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Hi Alice, I dont know why I cant sent private message using this web. I writte here. After a lot of doctors, dont undertand about this patology....

Hello Alice,Im sorry for the delete. Since a few years Im more active un a facebook group called: Tonic tensor tympanic support group. My cooments...

Thanks for the replays and help. Yes, the schools should be willing to contribute to the cost... Also the schools should be more educative......

Hi Mermaid, Me not... a lot of years with this... My doctor say probably I have stapediu myoclonus...perhaps... But I think have a problem with...

@Jokko Do you know his name?

Perhaps. If your ear fail you ear is ill. If your ear is ill your ear became old.

I had a acoustic traumatism... I think is a ear problem. You?

We are a few people who have this problem or similar.. Is not easy to find a good professional who really knows about this condition and what is...

Hi Mad, do you have a diagnostic and a solution for your middle ear problem?

Exist in Europe or in EUA some doctor who have experience about middle ear problems (specially about stapedium myocloni) and what is the best...

Passame tu email si quieres y hablamos en calma en privado. Aparte de la hiperacusia no me queda claro si tienes problemes musculares (TTTS o...

The study (66) Liu HB, Fan JP, LIN SZ, Zhao SW, Lin Z. Botox transient treatment of tinnitus due to stapedius myoclonus: case report. Clin Neurol...

https://mega.co.nz/#!LNQzBDiI!Ctb9_RX7WJWnf-7k3dmr3l_NfaIMdpG0ByZepE9YR4E : Palatal and stapedius myoclonus: Palatal myoclonus is characterized...

Hi Paul can you put the link about this summary.... Thanks

There are studies about middle ear...There are his names on the top. Perhaps they are the uniques doctors who know more about it. Mars or Jupiter...

If I move the palatine muscles rather than my eardrum I undertand I need palatal botox. But who knows if my problem is this. Before you speak...

How I can know if I have palatal myoclonus or stapedium myocloni. I haven't the palatal myocloni of this vídeo (youtubbe). I feel a...

I'm also be able to move my eardrum voluntary by Valsalva maneuver, I feel a crackle in my myoclonic ear when the air arrives there. Apart from...

Im loocking for a middle ear myoclonus specialist

I had a acoustic traumatism. In my case I think the problem is muscular not neurological.

Hi Mad maggot, In your case doctors will do any test for have a good diagnosis? thanks

It not metallic my sound. My problem sound like a fly/butterfly try to fly inside my ear or a speaker crashed. Furthermore cause pain in the...

Im not a doctor I don't know how I can be sure. For this reason im loocking for a good specialist who make me a good diagnòstic and treatment....

Five years with myocloni...

I have a very small tinnitus, no problem. Yes, I have a: myoclonic contraction of the muscle of the stirrup. He said this without see inside my...

Hi tinnitus friends, Me and my especialist are thinking I have stapedium myocloni. External noise and my Voice (normal-hight) also cause...

I think the symptoms of TTS and stapedium myocloni are differents. Stapedium myocloni: you feel a smoth trapped not in TTS

I eat grains, plant and legumes very often. I imagine this ir more biodisponible than suplements but I should to try but I have read Mg...

The vibrations comes when appears noise and this is constant, for fatigue. I think I haven't autophony but Im not sure... I need use earplugs...

Hi, I have the same. 5 years with this. I haven't any problem in thyroidor or in my mouth. I think took this for acoustic traumatism. Now I...

Hello, could be stapedium myocloni?

TTTS or Stapedium myocloni. I dont' understand about: "I can also press on the area right below my right ear and have the same thing happen"....

I'm agree with Haru. I also think that fluterring is only due psychological reasons. The muscle becomes tired (why?)and inflamed. Adrian,...

I have fluttering because of a stapedium myocloni. Usually forum speak about TTTS...

Happy new (coffee stain) ear ? Im not a profesional hehe

Lets go! everybody smoke weed! This is the final :p

Thanks for your contribution Dana. Its help me.(y)

Hy Jay, my eustachian tube don't work good normaly but when I have a hypercusis setbaback I have some blood in saliva or a blood taste. Could you...

I have Hiperacusis and TTTS from 2010. I recomended you to find a GOOD phsicologist who can help you in the begining. You haven't live with...

I started with very low hyperacusis in very very acute sounds a lot of years ago. After started this fluttering... and then bad bad hyperacusis....

Who is Tim? Is dead?... More information about this study.. but someone have complet study?...

Thanks Just1. Yes, I need some criteria before consider cutting stapedius muscle, is only information. I wish you a good recuperation with your...

Hi, I have this flutering also hyperacusis. In a few days I will write my clinical presentation. Two questions: Middle Ear Myoclonus is the...

No problem, I can understand you... but I think we have to discovered things and be optimist

I don't know Shambles, you know? In Pubmed you can find a lot of scientific studies about donkey milk properties and some indications for...

Looks better

Encouragement and kisses Lynn

Hi Magpie, in "hyperacusis reserach" I have read: the results suggest a role for cochlear primary neuronal degeneration. Gradual...

I wish you a good recuperation Lynn. Yes, the sea is very soothing... and when wind became hard you can protect. Oceans seems very quiet... not...

Try practise sport, endorfins are good.