Search results for query: Myoclonus

Ive been looking into myoclonus of the middle ear and there is a lot of literature about it and how it can cause tinnitus. I know there is a surgery where they cut the muscle so it cant contract and spasm. I wonder if that would improve some peoples t. A lot of times when this is the cause it...

...before. but today its back to normal again.i think it was because it was very swollen yesterday after extraction, so i think it pushed even more into my ear on my hearing nerve or something...cause the extraction was on the side where all my ear problems are (tinnitus, tensor tympani myoclonus)

I feel the exact same, doctors have done nothing but destroy my mental health ever since I became ill with tinnitus etc... most of the time it is up to us. It is great to hear it is subsiding. I bet it will completely disappear over the next few weeks/months.

Sorry to hear your tinnitus is so severe. I had Middle Ear Myoclonus in both ears since 2007 and it would drive me crazy. Episodes would last 14 to 16 hours. It would be off and on but in 2017 it got so bad I could barely stand it. I went to many doctors but got no relief. They prescribed...

...to hear the sound very well in my left ear, but not so clearly in my right. I'm currently going through what seems to be Stapedial Myoclonus/Dysacusis, which may or may not be because of Conductive Hearing Loss? I tested the sound in both ears, and my left ear definitely hears the static...

I haven’t looked into that. Thanks for the suggestion. I do have TTTS thumping. Yeah, trying to get help is frustrating hopeless it seems. My surgeon/ENT just seems dismissive and somewhat defensive whenever I’ve brought it up with him. I think he’s worried I’ll try to sue him or something. I...

Mine gets worse when I eat and when I exercise. Also it gets worse if I have tension in the jaw and neck. I am thinking about doing a Doppler test. Scared about MRI (too noisy).

In regards to inner ear issues (myoclonus/TTTS) this paper was interesting in terms of diagnostics. https://www.ncbi.nlm.nih.gov/pubmed/24232057 @Tinniger We do have to do everything ourselves including seeking out the right kind of help. The only urgency that exists for this condition is our...

...forget about it. We have some members here that feel the same way as you. Maybe reach out to them. My main problem is my heart failure, but I've got a big list of health problems now including stapedial myoclonus and tinnitus. Ive faced death several times and decided I want nothing to do...

Hi @Audiophile_bg, I’m also in Bulgaria and I just got prescribed Carbamazepine by a neurologist here. I took one dose. My tinnitus seems weird today. I have a buzzing and high pitched tones and I can’t tell exactly what’s going on.

...but now it goes into spasms for hours on end and effects both ears. Mine is also set off by a burp or hiccups too ! My ent says it's ear myoclonus. Basically muscle spasm which can be triggered by anxiety! I am on magnesium just now but if that does not work I am going to be given...

...will set my mind at ease. My doctor didn't think I would get offered it until around February anyhow. I've also had tinnitus now for over 30 years, and recently started having what I think is MEM (Middle Ear Myoclonus). I too hope that this vaccine doesn't make that worse. It is driving me mad.

So sorry to hear. I've had clicking off and on too. Not as often. What exactly do you hear? Does it pulsate/rumble the vibrating noise or just a solid low sound like regular tinnitus but just in lower frequency in sound? Mine I can actually feel when it gets back and it's a vibrating type hum...

...swallow and it’s just one pop. Sound like when you pop your ears in a plane or whatever normally swallow. You may have mem or middle ear myoclonus, luckily they can totally fix that if you have that. I myself have mem but only get a few thumps a day not hundreds. If it’s a thump you’ll...

Acoustic trauma has been linked to straight up myoclonus in some of the little pathetic literature we have on myoclonus. I believe correct me if I'm wrong that a few of the successful patients from Silverstein are from acoustic trauma. Of course the Silverstein institute isn't asking the...

I also feel a vibration in my right ear. I went to the ENT this morning , he removed earwax, but I still have it. Feels like a bug in ear crawling very fast. The ENT did not understand me, because I think I have ear myoclonus and tried to explain that to him.

I hope you recover soon. That's why I did not get vaccinated...

...yours, but extreme. Two acoustic traumas, a year apart. Don't go to places with loud sounds, because the second night club I went to turned my ear from only thumping at the sound of a school alarm to thumping to every single sound shift reflex startle whatever. It looks like middle ear...

Stapedial myoclonus has been treated in China using a type of compress to apply Botox directly to the muscle which then absorbs it. It was passed via an already ruptured eardrum. It apparently worked, which would make it an excellent diagnostic tool. The Stap is to small to inject. I...

In a way you are sort of demonstrating how TRT principles supposedly apply to Middle ear myoclonus. Theoretically it should be possible to retrain involuntary muscles to respond/not respond to stimulus based on what the brain accepts that stimulus as representing. At least that's what "they"...

...needs to visualize the area and identify the structures and to do so has to get past the drum. I think Chelles may be right about palatal myoclonus, but that is pretty rare (but then they tell us hyperacusis is rare don't they). I think any procedure involving the TT or the Stap. requires...

@PaulBe I don't have hyperacusis and only mild hearing loss. The main symptom is that main eardrum vibrating a littelbit when a sound impact with it for this reason I think no one will perform a surgery (tenetomy) on my ears even in USA. I think my condition is permanent! Only a trembling no...

...Again, thank you very much for sharing this compelling information. I entirely agree with her on her TTTS points. These periods of myoclonus are episodic and, given such a small muscle, can be difficult to measure. Stellate ganglion blocks are fairly routine outpatient procedures for...

...two Fridays ago, end of November. I can't say I'm experiencing thumping, it's like reactive T. The cause could be ETD(which I know I have), Myoclonus, or TTTS. The links below are my most recent threads. Give them a read if you want to find out more. They are lengthy, though. Let me know...

