Best Non-Ototoxic Drug / Supplement to Help with Sleep — A Tinnitus Sufferer's Dilemma

Discussion in 'Support' started by Kam75, Jun 6, 2021.

    1. AUTHOR
      AUTHOR
      Kam75

      Kam75 Member

      Location:
      FRANCE
      Tinnitus Since:
      2014
      Cause of Tinnitus:
      Noise induced trauma in 2014 and 2019+ototoxic drug in 2020
      I don't know if I mentioned it before, but the 2nd of the 3 psychiatrists I saw prescribed Mianserin, but I refused to take it because I read that it could cause tinnitus (some SSRI antidepressants, if I remember correctly, can cause tinnitus).

      However, the last psychiatrist I saw (in July 2021) felt that I am not depressed (although I thought I was) and did not prescribe antidepressants.

      I told him about Mirtazapine, saying that according to tinnitus sufferers, this drug works well for sleep and seems to be the safest.

      Instead he prescribed me Alimemazine (10 mg). It worked pretty well for a month, I was able to sleep better, but I don't think it's working anymore, maybe my body got used to it. I don't know...

      My sleep is chaotic again.

      To answer the others, I already take CBD oil (15%), Melatonin (2 mg per night), as well as Tone tablets (with Ginkgo biloba, Buckwheat, Hops, Blueberry, Galanga, Magnesium, Niacin). I also put essential oils on my wrists and neck and drink 2 herbal teas a day (vervain, orange leaves, chamomile, lime), but nothing helps.

      I still wake up several times during the night, and I NEVER feel refreshed, even when I manage to sleep for several hours at the weekend.

      I have an appointment with the psychiatrist next Monday, I'm going to talk to him about the fact that the Alimemazine is no longer working and ask him what he can advise me. This psychiatrist was recommended to me by the French tinnitus specialist (Dr. Alain LONDERO, who has already been mentioned on this forum). This psychiatrist is aware of tinnitus and above all he is an addictologist, so his aim is not to get me addicted to a drug.

      I will keep you informed.
       
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    2. alanisnotadj
      Batty

      alanisnotadj Member Benefactor

      Location:
      Germany
      Tinnitus Since:
      1992 (got much worse in 2018)
      Cause of Tinnitus:
      Loud noise exposure
      Keep us posted Kam!
       
      • Friendly Friendly x 1
    3. JayZee
      Stressed

      JayZee Member Benefactor

      Location:
      Canada
      Tinnitus Since:
      12/2020
      Cause of Tinnitus:
      Nortriptyline / Hydromorphone / Unknown
      I believe 5 days of Nortriptyline caused my tinnitus almost a year ago.

      Have you tried Dayvigo / Lemborexant for sleep?
       
    4. Uklawyer

      Uklawyer Member

      Tinnitus Since:
      03/2020
      Cause of Tinnitus:
      Medication - antidepressants
      @Kam75, thanks.

      The psychiatrist I saw told me that Mianserin is in the same category as Mirtazapine, but is much "lighter" as it has fewer side effects. He did not see tinnitus on the list of side effects that he consulted, but I, like you, have seen some articles on Mianserin being ototoxic. So I will send them to the psychiatrist and say that I would prefer not to take them.

      Wow - look at the receptors it works on!

      https://go.drugbank.com/drugs/DB06148
       
      • Agree Agree x 1
    5. AUTHOR
      AUTHOR
      Kam75

      Kam75 Member

      Location:
      FRANCE
      Tinnitus Since:
      2014
      Cause of Tinnitus:
      Noise induced trauma in 2014 and 2019+ototoxic drug in 2020
      Well, I'm coming with the news.

      The psychiatrist wants me to continue taking 10 mg of Alimemazine + 2 mg of extended release Melatonin even though I told him that the Alimemazine was no longer working.

      He doesn't want to change my treatment to something stronger as his aim is not to make me dependent.

      He also wants me to have CBT but I don't know if that really helps when you have very disabling tinnitus like mine...

