ShaunR
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ShaunR

Member, Male

Constant jaw ache all day.... Feels like I've been punched in the face. What the he is going on :( Oct 23, 2020 at 7:30 PM

ShaunR was last seen:
Viewing thread Learning About "Tonic Tensor Tympani Syndrome" Greatly Reduced Ear Pain and Hyperacusis, Oct 24, 2020 at 3:28 PM
    1. ShaunR
      ShaunR
      Constant jaw ache all day.... Feels like I've been punched in the face. What the he is going on :(
    2. ShaunR
      ShaunR
      4 Months in. Still have jaw pain and face ache. Still have fullness. Still mega depressed. Not sure when the nightmare will end
      1. Tara Lyons likes this.
    3. ShaunR
      ShaunR
      H has destroyed me :(
      1. aot, Nadia231 and weab00 like this.
    4. ShaunR
      ShaunR
      3 month anniversary of H... Woo a bloody hoo
      1. aot likes this.
    5. ShaunR
      ShaunR
      Not sure how much H I can take.... At breaking point.
    6. ShaunR
      ShaunR
      Bad face tension today
    7. ShaunR
      ShaunR
      Fed up of this now. Constant face pain, jaw ache and fullness is slowly killing me
    8. ShaunR
      ShaunR
      Constant stuffy nose and ear today. Thankfully not much pain.
    9. ShaunR
      ShaunR
      Ear ache tonight uck
    10. ShaunR
      ShaunR
      3 good days..... Now on a bad day. H is sone kind of crap rollercoaster... I want off.
      1. Bill Bauer likes this.
    11. ShaunR
      ShaunR
      Sounds still giving me jaw ache and a weird feeling in my face. No burning for a while now though
      1. Bill Bauer likes this.
    12. Andymo
      Andymo
      @ShaunR if it's any comfort I no longer get ear pain, just ache and sensitivity. Symptoms have been since early May. Ear flutter less too.
      1. ShaunR
        ShaunR
        Thanks Andy it is a comfort. I struggle every single day with this. Its affected every aspect of my life
        Aug 26, 2020
        Andymo likes this.
    13. ShaunR
      ShaunR
      Burning pain hasn't resurfaced for a week now. Just left with some weird sensation/ sensitivity and jaw ache.
    14. Andymo
      Andymo
      Sorry for not getting back to you on the other post, @ShaunR . My TTTs pain, as I put words in the mouth of yet another ENT, manifests in an irritated Trigeminal Nerve or the Stapedius / Tympanic Muscles overworking. Or it is referred pain from a neck nerve or C1 and C2 vertebrae. I don't get any pain from noise. I am so sorry to hear of your suffering of this vile affliction. Stay strong, brother
    15. ShaunR
      ShaunR
      Turns out I have a hearing loss! Either happened recently or I've slowly lost it over the past 10 years.
    16. ShaunR
      ShaunR
      Ear defenders all the time now. It's the only way I'm not In constant pain. Feels like life is over.
      1. aot likes this.
      2. Bill Bauer
        Bill Bauer
        If you protect your ears, after a year or two you will become more resilient and won't need to protect your ears.
        Aug 21, 2020
      3. ShaunR
        ShaunR
        Thanks @Bill Bauer yer that's what I do now for pretty much everything over 70db. I don't watch TV or listen to music anymore
        Aug 21, 2020
      4. Bill Bauer
        Bill Bauer
        If a noise is under 70 dB and it doesn't feel right, you might consider avoiding it too. That has been my policy, and I am happy with the results.
        Aug 21, 2020
        Tara Lyons and all to gain like this.
    17. ShaunR
      ShaunR
      @serendipity1996 Hi I was wondering what your progress has been and time frame? Did you have burning? Did it go away?
      1. serendipity1996 and aot like this.
      2. serendipity1996
        serendipity1996
        I had burning pain for the first 3 months which gradually went away but I still had facial/trigeminal numbness and irritation for a while - it's mostly gone now at 8 months in. Not completely back to normal yet but better!
        Aug 19, 2020
        DrewM likes this.
      3. ShaunR
        ShaunR
        @serendipity1996 Thank you. I keep holding onto hope everyday. I hope you continue to improve.
        Aug 19, 2020
        serendipity1996 likes this.
    18. Midas
      Midas
      Shaun, trust me, i've been there too, many of us on this forum. I had burning ears, tighness and wierd sensations in the ears too (severe acoustic trauma). You will improve, but will have setbacks. It takes time for your ears to heal. I'm in for about 30 months now with severe T and H and just had I minor setback again after about 9 months. In the beginning time frames were much shorter and setbacks were worse.
      1. Charburchar likes this.
      2. ShaunR
        ShaunR
        @Midas Thank you means a lot to hear that. I almost gave up on life.... You've renewed my hope. Thank you for taking the time to reply to me... You don't know how much it means to me.
        Aug 18, 2020
        all to gain and Charburchar like this.
      3. Charburchar
        Charburchar
        I second @Midas. It does take time, longer for some shorter for other. Protect your ears and take each day as it comes. I hope things work out for you.
        Aug 19, 2020
      4. ShaunR
        ShaunR
        @Charburchar Thank you. I'm only 2 months in and no real sign of improvement. Hoping this gets better as time goes on.
