Call to Action: Contact the ATA Right Now — 3 Minutes to Make a Difference

Discussion in 'Awareness & Fundraising' started by Watasha, Jan 6, 2021.

?

Did you email the ATA and demand that they fund more research?

  1. Yes

  2. No

Results are only viewable after voting.
    1. Jrblovsky

      Jrblovsky Member

      Location:
      USA
      Tinnitus Since:
      Christmas 2019
      Cause of Tinnitus:
      NOISE/Menieres Who knows
      The $2.7 million might well have been lit on fire. Maybe they should hire former Detroit mayor Kwame Kilpatrick. He is out of jail now and could make sure those funds are allocated accordingly.

      Odds 10 to 1 they spend the cash 90% administrative costs and overhead. The other 10% goes to funding Acceptance and Commitment Therapy research.
       
    2. valeri

      valeri Member Benefactor Hall of Fame

      Location:
      Australia
      Tinnitus Since:
      09/2011
      They don’t care about tinnitus sufferers or their opinion regardless of geography. Yet they always care to collect money from the funds raised after someone commits suicide due to tinnitus... Oops... I meant depression since everyone with tinnitus (according to the ATA) lives happily ever after!
       
      • Agree Agree x 5
    3. AUTHOR
      AUTHOR
      Watasha
      No Mood

      Watasha Member Benefactor Advocate

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      Hi @Jrblovsky! The ATA has historically not contributed much of their contributions to research, but the research they fund has been cure based for a good while. Here is their past research. The roadmap to a cure pretty much prevents them from funding CBT-like grants.

      Past ATA Funded Research

      I am sure spending a 2-3 minutes on an email to them would be worthwhile!
       
    4. AUTHOR
      AUTHOR
      Watasha
      No Mood

      Watasha Member Benefactor Advocate

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      My experiences with them indicates that they DO care, but not in the most effective way. Perhaps you could share your story with them and how you've been impacted and request that they spend the money on research and not call lines?
       
    5. Jrblovsky

      Jrblovsky Member

      Location:
      USA
      Tinnitus Since:
      Christmas 2019
      Cause of Tinnitus:
      NOISE/Menieres Who knows
      I will do it to support the cause, but I feel it's a waste and that if they honestly cared they would have been advocating and procuring funding for this 30 years ago.
       
      • Winner Winner x 1
    6. Jrblovsky

      Jrblovsky Member

      Location:
      USA
      Tinnitus Since:
      Christmas 2019
      Cause of Tinnitus:
      NOISE/Menieres Who knows
      You hit the nail on the head.
       
    7. AUTHOR
      AUTHOR
      Watasha
      No Mood

      Watasha Member Benefactor Advocate

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      ATA does not fund sociology studies. They do fail in the amount of contributions that they receive being dedicated to research though.
       
    8. ajc

      ajc Member

      Tinnitus Since:
      11/2002; spike 2009; worse 2017-18
      Cause of Tinnitus:
      Loud music - noise damage
      Any new updates from the ATA? I guess they didn't read the memo on there being a Tinnitus Week.
       
      • Agree Agree x 1
    9. wwtsai
      Assassinator

      wwtsai Member Podcast Patron Benefactor

      Location:
      San Francisco
      Tinnitus Since:
      Mild (2016) Bothersome (8/20)
      Cause of Tinnitus:
      SNHL
      Yeah, makes me sad how mum they are compared to the BTA.
       
      • Agree Agree x 1
    10. Gareth Davies
      Dreaming

      Gareth Davies Member

      Tinnitus Since:
      03/07/2020
      Cause of Tinnitus:
      Middle Ear Infection & ETD
      I don’t know if I’ve missed the opening, but I sent them an email as well.
       
      • Winner Winner x 1
    11. reggie green
      Balanced

      reggie green Member

      Tinnitus Since:
      03/08/2001
      I sent them your template. Thank you.
       
      • Winner Winner x 1
    12. shelbynn
      Hot

      shelbynn Member

      Location:
      Michigan
      Tinnitus Since:
      T 11/20, D and H 1/21
      Cause of Tinnitus:
      Idiopathic
      They don't seem to be very transparent. I reached out to them in tears a few days ago looking for help from an audiologist who can help me manage my tinnitus/noise distortion (potentially mild hyperacusis) and this woman called me right when I was starting to feel suicidal again and she spent 2 hours on the phone with me. She was so compassionate and understanding. It helped me tremendously. She got me in touch with an audiologist I'm trying to go make a 3 hour trek to go see. It might be worth it to save my life.
       
      • Hug Hug x 2
    13. Jrblovsky

      Jrblovsky Member

      Location:
      USA
      Tinnitus Since:
      Christmas 2019
      Cause of Tinnitus:
      NOISE/Menieres Who knows
      Cleveland Clinic and Duke are supposed to have good audiologists. Don't waste your time with University of Michigan or any local ones in metro Detroit. Dr. Gantz at the University of Iowa is very good I heard as well.
       
    14. AUTHOR
      AUTHOR
      Watasha
      No Mood

      Watasha Member Benefactor Advocate

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      Just curious, which audiologist did she recommend?
       
    15. cruise

      cruise Member

      Tinnitus Since:
      March 2018
      Cause of Tinnitus:
      Unknown
      Good to hear that you got a good conversation that helped you. :)
       
      • Agree Agree x 1
    16. shelbynn
      Hot

      shelbynn Member

      Location:
      Michigan
      Tinnitus Since:
      T 11/20, D and H 1/21
      Cause of Tinnitus:
      Idiopathic
      @Watasha, @Jrblovsky:

      Dr. Stelios Dokianakis in Holland, MI. I still haven't been out there and I'm planning on filling out the paperwork and getting my audiograms and other medical records to them this weekend/week.
       
      • Informative Informative x 1
    17. Reggie Wedgie

      Reggie Wedgie Member

      Tinnitus Since:
      01/2010
      Cause of Tinnitus:
      Father's shotgun blast
      ATA got my email a week ago, however I haven't got a reply back.

      At least they know what I think.
       
      • Like Like x 2
    18. Boardguy14

      Boardguy14 Member

      Tinnitus Since:
      10/2020
      Cause of Tinnitus:
      No idea
      • Informative Informative x 1
      • Useful Useful x 1
    19. AUTHOR
      AUTHOR
      Watasha
      No Mood

      Watasha Member Benefactor Advocate

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      Oh yeah, this is no secret. They haven't seemed to be very open to change as well.
      We should talk about fundraising sometime.
       
      • Agree Agree x 1
    20. BrStan@

      BrStan@ Member Benefactor

      Location:
      London
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Acoustic trauma
      The BTA and the ATA are two organizations that are corrupt and compete useless in finding a cure for tinnitus.

      They should not exist. Wouldn't it be nice if the money they receive was being directly donated to one of the researchers like professor Josef Rauschecker who is also lacking funding.
       
    21. AUTHOR
      AUTHOR
      Watasha
      No Mood

      Watasha Member Benefactor Advocate

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      My opinion is that corrupt may be a little harsh and I disagree regarding them being useless (each for different reasons).

      That said, both of them need structural reform and the BTA seems to be a pretty well run, transparent machine that works very well with Tinnitus Talk it appears.

      I am a big fan of Dr. Rauschecker myself.

       
Loading...

Share This Page