1st World Tinnitus Congress and the XII International Tinnitus Seminar (May 2017, Warsaw, Poland)

Discussion in 'Research News' started by Markku, Apr 19, 2016.

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    1. Markku
      Inspired

      Markku Director Staff Benefactor Hall of Fame Team Trobalt Team Tech Team Awareness Team Research

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      On the heels of the Tinnitus Research Initiative 2016 conference in Nottingham, UK (read more about that here), the next international tinnitus conference has already been announced.

      In 2017 there won't be a TRI conference; 1st World Tinnitus Congress / 12th International Tinnitus Seminar (ITS) takes place instead.

      Time:
      25-27 May 2017

      Location:
      Warsaw, Poland

      Website:
      http://its2017.com/

      Key Topics:
      http://its2017.com/program/

      More info will be collected in this thread as it comes available, and hopefully eventually also our report on the conference (as we're planning to attend).

      Feel free to discuss.
       
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    2. Joe Bananas
      Dreaming

      Joe Bananas Member

      Location:
      San Pablo
      Tinnitus Since:
      10/2015
      Cause of Tinnitus:
      Acoustic Trauma
      Well, I guess having a look to that is enough to know where things will be in a year (and a month). Still no cure/help for the next 13 months.
       
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    3. Ludwig
      Aggressive

      Ludwig Member

      Tinnitus Since:
      17 february 2016
      Cause of Tinnitus:
      Acoustic trauma
      Uh, thank you Markku! But so there isn't a conference like TRI in 2017? Was the first time that a lot of great researchers stay "unite" to put together so much data about our pain. I hope that in 2017 there is something similar...
       
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    4. Steve H
      Creative

      Steve H Director Staff Benefactor Team Trobalt Team Tech Team Awareness Team Research

      Location:
      York, UK
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Flu, Noise-induced, Jaw trauma
      @Ludwig That's correct. There is no TRI conference in 2017 because of the International Tinnitus Seminar. It should be a very similar thing though, a meeting of the prominent researchers in the field.

      2018 TRI conference will be in Germany.
       
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    5. Ludwig
      Aggressive

      Ludwig Member

      Tinnitus Since:
      17 february 2016
      Cause of Tinnitus:
      Acoustic trauma
      Ah TRI is every two years so. Your Tinnitus Hub team intends to participate in Poland? Or you will wait for German TRI?
       
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    6. Poyraz

      Poyraz Member

      Tinnitus Since:
      February 2016
      Cause of Tinnitus:
      Benzos, Stress, Anxiety, Loud Music, Jaw Problems. Who knows
      Thank you guys for the informations. These are encouraging yet it is also very depressing to know that they just intended to do something worldwide this late. This seminar should have done 10 years ago.

      Let's hope we won't need to see 10th of it.
       
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    7. Steve H
      Creative

      Steve H Director Staff Benefactor Team Trobalt Team Tech Team Awareness Team Research

      Location:
      York, UK
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Flu, Noise-induced, Jaw trauma
      TRI is usually annual but I think they decided that this conference was too similar.

      I want to go to the International Tinnitus Seminar, will plan for it later in the year. I want to be well prepared for it, take along some good quality research that has been analysed and really shows what you can do when you bring together the skills of a group of patients.
       
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    8. Poyraz

      Poyraz Member

      Tinnitus Since:
      February 2016
      Cause of Tinnitus:
      Benzos, Stress, Anxiety, Loud Music, Jaw Problems. Who knows
      @Steve H

      Is there any way to be a help with the seminar as a sufferer? I think I can not attend to it but I do want to do something but I do not know what and how to.
       
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    9. Steve H
      Creative

      Steve H Director Staff Benefactor Team Trobalt Team Tech Team Awareness Team Research

      Location:
      York, UK
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Flu, Noise-induced, Jaw trauma
      I think there is.

      We gather some important data that can make a difference to research and we make everyone there aware of it.

      For TRI this year we had our survey, with over 5,000 people. We are analysing it soon with a Professor who also has tinnitus and we will design a follow up based on the results - taking on board ideas from the whole community here. It could lead to new insights that could influence research. To me that's a huge way for us patients to make an impact, collectively sourcing important data.
       
