arcanesystem
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  • I've been having headaches and now weakness with dizziness since last week. I'm scared I might have a tumor or something's about to rupture.
    arcanesystem
    I wonder if it's possible that vaccine-related vestibular neuritis is to blame. I managed to find a forum where tons of people are reporting it. For the most part, it's nothing to worry about and will go away after several weeks.
    It's so weird how when my right ear is louder than my left, I'm more at peace with it because that's what I'm used to.
    arcanesystem
    I had a terrible spike in my left ear again the past two weeks. But today it seems to be better.
    The rumbling sound I had a year ago in my ear came back last night and it's still there. I'm so agitated, I'm shaking.
    Docs always say to avoid coffee with T (no pun intended), I don't know why. It's one of the few things that helps me think clearly anymore.
    I remember saying a while ago that having hope without seeing progress really screws me over. Well, I feel really screwed over right now.
    I want to visit another country once COVID is over. It's too bad flying is a phobia of mine, so that's never going to happen.
    I wonder how Drachen is doing. It's for the best he's been away from this place.
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      buttercake

    I am sure he is fine. He gathered all the info he needed and probably continued with his life.
    kuromi
    I'm in contact with Drachen on other platforms. Seemed to be having a difficult period over the last few days, but to the best of my knowledge he's coping.
    I'm trying my best to keep in touch with him, I really feel for him.
    Everything at once happening this month. Super stressful.
    Bill Bauer
    What else besides fx322, and also when?
    arcanesystem
    @Bill Bauer I'm in an accelerated nursing program, so we have a super condensed schedule. Many use the analogy that it's like drinking water from a fire hose. Clinicals are rough with COVID and I have all my finals, projects and competencies clustered through the next three weeks. Then there's my birthday coming up. I'm trying to take it one day at a time without freaking out.
    @buttercake That sounds a bit like the spike I was having in my left ear. Mine is more like a rapid, high pitch shimmering sound.
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      buttercake

    Mine is very quiet though, much lower volume than my baseline. It chirps every now and then. I used to have something similar in my right ear, but that went away. I used a nasal decongestant and it _seems_ to be gone. Might be related to the slight cold I have? Who knows :/
    I had a couple of good days lately. Not paying attention to the new sounds in a quiet room anymore and getting sleep. That's all I ask for.
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      buttercake

    Me too. When I am alone it is hard, but I am working on that. Good job, anyway! You will improve more and more.
    I keep imagining, what it would be like the day when there's a definitive cure for this hell and we all become free from this misery.
    arcanesystem
    Thinking that day is coming gives me hope. On the other hand, waiting for a good sign and never getting closure really screws with me.
    It's silly, but I started a diary a few days ago to keep track of my daily activities. I want to track down the reason for my spikes.
    I noticed I get recurring spikes around this time of the year. Maybe it has something to do with the weather?
    Steph1710
    I'm sure the heat spikes mine. :-/
    Ilias T
    @arcanesystem It could. I got my spike yesterday and I turned of the heater to have silence. My spike improved and when I launched my heater again it completely stopped.

    @Steph1710 I remember the summer 2020 and mine spiked but it was half as bad. The cold might cause inflammation. Unlucky me I live at the top of the house and I get 32°C in my room :(
    Even if hearing silence again was somehow a possibility, my life is never going back to what it was before T. I think about this often.
    arcanesystem
    Thank you guys. I really appreciate the positivity from fellow members as we suffer through this together. This condition really is a neverending nightmare, but knowing there are others out there who are toughing it out is probably the best encouragement. Thank you.
    Ilias T
    @arcanesystem We are not trying to be tough. The reality is no human is tough. We all get hurt we all make mistakes. I think we will have a cure in our lifetime.
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      buttercake

    We need to force ourselves to be positive (at least until a treatment is found, that I truly hope will happen sooner than later). It's funny because I have always been the negative dude that everybody avoids; I read Cioran and Zapffe throughout my whole youth... and now I am forcing myself to be positive lol :)))
    I think the spike finally receded. I'm glad I can tolerate the silence again but I still prefer having background noise.
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