“Tinnitus Truths”

F

 

Most people lie,
Are you ok ? yes
Because they don't want anyone to know just how much they are hurting inside...
We should speak out and be heard as tinnitus and Hyperacusis are hidden illnesses others don't understand .


love glynis

 

I quite agree glynis.
I always try to give some hint of my truth.
When people ask me how I am, I realise they would like a glib ‘great thanks’ answer, but I never do that.
I often say - ‘I’m okay thanks - you know what I cope with.’
I do not lie in order to disguise Tinnitus.

 

Good morning @glynis

Here’s a virtual {{{{{ HUG }}}}}

love

Dave x

 

@Jazzer ,
Aww thank you Dave,
love your hugs..
Are you back home now..?

love glynis

 

No - we come home next Monday.

Sylvie and Zaina, her stitch-witch friend are designing and making embroidery this week, in a bungalow that we hired.

I’ll just share this little story with you from a couple of years ago.


“Sylvie has spent the past week designing and stitching out her new critter family
- Bruce the Moose.
It was requested by a nurse from the States who looks after a dear old chap, Bruce, who is quite unwell, who said he would like to have a moose cuddly, if that was possible.
Sylv forwarded the pattern, the nurse, who is a 'stitch witch' made it up, and took it to him today.

He was so pleased, he burst into tears.l
At least we managed to get a moose to him to cuddle before he died a couple of weeks later.”

 

@Jazzer ,
How lovely that he got to hold his Moose before he sadly slipped away.
Sylvie is amazing and so talented.

love glynis

 

@Jazzer,
I had a big lump in my throat with the above picture and phrase .

It must be so hard Dave when doing what you love most is taken away from you and your job due to Tinnitus.

Tinnitus can be tough and people cope but for some it's 24/7 mental torfuture and never a break from it and I for one have to push constantly everyday to stop tinnitus destroying my reason to live.

My breathing is really bad at the moment and I struggle just to do what everyone does to live (Breath normal)
I fight to breath to live and have severe Bilateral Tinnitus that sometimes makes you feel WHY do I want to live.

We have a right to live and be happy and just want a cure but theses conditions carn't be seen or heard like other hidden health problems.

Iove glynis xxx

 

Dear Glynis - I don’t have your other problems, and what a struggle they must be, but of course I know so well your battle with ‘T,’ that many of us on here have.

It is not possible to describe to a non-sufferer the experiences that we live with. The endless noise.

We suffer, we falter, and we simply have to pick ourselves up, time and time again, to fit in with the demands of our lovely families, so that we can continue to make a real contribution to their lives.

It is tougher than they realise, tougher than anybody realises.
Yet we have to do it - day after day.

Also, for me, I have to watch the ongoing career of the perpetrator of my damage, who continues playing at all of the venues I used to play at, still enjoying and earning well from his music, oblivious to my wretched noise.

But all of that loss is overshadowed by the loss of my precious peace and quiet.
Silence - what a loss!

However Glynis, we are still here, enjoying each other’s companionship, sharing our thoughts, and sharing our love and concern for each other.
Thank goodness for ‘Tinnitus Talk”
that’s what I say.

love

Dave x
Jazzer.

(PS - keep those chins up!
I’m being cheeky there,
I’ve got two or theee chins of my own!)