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Eight months later, I'll report that my spike did subside (it didn't take very long), but I don't recommend Minoxidil to anyone who is prone to...
I had used Minoxidil / Rogaine in the past (pre-tinnitus), with no problem. A few days ago I tried it again, one single application (just the...
I have to take my son cross country to get to John Hopkins, where they have a Eustachian Tube clinic. There is nothing like that here in Texas. My...
Prednisone should always be tapered, and it has consistently helped both my and my son's ear problems. It reduces inflammation and damage.
There was no noise exposure incident, no. My son has also never worn headphones. Right now, the tentative diagnoses are patulous Eustachian tube,...
I have a 16 year old son who is in terrible pain & unable to live a normal life. Doctors can't figure out why. He had normal ears until 10 months...
Can you please give me the phone number / department you called at Canon to find out where their machines are? I have not been able to get that...
Has anyone had an MRI in a Toshiba Galan and can tell me where to go to get that machine, which is supposed to be the quietest? Calling...
I recommend oral Methylprednisolone and/or intratympanic steroid injections into your eardrums if you haven't yet.
I'm so sorry to hear this. May God bless and protect you. May I ask, were you given any hearing protection in the MRI machine? If so, what kind?...
Where did you have a 3T Vantage MRI done? I have called them and the company will not share where the machines are. Where did you have this done?...
How did it go for you in the long run?
Does the increased loudness only last during the injections, or also after?
My very anxious 16-year-old son has been prescribed steroid injections into the eardrums and is scared. I have a few questions for those of you...
My 16 year-old son began having a lot of ear problems a few months ago, including ear pain, fullness, slightly muffled hearing (despite 2 normal...
I had longstanding mild tinnitus since adolescence (I'm in my 40's), and a few years ago my tinnitus became problematic after I took prescription...
I will add that it is now over two weeks since my second Moderna shot. My tinnitus is at the same baseline that it was before I got any shots,...
If you had no negative reaction after your first shot, it seems unlikely the second shot would cause you a problem. I'm 3 days past my second...
Yes, this is the way I see it, too. As an in-person schoolteacher, I am at very high risk of getting the virus if unvaccinated. I'm actually...
I've love to hear from more people who got the second Moderna shot. I got the first Moderna shot a few weeks ago and my tinnitus seems to have...
I thought I'd make a thread where people can share their experiences with getting the COVID-19 vaccine, and whether or not it seemed to have any...
I suffer from chronic constipation, and am considering using MiraLAX on a daily basis from now on. Doctor says that's okay for my gut, but I'm...
I now only get wax removed by a hearing aid specialist who uses a microscope to visualize the wax, then a very small plastic device to manually...
How did the Diamox work for you over the long term? Were there any side effects? My doctor wants me to take it but I'm hesitant.
Could you also please PM me that contact information? Thank you very much!
I'm pretty unhappy with doctors as a group. My condition was initiated by one of the "harmless" prescriptions they told me to take (megadose...
How did your surgery go? Did it cure you?
You can get or worsen tinnitus via an MRI, so the MRI is not particularly safe for us as a subgroup of patients. The MRI they put me into was as...
They wouldn't let me use my own earplugs, just the ones they gave me. Did you have your MRI before or after the onset of your tinnitus?
Avoid MRI's if at all possible. My tinnitus worsened significantly after an MRI (even though I wore earplugs) over a year ago and never went back...
Are you still on Nicergoline? If so, is it still helping you?
Megadose ibuprofin prescribed by a podiatrist and promised to be totally safe. Not.
They had no problem approving the med that helped cause my tinnitus, but the med that might help treat it? Noooo...
I'm considering it because it's been reported to help some people.
Does anyone know how to get Nicergoline (brand name is Sermion)? It isn't available in the US yet, as the FDA hasn't approved it. I've begun to...
Did you ever try the Sermion? Did it help? You're in Canada, it seems. I suppose it's available there? It isn't available in the US.
What country do you live in, that you were able to get Sermion? I'm in the USA and my alternative doctor was willing to write a prescription for...
I would like to buy some retigabine from you, as well, and would be happy to pay upfront.
By "shortly after finishing", do you mean a few days or a few weeks?
I also recently took ibuprofin before my T increased. Did yours ever decrease?
Did your tinnitus go back to baseline after the prednisolone?
I recommend asking for a referral to a neurologist as well as an ENT.
@quietatnight, did your tinnitus get back down to baseline eventually?
Did Medrol cause a permanent or temporary increase in your tinnitus?
How did the prednisone work for your T?
Thanks for sharing the details, and please do keep us updated with your continued progress.
This is very useful information. Could you possibly share the details of your Retigabine taper, both up and down?
It's a neurological disorder in that the brain is manufacturing non-existent sounds. It can be triggered by many things (noise, medications,...
When you said you feel better, did you mean your T was quieter? How long have you been taking it?
What brand and strength are you taking?
I would be happy to take or buy your boxes.
That is a scare tactic and should be ignored. T is a neurological disorder, but is not indicative of your brain deteriorating or you dying....
Thanks for sharing.
Has anyone here tried the OTC lidocaine patch?
Is Zicam still helpful for you?
What type and brand of magnesium do you take?
What kind of magnesium?
If you would like to share or sell any of those boxes, I would greatly appreciate it.
Yes, it does seem that medications are a major trigger. There should be more awareness and warnings about that.
The first step to getting past this "There is no cure" mentality in the medical community is to build understanding that T is a neurological...