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serendipity1996

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2 months until FX-322 read-out let's gooooo Jan 1, 2021

1. serendipity1996
  2 months until FX-322 read-out let's gooooo
  
  Jan 1, 2021
  1. Kane Moffat, Guywithapug, Bill Bauer and 10 others like this.
2. serendipity1996
  Can't even video call my friends because of H. Need the cure NOW!
  
  Dec 20, 2020
  1. Kane Moffat, Kriszti, hurtingdream and 3 others like this.
3. serendipity1996
  Bonfire night....ugh
  
  Nov 5, 2020
  1. Kane Moffat, katri, Charburchar and 4 others like this.
4. serendipity1996
  My two best friends and cousin are getting married next year - how do I attend whilst not making my ears worse. :(
  
  Sep 10, 2020
  1. Kane Moffat, katri, Charburchar and 7 others like this.
5. serendipity1996
  Not getting facial pain from laptop speakers any longer! Still don't feel like I'm up to listening for hours or anything but it's progress!
  
  Aug 3, 2020
  1. Croaker, Marin, Lucifer and 6 others like this.
6. serendipity1996
  A really good day. The bad days still suck but I am bouncing back from them a lot quicker. Hopefully a good sign.
  
  Jul 28, 2020
  1. ASilverLight, RishRamsey, HeavyMantra and 8 others like this.
7. serendipity1996
  Debating whether to go on holiday in 3 weeks with the fam. It won't be "loud" but just wary of potentially hindering my recovery.
  
  Jul 27, 2020
  1. Steph1710 and aot like this.
  2. serendipity1996
    I've improved lots but I'm wary of "over-exerting" my ears
    
    Jul 27, 2020
    
    Steph1710, aot and CAgirl like this.
8. serendipity1996
  Ibuprofen seems to help my trigeminal pain calm down a bit
  
  Jul 24, 2020
  1. Christiaan, Lucifer, Tanni and 3 others like this.
9. serendipity1996
  Worst day in ages
  
  Jul 24, 2020
  1. Steph1710, Kriszti, Lucifer and 2 others like this.
10. serendipity1996
  Three steps forward, two steps back
  
  Jul 20, 2020
  1. Zigs, Bill Bauer, Tweedleman and 5 others like this.
  2. serendipity1996
    The ratio of good to bad days is definitely improving but the bad days, even as they get more infrequent, are really tough.
    
    Jul 20, 2020
    
    Steph1710, aot and ASilverLight like this.
11. serendipity1996
  My head and ears feel like they're 'clearing' and in turn the trigeminal symptoms are reducing...!
  
  Jul 7, 2020
  1. lauracolle, Steph1710, Tanni and 4 others like this.
  2. serendipity1996
    It feels like something is shifting but idk i don't wanna get my hopes up.
    
    Jul 7, 2020
12. serendipity1996
  Can't stop worrying that my trigeminal nerve issues will become chronic
  
  Jul 4, 2020
  1. Christiaan, Tweedleman, Zugzug and 4 others like this.
  2. serendipity1996
    Can't help but worry that I am too much of an 'edge case' for the regen drugs lol
    
    Jul 5, 2020
    
    aot likes this.
13. serendipity1996
  Anyone else find caffeine spikes reactive T? Was having a good day until then. Also triggered facial/trigeminal tension
  
  Jun 29, 2020
14. serendipity1996
  Keeping a record of good days vs. bad days to track my progress lol
  
  Jun 28, 2020
  1. Bill Bauer, Emgee, Tweedleman and 5 others like this.
15. serendipity1996
  When does the reactivity GO AWAY
  
  Jun 19, 2020
  1. Gordon Steinberg, Tara Lyons, CAgirl and 5 others like this.
16. serendipity1996
  I await Audion's results with baited breath...
  
  Apr 30, 2020
  1. Sevv, Turgy, Autumnly and 2 others like this.
17. serendipity1996
  Have a skype conference call tomorrow...worried this will trigger my H and face numbness...
  
  Apr 23, 2020
  1. Daniel Lion likes this.
18. serendipity1996
  Side-effect of making me more physically anxious and 'tensed up' - wonder if that exacerbates my TTTS symptoms
  
  Apr 20, 2020
19. serendipity1996
  Whenever I take stimulant medication my TTTS - mainly forehead numbness/tingling feel worse.
  
  Apr 20, 2020
20. serendipity1996
  Slight ear pain back after a 3 week respite...hope this is the last of it.
  
  Apr 18, 2020
  1. Bill Bauer and aot like this.
21. serendipity1996
  Does anyone else find sleep deprivations worsens their H/TTTS symptoms?
  
  Apr 15, 2020
22. serendipity1996
  So eardrum spasms/fluttering have gone...
  
  Apr 10, 2020
  1. Bill Bauer, Star64, Tanni and 2 others like this.
23. serendipity1996
  it's crazy...I hope this isn't here to stay....
  
  Apr 9, 2020
  1. Bill Bauer likes this.
24. serendipity1996
  H 90% gone but my TTTS still flares up whenever I try to watch/listen to something on my laptop
  
  Apr 9, 2020
25. serendipity1996
  Best day in a while in terms of reactivity and H.
  
  Apr 1, 2020
  1. FGG, James1977, Zugzug and 3 others like this.
26. serendipity1996
  At least I can listen to music again...trying not to push it and get carried away. Could almost cry with happiness tbh.
  
  Mar 17, 2020
  1. James1977 and all to gain like this.
27. serendipity1996
  Thanks to Covid-19, now I have a socially acceptable reason to not go out smh
  
  Mar 16, 2020
  1. Mikkijan, acute, OnceUponaTime and 4 others like this.
28. serendipity1996
  Hyperacusis plz stop teasing me and giving me mixed signals
  
  Mar 9, 2020
  1. Born To Slay and East like this.
29. serendipity1996
  So my tinnitus has receded to barely noticeable but the hyperacusis doggedly persists...it's been getting better but it's soooo slow
  
  Feb 29, 2020
  1. Christopher805, OnceUponaTime and Labyrinthine like this.
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Gender:

Female

Tinnitus Since:

2011

Cause of Tinnitus:

Unknown but suspect noise-induced
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