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Is there only one person who has taken part in this trial please? I am interested in others somatic tinnitus. This is a description of my...
Is there anyone from this group who is one of the twenty who trialled this please? I have horrendous somatosensory tinnitus. I can do many many...
Has anyone tried trigger point therapy for somatosensory pulsatile tinnitus and been successful? Apparently it is caused by dysfunction of the...
I have been following your posts from the beginning. Pleased you are in a better place. i am interested in the fact that a steroid made your...
It has nothing to do with ear infection whatsoever. Not anything to do with the ear apparatus. I have no hearing loss either. It is somatic...
I have had every scan possible for pt and have been assured by four experts that there is no vascular cause. I am not sure how i got pt. I can...
I have now had disabling tinnitus which sychronises with my hearbeat for 2 years. I have had every imaging possible and the many best eyes look...
Thank you for your kindness. I am pleased you agree that it is not blood flow related. Yes I have done extensive research and wanted to satisfy...
Thank you very musch Billie43. I have had everything done as well except angiogram and if I had that I dont think anything would be found. Why...
Yes i bought oasis sound machine from bta the first week it started. My pt is way above that. It is good for t. I was given a sleep pillow...
My pt has nothing to do with my carotid artery. I have ad two mris and 2 ct with contrast. I have had the best consultants look at my scans. I...
Until 5 june 2014 i enjoyed my life and had taken care of myself. On that day i discovered i could hear a noise in my left ear and neck that...
Thank you for this info. I have this debilitating condition since June 2014. Are you a member of the facebook group called pulsatile tinnitus?
Thank you. I have had mine for 14 months without any let up. I have now had mri,mra,mrv,ct,cta,ctv and lp and nothing found. But this pt gets...
Has anyone here tried the suggested treatment in the paper and it is successful?
Kaelon and Pilot have you ever thought that a blood vessel/artery could be compressing on a neck bone and conducting the noise via the bone to the...
I would be interested to know whether anyone has explored a blood vessel compressing on their bone in the neck and the bone conducting the noise...
We need a cure
Yes he sent me this link as well. What are your thoughts?
Yes I match to the reported circumstances. It sounds like a high pitched cymbal/sleigh bells/balloon synchronised to my pulse. I can lower the...
I would be interested in the response. I match this as well. You are welcome. I have been researching for 11 months. My noise has not changed...
There is a good report on tia.sagepub.com Somatosensory pulsatile tinnitus syndrome. I have never had any pain in my neck or jaw before and...
Take a look at Somatosensory pulsatile tinnitus Syndrome by Robert Levine.
Has anyone ever been diagnosed with this syndrome and been treated sucessfully. Robert Levine has written research papers on this syndrome. Also...
How did it go with the Skype session? Have found them helpful?
yes I agree that the medical profession dont particularly care. I have become my own researcher. I have now been referred to another hospital...
Yes it changes with every movement i make. I originally thought it was my body position but it is when mu neck moves and it is in the front in...
I had a free t4 back in Sept which was normal but i have never had a t3 test. I had the ct scan with contrast yesterday eve which was a little...
Have you gone yet. Do you have support at home.
Really sorry to hear this. Have you been to ent yet. have you tried lying down and taking deep breaths.
Mine changes all day with jaw, neck movements. It gets incredibly loud around 5 to 8 in the evening and reacts incredibly loudly to noise....
Ihad an appt with a tinnitus specialist who has informed me that my tinnitus will go in months. HE wanted to know whether I have had a t3 blood...
FOr information. On Tuesday I had a much long awaited appt with a tinnitus specialist. I have already had appts with ent at my local hospital...
This condition is life changing and it it needs to be brought to the public s attention.
Mine is the opposite, how bizaar.
I also have somatic t and am interested as to why it started for everyone with somatic. Please post if you wish to post on the forum. It is...
I am interested in anyone who has somatic tinnitus. I need t understand more about this. My tinnitus changes by body movements, neck movements...
I am also from gb and struggling too. It has been a life changing situation.
Just thought I would share this. I talking to the checout lady in my local Asda store who said that her sister had tinnitus for a year and her...
YOu are the first person I have come accross with this condition. What ca you do. Just discovered the info about susan shore. This is...
MIne changes from 10 to 1 every dayand with body, neck and jaw movements.
THIS HAPPENS TO ME EVERY DAY. MY TINNITUS IS IN MY LEFT EAR BUT IF I PRESS ON MY BOTTOM LOWER RIGHT TEETH OR TILT MY HEAD OR WRIGGLE MY JAW IT...
Thanks for this where did you obtain this information from. Do you have the same condition. When I move my head or jaw the volume changes.
Yes went to dentist who assured me I dont have tmj. Thanks for that.
By moving my jaw, clenching my teeth and neck movements I can change my tinnitus. When I am walking and bending it changes throughout the day....
IS there anyone who has somantic tinnitus. IF so can you throw some light on it. WITH JAW AND NECK MOVEMENTS I CAN CHANGE THE LOUDNESS OF MY...
I am struggling with pulsatile somatic tinnitus. Is there anyone who has this condition and found a cure for it?
ACCUPUNCTURE, has anyone had any success with this treatment please?
THANKS FOR THAT. I HAVE BEEN INFORMED THAT I MAY NOT get aN APPT UNTIL JAN. EVERYTHING WORKS DIFFERENTLY HERE IN UK. I need the appt now. It...
RThanks Karenstrangely enough I had a check up at the dentist yesterday and asked whether I had this and she assured me that I didnt so I can now...
THANKS KAren for th info on mra etc. I live in gb and wonder whether we call them something else here. I get very frightend about pt. I just...
THANKS FOR YOUR REPLIES. IT DEFINITELY GOES WITH MY PULSE. IT SEEMS TO CHANGE WITH MY HEAD POSITIONS. IT OCCASSIONALLY GOES TO A TICK BUT ONLY...
THANKS thegeen. I was given an mri and that came back as normal. BEFORE MY FIRST APPT I had a hearing test which came out as normal apart from...
THANKS FOR THAT Billy was starting to beleive that I was the only one who has these symptoms the bottom has fallen out of my world. I have been...
I developed pt three months ago and it has changed my life. I am not sure how it started but leading up to it I took calcium tablets for a...
So pleased I have discovered this forum and discovered there are other suffers like myself. I first discovered I had pt on the 3 June 2014. I...
