A Hierarchical Chart of Most Common Tinnitus Sounds?

Discussion in 'Support' started by Rb86, Sep 8, 2019.

    1. Rb86

      Rb86 Member

      Tinnitus Since:
      5/31/19
      Cause of Tinnitus:
      Noise
      I don't know if it's possible, but do you guys think we could make a hierarchy of tinnitus sound chart?

      I had mentioned in the past my crickets sound changing to now more tv static. Someone said that was a positive sign which made me feel good.

      If we had a chart of descriptions of the most common tinnitus sounds, especially from those who improved and heard silence, it would be reassuring to get to certain stages for people. Of course, this is hard because tinnitus varies and is so subjective. But if we could make generalized labels it might be interesting.

      For example:

      Solid/multi tone
      Shhhh
      Soda bubbles
      Crickets
      Tv static
      Quiet room stage
      Silence

      Something like that. And of course, we're all going to bounce around on this list from day to day, but if there was an overall trend and way to label things, it could maybe bring comfort that there's some kind of progression. Just a thought.
       
    2. boliston
      No Mood

      boliston Member

      Location:
      Taunton, UK
      Tinnitus Since:
      30th April 2019
      Cause of Tinnitus:
      Sinus problem & long haul flight
      i sometimes get a sound a bit like a gas hob (on top of cooker) which is not too bad, but any sort of 'chirping' like crickets to me is not so good (i.e. pretty annoying).
       
    3. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      I think the above pretty much nails it. One other sound that comes to mind is the sound you hear when you let air out of a tire after you accidentally pump too much air into it - an intense hiss.
       
    4. all to gain

      all to gain Member

      Tinnitus Since:
      June 2019
      Cause of Tinnitus:
      ototoxic reaction
      Why did I have to get the worst one? It does sometimes sound like crickets and morse code, too.
       
    5. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      This is from one of our surveys, where we asked people to select what their tinnitus sounds like, answered by over 6,000 people. Does that help?

      Screenshot 2019-09-08 at 22.10.54.png
       
      • Informative Informative x 1
    6. Harley

      Harley Member

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      unknown
      Where would a high pitch industrial sand-blaster type of sound fit in?
      Static hiss maybe?
       
    7. AUTHOR
      AUTHOR
      Rb86

      Rb86 Member

      Tinnitus Since:
      5/31/19
      Cause of Tinnitus:
      Noise
      Thanks Hazel. It's certainly interesting. I do want to find a way to note/label changes over the progression of time.

      This is hard to do because of the different cases, and not all find silence.

      In the majority of cases I've read for those who achieve true silence, it's unclear when it happens. They just come to this realization that they don't hear it anymore after some time. There's never a magic flick of the "off" switch.

      If we could map this progression from those who found relief, we could give honest hope to people who, like me some days, are cast out in a sea of hopelessness.

      Any little progress feels like "ok, I can do this"
       
    8. AUTHOR
      AUTHOR
      Rb86

      Rb86 Member

      Tinnitus Since:
      5/31/19
      Cause of Tinnitus:
      Noise
      I think that sound would have a little more body to it, maybe an additional shhh behind it. The tv static, at least in my experience is kind of simplistic, one dimensional - although I do have other tones from time to time.

      Again, only you can know, and clearly this list is not official.
       
    9. all to gain

      all to gain Member

      Tinnitus Since:
      June 2019
      Cause of Tinnitus:
      ototoxic reaction
      Hell I fit into 4 of those groups. there's another sound I sometimes hear, but I find it hard to explain. So actually i fit into 5 groups.
       
    10. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      People could select multiple options, and many did, so you're not the only one...
       
    11. AUTHOR
      AUTHOR
      Rb86

      Rb86 Member

      Tinnitus Since:
      5/31/19
      Cause of Tinnitus:
      Noise
      Technically I fit into 3 groups, but my original point is to detail the character of each group as progression towards silence is made.
       
    12. all to gain

      all to gain Member

      Tinnitus Since:
      June 2019
      Cause of Tinnitus:
      ototoxic reaction
      Yeah, I realised that. It sucks being at the top of the ladder though.
       