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    10. Ludwig
      Aggressive

      Ludwig Member

      Tinnitus Since:
      17 february 2016
      Cause of Tinnitus:
      Acoustic trauma
      Great.
      My hope is that this conference moves something from the therapeutic point of view. My fear is that they will talking about cure for "acute tinnitus" and give up the problem in the rest of the people... with this brutal philosopy: one day the last chronic Tinnitus sufferers die so If we can stop tinnitus in acute phase we have reach the right goal for money and for future generations.
      it's bad to say, but I fear that this could be happen.
      Once someone solved the problem in acute phase... anyone think more to the chronic patients.

      What do you think about my fear?
       
    11. Poyraz

      Poyraz Member

      Tinnitus Since:
      February 2016
      Cause of Tinnitus:
      Benzos, Stress, Anxiety, Loud Music, Jaw Problems. Who knows
      I always thought that the real "customers" of tinnitus drugs would be the chronic sufferers. They are the ones fed up with the problem and tired of dealing with such a horrendous condition. In acute phase, people still got hope it may go by its own. You know the success stories we mostly hear starting like "I have a frienda whose T is gone"...But irnonically the writers of them are still here as an active member.

      The companies have no idea how much money they are missing. Or they were not aware of this fact till now.
       
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    12. Alue

      Alue Member

      Tinnitus Since:
      01/2016
      Cause of Tinnitus:
      Acoustic Trauma
      With regards to treating acute vs chronic the reason a lot of research is being done for the acute phase is that a treatment is much more likely to succeed. Chronic tinnitus is a complex problem and very difficult to treat. A successful drug for the treatment of acute tinnitus would be a positive thing for all tinnitus sufferers because it could provide funding for more research into more complex cases. It would also open up the market for tinnitus treatments.
       
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    13. Steve H
      Creative

      Steve H Director Staff Benefactor Team Trobalt Team Tech Team Awareness Team Research

      Location:
      York, UK
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Flu, Noise-induced, Jaw trauma
      We are the hardest group to treat but there is research looking at us and also why it becomes chronic and what mechanisms are at play. It is likely that any treatment will only be effective for a proportion of people, acute phase will be best done by treating the underlying cause as well as some sort of pharma solution.

      Agree. We're kind of a forgotten condition. They are waking up to it now though and realising just how many people there are as potential patients.
       
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    14. Ludwig
      Aggressive

      Ludwig Member

      Tinnitus Since:
      17 february 2016
      Cause of Tinnitus:
      Acoustic trauma
      Thank you for your answer Steve.
      So you think that we will not be abandoned even if they find a solution for the acute phase? Or probably someone that don't respond to an acute treatment there will always be so my hope is that oneday (5/10 years max i hope!) there will be something similar to the pill for high blood pressure.

      RL-81 it's a very good hope but for know it's several years away from trial and distribution (as I showed you in tinnitus hub, the screen of Peter Wipf's answer).
      I will give a try with perampanel (work on glutammate receptors) until i am "new" (tinnitus seems to be chronic from 3 to 6 months).
       
    15. Steve H
      Creative

      Steve H Director Staff Benefactor Team Trobalt Team Tech Team Awareness Team Research

      Location:
      York, UK
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Flu, Noise-induced, Jaw trauma
      Yes I do believe that. There will likely not be a single cure or effective treatment, unless we find something that will completely work on a section of the brain for everyone (unlikely in my mind). Even then if there are underlying problems, once you stop taking the medication the tinnitus may come back. So chronic tinnitus will stay a problem that needs treatment.

      So I feel that we are never going to be able to say that medication X is the cure. It will be maybe medication X along with treatment Y and Treatment Z, which could be different combinations for many people.
       
      • Agree Agree x 1
    16. Codaz

      Codaz Member

      If you look at the faculty (I think those will be the people that attend), I definately miss some people like Tzounopoulos etc.
       
    17. Markku
      Inspired

      Markku Director Staff Benefactor Hall of Fame Team Trobalt Team Tech Team Awareness Team Research

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      No, attendants will come from worldwide. Hence "World" and "International" :) Remains to be seen who all will attend.
       
    18. Mentos

      Mentos Member Benefactor

      Tinnitus Since:
      03/2015
      I plan to participate as I'm from Poland living 300 km far from Warsaw. Please note in case anyone wants to participate there's an early registration fee of 460 EUR till 01.11.2016. Later it becomes more expensive.
       
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