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Hi all, I just wanted to update now with my story in case it helps with any of the new sufferers out there and in case I don't go on this board...
hi dr. nagler, just a note to say that i'm very glad that you are feeling better after your T spike. thank you for giving us so much support here...
Hi Rob, I just wanted to say that I started researching S techniques when I first got T. Now 6 months on it has gone from that to my not really...
Hi Dr Nagler, I spent a long time researching AM-101 and even signed up to the trial. However, after keeping the diary for a couple of weeks I am...
Hi all, Just wanted to give you guys an update on my experience on the Autifony trial. I went through screening today and failed (passed?) the...
@Hudson and @Mark662 Wombat's doing well, thanks for asking :) A referral has been sent for me to the study coordinator, and they are going to...
Hey everyone, I hope you're all having a quiet day. I've noticed in the past week or so my tinnitus has got quieter. I couldn't say why - nothing...
The London trial have had 3 people before me, some of whom have gone in for initial screen appointments. So, presumably people will be starting soon
That's interesting @PhilB - the people I spoke to said the placebo group wouldn't get anything. Maybe you spoke to someone nicer :)
i am an australian but i'm currently on a scholarship in london
haha :) you'd be crazy to
@Shaun and @PhilB great news. hope you both get the active treatment. in case it is of interest to anyone i've attached the participant info...
thanks - it's not actually me - i just love the wombat - biggest one ever spotted!
@tomm and @ChrisC I'm so glad to hear I'm not the only one plugging up down there religiously. This city really is louder than Australia - on my...
Hi everyone - trying to get in on this trial as well. I've been in contact with UCL by email - they said they'd phone me in early January for...
Dear Dr. Nagler, Thanks in advance for your help. I went to get custom ear plugs fitted today and I fainted when the putty was put in both my...
you can't be on benzos
@NewGuy thanks for keeping us informed on how you're going so you were allowed to drive home from the test site yourself?
i think it is actually stage 3 - results from stage 2 have already been published
@OddV aah ok - I thought the reason they asked about infection was as an exclusion criterion. I see that it wasn't.
@amandine i spoke today with the AM101 trial doctor: 1. think it is designed for anyone with T, of any loudness/intrusiveness level 2. forgot to...
@NewGuy thanks for all your posts here they're so encouraging. I'm not freaking out about the needle anymore. Thanks @attheedgeofscience for your...
Hello everyone, I read the clinical trial paper from phase 2 of the study. At the conclusion of the study (I think 100 days), they noted that in a...
Hey all, just another question about Autifony: Does anyone have access to results of the first trial where they show the drug doesn't have side...
I'd also note that I've found Dr. Nagler's posts on this forum so encouraging too - for similar reasons.
I went to see an ENT trained in TRT. After I saw him I could see why the counselling aspect is important. It is not just about demystifying the...
@amandine I was struggling to cope with my T until just the past few days. The first step is to get out of panic mode long enough that you can...
Hi Gabrielle, I'm sorry you are struggling so much with your T. I've had it for a couple of months and over the past week I stopped caring - but...
Dear Dr. Nagler, I had a question about safe exposure to noise. Trying to work out possible causes of my tinnitus, it seems to me that a possible...
Thanks @cullenbohannon
Thanks @cullenbohannon I just deleted my post - worried about sounding negative about AM101 when so many on here are hopeful that it will help...
Hi Hudson and everyone, Just interested in your thoughts. I saw my ENT for the first time yesterday, went through all the standard tests and got...
Elena Rose Parker
Hi Ilija, I've been worrying about all this stuff too, I've had T and hyperacusis since about August too. It seems to me that many people on here...
http://www.samharris.org/blog/item/adventures-in-the-land-of-illness
I took prednisone and have just finished my course. It has not improved my tinnitus. I don't think it has made it worse. I think if you are ok...
Hey all, I know a lot of us here are really distressed by our tinnitus and others not so, I guess I'm trying to work out if I'm blowing all this...
Amandine, maybe if you have to travel or go to London or Bangkok to get away from your partner it will be stressful but it sounds like it is going...
yeh i know what you mean. i couldn't believe the pizza place i was in was 90db. i guess they want you in and out fast! how did you get etymotics...
Thanks all. yonkapin - i used to live in melbourne - so many great restaurants!! which musician plugs have you got? I see they are available in...
Taken from http://www.racgp.org.au/afp/2013/september/sudden-onset-hearing-loss/ The mainstay of treatment is early initiation of oral steroids...
Barrowww and anyone else interested: I'm taking steroid orally one month in. I feel like it has made the T quieter for me, but this effect maybe...
Does anyone have thoughts on whether sounds around 85-95 db (like a loud bar, blaring speakers at the gym) is bad if you wear good plugs and...
Hi everyone, Thanks so much for the support I really appreciate it!!!! I've read a lot of people here saying don't overprotect too but I've gone...
Hi everyone, My hearing problems started pretty recently and I went to a restaurant and bar for the first time since the tinnitus to see if I...
Hello all, I've got a pretty recent case of T and have been reading up on here. Some people say taking Prednison in the early stages can help so...
The best to you too! I'm optimistic they'll be a cure for us soon, if not in the trial then in next few years. I guess we need to take everything...
Dear Dr Nagler, Firstly thanks so much for your involvment on this forum. Your 'letter to a tinnitus sufferer' has given me hope that if my...
Michael I'm so sorry to hear that. That makes me feel like mine is nothing to worry about (at least for now). nonetheless i'm worrying. that's why...
so for the am trial we'd both be eligible because we've got T caused by what they call 'acoustic trauma'
Hey all, thanks so much for sharing your experiences and answering my questions, it really helps. This is such a supportive community. I have no...
Worth noting people say that if it is early onset it goes away. Also you might consider getting an oral steroid from a GP as it can help in early...
Hi Marius, I'm really sorry to hear that. How did you get the music exposure? I was listening to a symphony over and over again for a few hours,...
Hi all, thanks for all this information, I just got an email offer to do the AM101 trial. I'm actually an Australian but studying in the UK so if...
Hi Lorenzo I just joined this forum. Did you try this? I want to go on a retreat next month but just got tinnitus and am at the high anxiety...
Hi everyone, I'm so grateful to have found all of you guys here on this forum -- I've had tinnitus for the past month and it has been increasing...