      In short, I feel like I'm not out of the woods regarding my sleep problems because I'm already taking Melatonin and it doesn't help me that much...
       
    6. Ben Winders
      Pensive

      Ben Winders Member

      Tinnitus Since:
      2020
      Cause of Tinnitus:
      acoustic
      5-HTP was the only supplement that worked for me and I have tried them ALL. I also never ventured into non-supplement sleeping meds due to being afraid of ototoxicity.
       
    7. AUTHOR
      AUTHOR
      Kam75

      Kam75 Member

      Location:
      FRANCE
      Tinnitus Since:
      2014
      Cause of Tinnitus:
      Noise induced trauma in 2014 and 2019+ototoxic drug in 2020
      It is Griffonia simplicifolia, right?

      I've always been reluctant to take it because it seems to help you lose weight and I'm thin and I'm struggling to gain weight.

      But why not try it after all. Do you take it every day?
       
    8. MindOverMatter

      MindOverMatter Member

      Location:
      Norway
      Tinnitus Since:
      2004/05
      Cause of Tinnitus:
      Unknown (possibly stress related, and later sound induced)
      Holy Basil Extract, 500 mg 20 minutes before bed, is my go-to remedy in this regard.
       
    9. Ben Winders
      Pensive

      Ben Winders Member

      Tinnitus Since:
      2020
      Cause of Tinnitus:
      acoustic
      I no longer need it to sleep - I'm learning to live with my hum :/
       
    10. Uklawyer

      Uklawyer Member

      Tinnitus Since:
      03/2020
      Cause of Tinnitus:
      Medication - antidepressants
    11. TinaRuns

      TinaRuns Member

      Tinnitus Since:
      Sept 2020
      Cause of Tinnitus:
      Ear infection / perforation
      I have had a very long story brewing with my sleep / ear the last couple of months, with sleep getting worse and worse despite trying numerous different supplement combos (and actually with tinnitus getting better but not good).

      Long story but I went to the ER this week. I couldn't sleep for more than an hour or two last week, and couldn't nap during the day.

      I'm about to go for a run so can't explain everything right now. But bottom line the supplements were causing Serotonin syndrome, which can kill you fast, and also causes insomnia.

      Since I stopped the supplements, I've been sleeping a broken 7-8 hours every night (I still wake up after 4-5 hours and need to eat breakfast, then back to sleep), and taking a nap daily. I feel fully rested for the first time in months. The symptoms aren't completely gone but they are WAY better. Doc said it will take a few weeks for me to get back to my baseline.

      The only remaining issue is that I think tinnitus may still prevent me from sleeping solid 8 hours, which, as a long time distance runner, I know that I need.

      I think CBD oil with nothing else will solve that problem (based on experience before ear surgery about 6 months ago, when that worked but ultimately the CBD with THC made the tinnitus louder). I had been waiting on various brands of CBD oil without THC to arrive in the mail, so trying other stuff, plus cbd with THC, when this happened.

      The moral of the story is make sure you check symptoms of seratonin syndrome. And your supplements or meds could be causing you not to sleep.

      And now that I've read about Serotonin syndrome, I'm sure I have had mild Serotonin toxicity developing for months due to supplements that all raise Serotonin. Started with mild quivering feeling in my legs and more and more insomnia (this lasted for a couple of months and would occasionally get worse -- always triggered (made worse) by taking supplements). Things got way worse with more concerning symptoms (headaches, diarrhea, shivering uncontrollably, somewhat manic, tremors, involuntary muscle contractions especially in legs, highly variable BP over a short period of time at night, etc), before I went to ER.

      All of those symptoms disappeared as soon as I stopped everything. Now I just have very mild almost imperceptible quivering and still not sleeping as well as I would like. I'm hoping this will continue to improve for the next 2-3 weeks. But I'm still fully rested everyday, which had no chance of happening over the last two months before I stopped the supplements.
       
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