RishRamsey

Oh I wish I could send you more help than words, I'd trade places with you emotionally if I could, give you my happiness. Have you read any of my posts about the paper I typed up to brainstorm who I was, my identity, aside from the pain? That was the turning point in my depression, it took a weight off my shoulders heavier than Atlas' burden. I hope it eases soon

@Tavia R Yes, I did read it. It was amazing. Thank you! Emotionally, I am okay I guess. But at the end of the day, I just get some exhausted from this pain that even moving in my bed is hard. I have kind of accepted it, but still, it just hurts so much.

And I am glad to see you're doing well, even if emotionally :)

Hi @RishRamsey , I am sorry you go through all this. If it gives you any comfort, RL-81 might give you some relieve. The precursor Trobalt helped some people on this forum with pain hyperacusis. the new medicine will have more effect. Hang in there buddy!

Hang on in there Rish! This stuff is the devil's work, but we never know what tomorrow may bring. Let's hope for improvement.

Sometimes when we realize the pain won't back off we have to decide if we're going to. It's not an inspirational pep talk - that crap is for fantasies and sports, this is real. It's okay to be tired, it's okay to break down or throw things and lose yourself for a bit. Just know you're going to make it through this. I know because you've made it through everything so far, that's a pretty good tract record.

<3 sorry you feel this way @RishRamsey. Feel free to inbox me if you want someone to talk to/rant at.

Yeaaah man. I wonder how do people who have this for years manage. In the fb group, a lot of people have it for a lot longer. I am tired and defeated in just months.

Hang in there dudes. Don't let this fucking signal rule you

To answer your question: undiminished will to live. One very valuable piece of advice: keep exercising or you'll run into new problems.

@RishRamsey 8 months ago basically anything. Running water, opening doors, walking, and even chewing induced symptoms or setbacks (and this was while I was wearing plugs and muffs). Now, I can walk through my home with only plugs and I can eat, open doors, take a bath, walk, and whisper a bit without pain.

@Labyrinthine Same here. Literally anything triggers the symptoms.
One thing - when you wore the muffs for too long, did it create the pressure in your ears?
Like whenever i remove the muff, there is always some kind of pressure.

So I have to pop my ears continuously to relieve some of it. Maybe I am removing them too fast so that creates some kind of vaccuum?

@TheDanishGirl - I am really sorry to hear that :( I also read about eye flashes and retinal detachment, that shit sounds scarier than hyperacusis.

@TheDanishGirl - People are telling me to look for eye flashes, but i don't know how they look. like what to look for? Do you have any idea? Like my vision seems a bit off, like I was looking at the washing machine right now and it seemed a bit off, like something was in b/w my eyes and the very dark colored washing machine.

Can they be floaters, obstructing my vision, if I couldn't see them properly while looking at the washing machine? Or was it something else?

I feel ya. My workplace is luckily locked down the rest of april, maybe longer (it is an activity center for the elderly, so to risky opening it just yet). I also fear going back eventually as my H is quite troubling these days.

Same for me. Shelter in place in effect until May 3rd for us, dreading going back as my H doesn't seem to be easing up despite being home in a quiet environment :(

I feel the same way, Rish. I am so sorry you have so much pain.

I think we all have a multitude of symptoms and complexities making it a unique personal struggle. I am very envious of those with just T. I read all day looking for those that have the same, but haven't found anyone exactly the same.

I hope relief comes soon to you.

Agree 100%.

:( So sorry you're going through this, Rish. Have you tried applying cold compressions around your ear? That used to help me. I hope you get better from hyperacusis.

I am working from home as much as I can, but I don't know how to remove muffs at home. Everything is so loud and hurts :'(

It's been bad for more than 4 months now, with really no signs of improvement :(

Not really @Daniel Lion. My job isn't really loud, but commute is hard. I travel from my own car with 30db earplugs and earmuffs, and it still hurts.

And I have been in silence mostly. But literally no improvements whatsoever.

Like closing the door in the other room even with my muffs hurt.

I'm so sorry, you guys. :( I really hope you all get better from h.

I miss talking so much tbh, can u whisper at least?
Having good days is a great sign bro, ure not alone

@Horrorpopz I can whisper/ talk slowly during the day. By night, I am just done even though I've stayed in silence all day.

@Candy, we do. But I can't enjoy it because my house is a corner one (next to a main road with constant traffic and horns). It's a quiet neighborhood, all the other homes are pretty quiet but just the fact that mine is the corner one, with a road that connects to the main road is hell for someone with H.

I really envy all my friends who have houses in the middle or end of the neighborhood. It's so quiet, but no, not mine because of this stupid road which everyone has to take to go to main road. And it's hell from 8 AM - 11 PM. FML! Would need to soundproof my fucking home!

And the fun fact, people actually pay more to be in a corner house, because it gets 3 sides open, and a bit bigger than the middle houses. lol. And I'd pay a ton more to move into one of the middle one's, just to get away from this road.

Lol I did both and still not improving xD

Do you have the opportunity to move somewhere more quiet?

@Horrorpopz Thanks bro, but I don't blame her. She deserves to be with someone who's fit. Not someone crippled by H.

Sorry, Rish. When people leave us when we are at our worst, it is not true love. It is best to let them go.

Thanks, @OnceUponaTime . Really hard to let her go. She’s been a constant support through all this, but I know I’d have to let her go. Just preparing myself mentally in these last few days with her.

I feel this way too

I sometimes wish a car would just run me over walking to and from work and such

Have you tried any of the popular anti-inflammatory supplements?

I have @Artemis2K - Mg, Turmeric, B12 - don't really do anything for my H.

I feel ya pain. Hope it gets better for you.

I know quitting the job sucks, but sometimes we need to step back to be able to walk further later bro...
Sharing this pain with you

Throwing you a survival hug. Hope you see the sunshine again.

Thanks a lot. Really need everything as H is killing me.