        Aug 19, 2020
    19. Midas
      Midas
      hi, Shaun, sorry you have to go through this. Hang in there. Give yours ears enough rest and build up sound exposure slowly. It will get better.
      1. Charburchar and aot like this.
      2. ShaunR
        ShaunR
        @Midas Thank you I pray your right. Everyday is torture. Sounds do not sound too loud they just cause me delayed aching, awful burning and tightness. Today has been the worst day of my life. I actually planned suicide but my fiance stopped me doing anything stupid. I've just got some tegretol to try and right now feel quite sedated.
        Aug 18, 2020
    20. ShaunR
      ShaunR
      I can't take anymore of this H.. Tingling burning...... . Aching...... I can't wait for it to go away
    21. ShaunR
      ShaunR
      Walked round shopping centre today with no weird ear feelings and no plug. Just a bit of fullness. Let's see if H bites me later
      1. Tanni and aot like this.
      2. Bill Bauer
        Bill Bauer
        The fact that you are doing those experiments, and taking a risk that your experiment backfires seems to imply that your T hasn't been bothering you enough to convince you to not take any risks. Let's hope that you get lucky. Then again, if you keep taking chances, there's a good chance that eventually your luck will run out.
        Aug 16, 2020
      3. ShaunR
        ShaunR
        @Bill Bauer I don't have a problem with T :) My moderate T hasn't bothered me in about 15 years. H is my problem now. I'm not even convinced that's what I have seems I have constant face pain regardless of noise. The shopping centre was quiet as there was no one really about. If it is H surely I shouldn't be over protecting anyway.
        Aug 17, 2020
    22. ShaunR
      ShaunR
      A day laid In bed in silence.No ear pain no fullness no burning. Just jaw ache now but ive got up. Anyone up for going half on desert island
      1. Bill Bauer likes this.
    23. ShaunR
      ShaunR
      Almost 2 months in to H and now lost all hope.
      1. View previous comments...
      2. ShaunR
        ShaunR
        @Star64 Really trying. Constant face pain and fullness is running me Into the ground. I can't find any relief
        Aug 14, 2020
        Star64 likes this.
      3. Martinf
        Martinf
        2 months is nothing. Ears take forever to heal. My moderate H took 4 months to get better. It is still mild now though
        Aug 14, 2020
        Star64 likes this.
      4. Bill Bauer
        Bill Bauer
        H usually goes away. You need to give it time: 6-12 or even 24 months.
        Aug 15, 2020
        DrewM and Star64 like this.
    24. ShaunR
      ShaunR
      Can't stop constantly monitoring my ear. I think this is exacerbating the fullness and odd sensation :(
    25. ShaunR
      ShaunR
      Another night of acid burning ear.
    26. ShaunR
      ShaunR
      @Orions Pain Going through an incredibly tough time myself. Everyday is one struggle from beginning to end. Keep on fighting!
      1. sensualmosquito and Orions Pain like this.
      2. Orions Pain
        Orions Pain
        I’m sorry you’re also dealing with this :/ it’s very hard but I refuse to give up when potential treatment is so close
        Aug 7, 2020
        lauracolle, sensualmosquito and Tanni like this.
      3. ShaunR
        ShaunR
        @Orions Pain I'm glad to hear your fighting the good fight :) I'm on this site daily now looking for hope.... Even if it takes years I'm determined to feel OK again. I hope you heal :)
        Aug 7, 2020
        Orions Pain likes this.
      4. Orions Pain
        Orions Pain
        Same for you! I was in the same boat when this first started, this site is very helpful. Hoping either with time we all heal or FX-322 comes to our rescue!
        Aug 8, 2020
    27. ShaunR
      ShaunR
      Well either H is improving or Ads are taking effect. 2 days of sorta kinda living instead of existing
      1. Lucifer and Tanni like this.
    28. ShaunR
      ShaunR
      Specsavers hearing test booked.... Going to do an extended test so I can at least see the extent of the damage in my right ear.
    29. ShaunR
      ShaunR
      Tingling and numbness faded. Now have very bad fullness.
    30. ShaunR
      ShaunR
      Another trip to the Dr's. More citalopram and MRI booked.
      1. Gabriel5050
        Gabriel5050
        Just in case you didn't know - MRI can be loud, according to other forum members. You decide ultimately what to do, of course.
        Aug 4, 2020
        Bill Bauer likes this.
      2. Bill Bauer
        Bill Bauer
        I would only do an MRI if my life were to be at stake. A number of people got serious permanent T spikes afterwards.
        Aug 4, 2020
        all to gain likes this.
      3. ShaunR
        ShaunR
        Hi @Gabriel5050 yer I told the Dr I was unsure but he said he wants to look at the scan to determine what's going on. Had one before with ear protection for basically the same problem and had no issues.
        Aug 4, 2020
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    Gender:
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    Tinnitus Since:
    June 2004
    Cause of Tinnitus:
    Concert + Motorbike