“Tinnitus Truths”

So you value your teeth more than getting tinnitus cured?

I'd rather have no teeth than have tinnitus.

I'm happy your tinnitus is mild.

 

Thank you for your kind words MM.

I am very well aware that we all suffer from a deep sadness at the loss of our former lives.
Like many others, I lost an entire way of life.
But even in accepting this loss, I am determined to remain as cheerful as possible, philosophical even - otherwise it has taken everything.

I was always good with kids.
I love the little blighters.
My own kids, my grand kids, just anybody’s kids.
Well ‘T’ (spit) is not taking that as well!
I need to share some fun with them.

Don’t get me wrong though MM, I don’t always make it - I have some very low times - but this has been my plan all along.

I fear that if we allow ourselves to live in abject misery we will destroy our family life.

Best wishes
Dave x
Jazzer

PS - what does the ‘muso’ bit refer to ?

 

I think my family like me better since I got tinnitus, because I don't shout them so much now.

Clouds and silver linings...

It's just a bit of self-mockery about my rather esoteric tastes in music (which encompass everything from classical, through jazz to progressive rock and increasingly trance/dubstep). From UrbanDictionary.com:

Muso

A muso is a person who is obsessed with music.

Their record collection will contain music and artists nobody else has heard of, and if they believe that an artist is becoming popular they will deny they ever listened to them and quickly dispose of any evidence.

If they come around to your house they will make a beeline for your music collection and then criticise everything in it just to make sure you know they are cool.

As a sideline they will take up the acoustic guitar and then force you to listen to their "revolutionary" take on what music could be like. It will undoubtedly be dreadful and unlistenable.

"You're such a muso, if other people have heard of it you hate it."

 

Well that's an interesting point.

Dental problems have the bane of my life since an early age. No teeth rather than tinnitus? I guess my tinnitus hasn't been bad enough for long enough to reach that stage, considering all the efforts I've gone to in an attempt to save the teeth I've got left.

I have certainly experienced tinnitus to a severe enough level to impact my life on a daily basis, and I've had to mourn the loss of my former life. But I know other people have it a lot worse than me, and I'm not knocking whatever they have to do for themselves to find solutions.

 

YouTube has just suggested to me a video entitled:

"Are you a music snob? Find out here!"

They're watching us...

 

Here's a Tinnitus truth - some doctors know little about the physical associations to tinnitus and pulsatile tinnitus. I have hearing loss and physical tinnitus where my jaw and neck is messed up. My doctors and therapists know Jack about that. I had to figure this out myself.

About a year ago I ended up with pulsatile tinnitus as well. When I told all 12 of my doctors as to what I though was cause, they laughed. In May, a CT noted an aortic abdominal aneurysm at 3 cm. A few weeks ago, I started to get severe temple headaches and eye pain. Two weeks ago, I started to see floaters / spiders and started to lose vision in my left eye.

Earlier today, I blacked out from very severe abdominal pain. A ruptured abdominal aortic aneurysm would mean one hour to live without emergency surgery. Not thinking that I had a rupture, I still went to the ER and CT (no time for other imaging) showed my aortic aneurysm still being 3 cm with no rupture. After that, they did a head MRA and found nothing.

I had told my doctors that my past blood work has positive false readings. The special blood work that I requested done today proved that. The blood work also showed a very high vitamin A level with storage of other vitamins or lack of in my liver due to artery stress and more from my abdominal aortic to eye distress. So a very high vitamin A level from eating watermelon and fish never flushed out from my liver. I had though that all alone, that excess vitamin A caused my aneurysm, eye sight loss, floaters, abdominal pain, headaches and the aneurysm caused pulsatile tinnitus.

My doctors are not laughing now. I know that I need to completely slow B12 and vitamin A and get more sunlight. Hopefully a recent new drug discovery will help with my floaters and eye sight blindness. I do have serious heart disease and some other issues where my life is on a fast clock and sun down is almost upon me, but I'm 66. I got to say that it's hard typing with one eye. I was able to correct my TMJ and ear pain, but my teeth and mouth became a war zone with severe pain from dental whiplash.

A big problem in healthcare is sometimes waiting weeks or a month or two to be seen. With tinnitus a physical problem often needs fast attention. Go the ER if you need bloodwork, imaging tests or medications quickly.

Been reading a few posts during my posting absence and it's nice to see all the love and compassion to one and another. Please never blame yourself for your T ----------- T can be tough and all that can go with it, but if one thing wasn't cause, maybe something else could or would have been cause.

 

My god Greg - you are a walking encyclopaedia on health matters, because you’ve had to be to survive.
If left to the ‘professionals’ (so called) I don’t think you would still be here.

Yes - there is much love and care between sufferers on this site, which is lovely to see and even better to experience when it comes our way.
There is also plenty of bickering, argument, and offence taken - largely I think, because Tinnitus truly bothers our demeanour and composure.
But generally speaking, members are pretty decent and caring people at heart.

To a man, I am positive that everyone here who has been touched by you, helped by you, advised by you, wishes that they could do more to help and support you.
As it is, we send our love, and will always appreciate the person that you are.

Dave xx

 

You're a rock here, a pillar.
We are all grateful to you and your selfless actions and ways.
I wish I could help ease your pain.
Sending you love and support.
Daniel

 

I wish, Dave.

 

Sometimes life comes close to crushing us,
but we mustn’t leave it there,
- I never want to settle for defeat.
xx

 

“Neil Sedaka almost said it right . . .”

 

This is precisely what meditation
is all about folks.