JPGL like this.
    19. PortugalTheMan
      PortugalTheMan
      seeing people who post that they have days of silence and days of buzz. I wish mine were like that.
      1. JPGL and Orions Pain like this.
    20. PortugalTheMan
      PortugalTheMan
      We are tortured with a sound we don't like every day, and we haven't done anything wrong.
      1. JPGL, SD7, aot and 3 others like this.
    21. PortugalTheMan
      PortugalTheMan
      3 day of loudness tinnitus after 2 weeks of quieter tinnitus...
      1. Lurius
        Lurius
        Oh man, I had just the same thing....
        Jun 28, 2021
        PortugalTheMan likes this.
    22. PortugalTheMan
      PortugalTheMan
      the neurosensory costs $250 for 2 months. for when a device we can all use at low cost?
      1. JPGL likes this.
    23. PortugalTheMan
      PortugalTheMan
      what studies exist, in some exam so that each person knows the cause of their T?
      1. JPGL likes this.
    24. PortugalTheMan
      PortugalTheMan
      Hey Today I do 5 months of T. From 1 - 4 month it was always getting louder. This last month it has dropped in volume for the first time.
      1. JPGL and Bill Bauer like this.
      2. twa
        twa
        YAY! That sounds great!
        Jun 7, 2021
        PortugalTheMan likes this.
      3. PortugalTheMan
        PortugalTheMan
        I don't know if it's habituation or not. but there are days when I am silent, but if I cover my ears I hear the T.
        Jun 7, 2021
        kuromi and twa like this.
      4. twa
        twa
        Sounds like an improvement!
        Jun 7, 2021
        PortugalTheMan likes this.
    25. PortugalTheMan
      PortugalTheMan
      When they tell you that it will get better, believe me it will. And that happens from one month to the next.
      1. kuromi, Keith Handy, JPGL and 2 others like this.
      2. Keith Handy
        Keith Handy
        Months are indeed the SHORTEST unit of time you can go by with this stuff. Day-to-day means *nothing*.
        Jun 2, 2021
        ALS, JPGL, kuromi and 3 others like this.
      3. PortugalTheMan
        PortugalTheMan
        If in our day-to-day we are careful with our ears, it will help our months! ;)
        Jun 7, 2021
        Keith Handy likes this.
      4. Keith Handy
        Keith Handy
        True - I meant day-to-day ups and downs, but day-to-day behaviors are of course a different story.
        Jun 7, 2021
        PortugalTheMan likes this.
    26. PortugalTheMan
      PortugalTheMan
      Strength is the watchword for dealing with tinnitus. Let's be all right! Believe me!
    27. PortugalTheMan
      PortugalTheMan
      does anyone know why my T can get lower after eating? today it got so low that I’m even going to take a nap. ahahah
      1. Kriszti
        Kriszti
        Some problem with your jaw maybe? Just a guess though.
        May 20, 2021
        Steph1710 likes this.
      2. kingsfan
        kingsfan
        Mine disappears while I'm eating and comes back immediately after I finish.
        May 20, 2021
        PortugalTheMan likes this.
    28. Sayeed
      Sayeed
      Hows it going man..just checking up on you
      1. PortugalTheMan likes this.
      2. PortugalTheMan
        PortugalTheMan
        @Sayeed Hi,
        I've been going with an improvement. The stress caused by tinnitus has disappeared, and the tinnitus has reduced a little after four months.
        Since it was 4 months always with the volume increasing, I see this month as a small progress.

        The only thing I took was Flunarizine, it seems to have done something to my tinnitus.
        May 20, 2021
    29. PortugalTheMan
      PortugalTheMan
      What is it for you to get T lower? For me to be shorter, it's something that I couldn't mask my T now it does.
      1. kuromi and Keith Handy like this.
      2. kuromi
        kuromi
        The way I often see it is that commonly, T gets quieter in volume or the sound changes to become more tolerable over time for most people. Mine went from ringing to soft quiet static.
        May 18, 2021
    30. PortugalTheMan
      PortugalTheMan
      Guys, science is already sure why is it that some people have tinnitus and others don't?
      1. twa
        twa
        My dad has hearing loss. He had very mild loss in the military and developed more from occupational hearing loss. He only has mild fleeting tinnitus rarely. He didn't know he had it until I asked him about it and he said now that I listen for I think I do.
        May 5, 2021
        PortugalTheMan likes this.
      2. Kriszti
        Kriszti
        Absolutely not. There are theories though, but no certainty whatsoever as far as I know. Dr. Will Sedley suspects that people with more predictive brains are more likely to develop tinnitus.
        May 5, 2021
        Damocles likes this.
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  • About

    Gender:
    Male
    Location:
    Portugal
    Tinnitus Since:
    01/2021
    Cause of Tinnitus:
    Anxiety / Maybe years listening to music on headphones