...It's taken me 16 months to figure out that my chirping sounds *may* be objective tinnitus. Mine is intermittent, and gets better/or worse with different head/neck positions. I've been reading lately about Palatal Myoclonus and Middle Ear Myoclonus. Still hopeful I'll find some kind of...

I have a bass like sound in my ears, but mine is caused by a combination of 2 conditions.. patulous eustachian tubes and ear myoclonus. My eustachian tubes are unable to close so I hear a rhythmic bass like thumping, caused by my own heartbeat. And my heartbeat seems to set off the ear muscle...

I get waves of bad stuff (in 2020 I had a "regular" spike, a bout of pulsatile tinnitus and a bout of middle ear myoclonus AKA "clicking"). However, between the waves of crap, I also get good periods. Met a sweet girl, had some success with investments. Or just simpler stuff, like back-to-back...

Hey, this is very interesting. Especially that video from the study. However, that example singer's stapedius only seemed to clench and release only as he was singing, but that doesn't mean there wouldn't be different forms of it. Many of us have had a similar experience with a low...

...but continuous? Or bee like beehive continuous... And by Sismanis and ''the fails he had'', what do you mean? He definitely said possible myoclonus to me and he told me the only way to get rid of my condition was tenotomy, but then he just went weird, making neutral statements on what H and...

I did not have hyperacusis officially but the myoclonus was so severe in both ears from tensor tampani and stapedial tendons, my ears became sensitive to sound. I also suffer with a little bit of T. My neurotologist examined my ears and confirmed TTS once he saw the ear drums dimple. MRI came...

I don't think it is reactive to sounds. I'll have to pay more attention to the timing of it. I am more in shock about the sensation, so not focusing on what might be causing it. How did you realize your was set off by sound types?

...sounds? I have at times had a pronounced thumping/fluttering in one ear - and it took me a long time to realize it wasn't random, but caused by sounds like the bathroom fan or a spot in my kitchen that reflected the fan in the fridge.. Pretty sure this is myoclonus or some tympanic disease..

Would you classify this ''pressure'' as a tympani drum that jumps zaps you with a small latency just after a sound begins to hit you?

...like the sound when you smash your car door hard, but then very fast after each other. After reading on the internet I thought it was ear myoclonus and hold on to that. He said in all his academic career he has never had someone with these symptoms... Ok so this is it for me then if he...

So yes, because your eardrum was lifted, it is very possible that your eardrum may feel loose, precisely because they did lift it and reattach it. Do not let your doctor ever tell you what you feel. Those doctors are not worthy of holding a medical license. You are correct that because you do...

I dont think you should take it upon yourself to bear the full responsibility for Padraigh. I have found myself to think and say things + react in ways I would not normally do after I got 3+ years in with this nonsensical condition. Lack of sleep over a long, long time and just generally the...

...though no one is listening to me. So far I have had specialists say its my TMJ joint clicking (it's not my jaw, its in my ear), a palatal myoclonus (again, its not in my mouth its in my ear), some other myoclonus, possibly the stapedius muscle contracting (this cant be because it doesnt occur...

...Saturday 6/10, today a massive big fat 10/10. It can change inter day as well. No predictability and different tones. I have Middle Ear Myoclonus as well as ‘normal’ tinnitus. If I lived in a country where it’s available, I’d probably apply for VAD. Last throw of dice is psych hospital and...

...dimple as viewed by an otoscope? Have you had any adverse effects from the surgery ? I have been told that I may have TTTS middle ear myoclonus, but I am intrigued by your statement that tensor tympani reacts to internal sounds while stapedius reacts to external. The explosion/crunching...

...to be hormonal. I have birth in June and stayed on the diuretics and LDN during pregnancy. Towards the end, I had some MEM (Middle Ear Myoclonus), but that has settled and stopped for about 2 months. I haven’t tried anything else as I’ve been stable. I will read about Singulair though...

Hi There, Yes I have middle ear myoclonus and this was diagnosed by my ENT by doing a long term Tympanometry test. Basically its a device that goes right to the back of your ear drum and records the movement. You need to be having an attack for this to work. I was offered surgery as soon as it...

I have reactive tinnitus too, and antibiotics do make it spike. But it usually settles down. It is hard to live with!

...faith years ago) and let it go. So that's what I've been doing. It's been a battle but one I've been winning (mostly). So, that's why I haven't been around. Tinnitus is there, the clicking is there, but I'm coping and living my life. Oh, and it was confirmed that I do have Middle Ear Myoclonus.

I was fine with the first two vaccines. I had the booster vaccine followed by a headache that last many, many weeks. Unsure if the headaches are more frequent now or not, I am predisposed to them due to having TMD and light sensitivity from dry eyes. Tinnitus AFAIR stayed the same, but then my...

...low frequency tinnitus in my left ear. It feels like something is actually vibrating in my ear but I'm not sure. Could be stapedial myoclonus but it's hard to tell. At first I only noticed it at night where it would be intermittent (zzz,zzzzzzz,z,zzzzzz,zzz...) with no particular pattern...

...that gets much worse when lying down? I have this problem also, in one ear. I think it's likely a form of an inner ear spasm (stapedial myoclonus). The buzzing can also start up, when I'm in a very quiet room. I've been using a silicon ear plug at night, and also in noisy environments...

Hi There, I suffer from middle ear myoclonus and my doctor is trying to sort out tests to see what muscle is going into spasm. I have had this one and off for a few years and its awful. I am so sorry to hear you are also suffering from this. I am on an amazing facebook page called tonic tensor...

Your comments are a bit vague to me.... The evidence behind what i said is in below link..... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4208401/ Can you provide any evidence to back what you say???