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@aot - I tried Amitriptyline and it made my VSS (static, palinopsia flashes etc) worse. Not sure on how it differs from Nortriptyline. I don't want to discourage you from taking something that may help you though. I think there is a paper on a man who had a remission of visual snow from...

Hi @Aaron91. So sorry you are still in pain and having a rough time. Hyperacusis is AWFUL! How am I going - to be honest I feel like I have been inhabiting some alternate plane of half existence for the past few months. I was having a lot of problems with derealisation (where the world seems...

So I am now on Mirtizipine (Avanza, Remeron) and finally getting some sleep. Hooray! But ever since starting it (I was amiltripyline for 1 week wasn't helping me sleep very much but I did feel calmer at night) my tinnitus has been the loudest it has ever been. By evening now it is like an alarm...

Hi Jason - I think you may be onto something. My thyriod is fine - but the psychiatrist wants me to see an endocrinologist as I have galactorrhea - which could be from stress but could also be a sign of some hormone dysregulation. I have started on Amiltriptyline. 10mg first day then 20mg. Feel...

@Orions Pain Yes I do do a lot of exercise the other week I went skiing for 5 days (still hardly any sleep - but since the nthe onset of the VS) and I do a bush walk everyday but I suppose I could do more cardio. Hard when you feel like you have been run over. I have tried Melatonin 300microg...

I asked the psychiatrist about Amitripyline but he said he doesn't think it would work...!!?? I would like to try it at least as it is a drug that I have taken in the past and I think it has even been used to treat VS. Unfortunately its going to take me 2 weeks to see a GP to try and get a...

I think Benadryl is similar to phenergan? Both antihistamines?

Gosh I wish I was writing some success story here but things are going from bad to much worse for me and I am at my wits' end. Seem to have developed visual snow syndrome (the afterimages and flickering vision and closed eyed visuals are the most disturbing. Saw a neuro-ophthalmologist - nothing...

This is really helpful to know!

Marko how did you go on the Mirtz? I was told by my Dr that I cannot take it intermittently.

Hi @Paul674 - did you end up going on Mirtazapine?

Hi Johan, How are you going? Sorry I don’t think I can be of much help - I just wanted to tell you I am going through the same thing. I go to bed, listen to a meditation or hypnosis feel ok and then every time I feel myself drifting off the sleep I feel dizzy and start having heart palpitations...

Anyone able to help me interpret the decibel reading?

Some drove in my partner’s Diesel Land Cruiser today for about an hour. I had custom silicone muffs under Peltor X5As. My tinnitus was screaming with the ear plugs and muffs and getting louder and louder. I was getting more and more anxious. The car is very vibratory and we had to drive 40 mins...

How is this going for you?

Really confused. I read a little bit about how salicylates could exacerbate/cause tinnitus. i.e https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3341117/ My diet is VERY high in salicylates. I am vegan and try to eat lots of antioxidants i.e.-lots of spinach, kale, broccoli, blueberries, capsicum...

Hi - so since my tinnitus onset I have had lots of panic attacks and basically constant diarrhoea for a month. When I saw my GP she asked if I had had a lot of salt food recently (I hadn’t) but scared it might exacerbate the tinnitus I completely cut salt from my diet. I don’t eat any processed...

Thank you so much Diesel. I’m really glad you think so. The earmuffs really didn’t provide much protection - they are rated to have only 10db reduction at low frequency unfortunately. But your opinion does make me feel calmer.

Hi Jiffyman- thanks so much! I hope so too. Your success gives me hope. Must stay positive. How loud was your T when it was bad?

woah that’s a lot of prednisone.

Thanks you so much for your tips. Will try the alternating days of sound enrichment like you suggest.

Yes, good idea! The reason I didn’t have earplugs in as they are starting to hurt my ears a bit, as in they are getting irritated physically by the plugs. I have some custom fitted silicone ones hopefully arriving on Tuesday so I’m hoping they will be better. I also really hate listening to the...

Hi Rookie! Thanks, now if only I could get some sleep... hope you are doing OK

Hi Shasta - thanks so much for reading and replying. Ok will do. I suppose I was on the fence about taking the prednisone but the fear of letting the window pass and having damage was really scaring me too. I was scared the aural fullness was a sign of damage? But you think it’s just tension. I...

Hi. I’m new here and so is my tinnitus (just over one month) I want to say thank you so much for all the advice and support floating around on here, glad I found you all. I am a complete mess- can’t sleep, can hardly eat (have lost a tonne of weight). BUT I’ve just had a little mini triumph...

THANK YOU SO MUCH and for replying so quickly! This makes me feel a bit better. My tinnitus is very new (just over one month) and I have hyperacusis so I found the bike noise even with ear muffs (they are only rated to reduce low frequency noise by 10decibels) very painful. I was told to...

@Tweedleman @Juan - thank you both so much for reading and answering my questions - so unbelievably helpful. So I took 1 x 25mg tablet last night and I took 2 x 25mg (50m) this morning. I really hope it won’t stop me from sleeping as I have now had another two nights with zero sleep. Which is...

Hi Greg- anything to note from my audiogram? Thanks for you help.

Can I take Curcumin with Prednisone? Yes I noticed my earmuffs are only rated to reduce low frequency sounds by 10 decibels. Hi Juan thanks for replying I took 25 mg last night. My tinnitus went up but this morning it is quiet low. But sometimes it is like that in the morning. Could not sleep...

@Tweedleman Thanks so much for replying so quickly- this literally happened a little over an hour ago - I have some left over prednisone (doctor gave me some to take 3 weeks ago, didn’t help.) I think my ears are super sensitive to damage... all the stress doesn’t help. So upset as I...

Hi I went to the shops - with ear muffs, but a motorbike passed by and it was extremely loud - like not a normal motorbike sound but like backfiring. I could feel it in my jaw as the sound hit me. And now I have more fullness and slight pain in my right ear (one closest to the road). My earmuffs...

Does anyone from Australia have a recommendation for a tinnitus specialist or ENT in NSW? Really desperate for someone to look at my ears properly and not dismiss my symptoms. Many thanks.

@GregCA My audiogram - they only tested very quiet sounds because of the hyperacusis.

@screechesilence have you gotten any better since March? Hope you are coping better now... best wishes.

Hi Greg, thank you They haven't sent it to me, but I have just requested it to be emailed so will post when I receive it.

Thanks Sophie, I really appreciate it. I even think just writing this out and feeling acknowledged has helped. Finding it hard to loved ones because they don't really understand and also are so tressed at seeing me so sick and not being able to doing anything to help.

Hi Juan, Thanks for letting me know. I have no nasal congestion. So I suppose that's why I am more skeptical about using it. Unless it will be like directing a steroid at the inner ear?

Hello, I’ve been lurking on the forum for a month now and appreciate all your advice and comments. I really need some help/encouragement. My life is spiralling out of control very quickly because of the distress. In all other respects apart from this illness my life is very beautiful and I am...