    13. AUTHOR
      AUTHOR
      Rb86

      Rb86 Member

      Tinnitus Since:
      5/31/19
      Cause of Tinnitus:
      Noise
      One of mine is a pure tone, but I only hear it when I go to bed, and if I push my tragus hard enough it goes away...then comes right back. That one's been with me since a few weeks in. Like you I'm about 3 months in.

      The other is low, and the constant - over everything - TV, driving down the highway, etc, is "tv static". Right around 15000 hz.

      Of course with hearing loss and constant full/plugged feeling.
       
    14. Selah1281

      Selah1281 Member Benefactor

      Tinnitus Since:
      07/2019
      Cause of Tinnitus:
      Unknown
      At onset it was a buzz, then crickets, then a wailing tone in both ears with static also in the left. Now it’s back to tonal, not as loud. Currently, the left doesn’t ring often. Still can’t sleep though without clonazepam which quiets it considerably. God why do benzos have to be so dangerous.
       
      • Agree Agree x 1
    15. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      That would be a very worthwhile exercise indeed. The obstacle is that this requires tracking a large group of tinnitus patients over a long period of time (years), and to my knowledge no one has done this, for obvious reasons (lack of funding, difficulty in recruiting participants). Hopefully someone can start a large database of tinnitus patients soon to collect such data. I'd love for us to do it, but we'd need funding to build some kind of portal and database, because SurveyMonkey would not suffice.
       
      • Like Like x 1
    16. AUTHOR
      AUTHOR
      Rb86

      Rb86 Member

      Tinnitus Since:
      5/31/19
      Cause of Tinnitus:
      Noise
      Perhaps it could be a requirement of every forum member to characterize their tinnitus every 6 weeks, or whatever interval of time. We could also subgroup it into causation (noise induced, ototoxic, etc).
       
    17. PeteJ
      Depressed

      PeteJ Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      acoustic trauma?
      You forgot cicadas? Mine is probably even higher pitched now than the cicadas sounds but it generally sounds the same.
       
      • Like Like x 1
    18. all to gain

      all to gain Member

      Tinnitus Since:
      June 2019
      Cause of Tinnitus:
      ototoxic reaction
      I presume this is something else than tinnitus, but I sometimes hear the vacuum cleaner when the vacuum cleaner isn't actually going. This is usually when i'm sleeping.

      Also, twice i heard far off distant music, but i haven't heard that again.

      Also, sometimes I think somebody is shouting for me, but they aren't. Not sure about this last one.
       
    19. Extreme
      Paranoid

      Extreme Member

      Tinnitus Since:
      8/2019
      Cause of Tinnitus:
      Unknown
      There are times I think someone is talking but they aren't. Always unintelligible. This mainly happens in a certain room of the house. I could just be hearing my dad's TV since it's directly below. I also think sometimes certain sounds like my soundscreen can mimic this.
      Do you have very good hearing? Meaning much better than others around you?
       
    20. all to gain

      all to gain Member

      Tinnitus Since:
      June 2019
      Cause of Tinnitus:
      ototoxic reaction
      No, I think my hearing is probably pretty poor, but I've not had it checked.
       
    21. Extreme
      Paranoid

      Extreme Member

      Tinnitus Since:
      8/2019
      Cause of Tinnitus:
      Unknown
      Hmmm ok. How are you around loud noises like fireworks or thunder?
       
    22. all to gain

      all to gain Member

      Tinnitus Since:
      June 2019
      Cause of Tinnitus:
      ototoxic reaction
      No idea at the moment, haven't been around them.

      I definitely had a bit hyperacusis (spelling?), if that makes any difference.
       
    23. Extreme
      Paranoid

      Extreme Member

      Tinnitus Since:
      8/2019
      Cause of Tinnitus:
      Unknown
      Ah that's ok. Was just hoping to connect some dots.
      You're lucky. I really hate fireworks and thunder. Here in NJ we often get storms. And there's a local school that loves to do a fireworks show every year.
      My ears are very sensitive. But I believe that's just because my hearing is really good.
      It's surprisingly hard to tell if I've become more sensitive to sounds. I think it may be due to seasonal changes.
       

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