wwtsai
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May 6, 2021 at 11:32 PM
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wwtsai

Member, Male, from San Francisco

Left hearing aid stopped working randomly. Oticon really has some shoddy quality. Mar 9, 2021

wwtsai was last seen:
Viewing thread Effectiveness of Intratympanic Dexamethasone With Lidocaine (Lignocaine) for Alleviation of Tinnitus, May 6, 2021 at 11:32 PM
    1. GamingT
      GamingT
      Hello. I say you posted that your tinnitus went up after getting Moderna vaccine...is it still up or did it go back down?
      1. wwtsai
        wwtsai
        Hi, I thought it went up but it was just me paying too much attention to my T. If there was any change, it went back to normal within a day.
        Mar 26, 2021
    2. wwtsai
      wwtsai
      Left hearing aid stopped working randomly. Oticon really has some shoddy quality.
    3. wwtsai
      wwtsai
      I get kinda bummed when I look at pics from the day before my worsening happened.
      1. JPGL, Nyx, Keith Handy and 3 others like this.
      2. Steph1710
        Steph1710
        Ahh yes. I feel a deep sense of longing when I see pictures of me healthy. Goodbye old life - you are sorely missed.
        Mar 2, 2021
        JPGL likes this.
      3. Ela Stefan
        Ela Stefan
        Yes. It is like a totally previous life for me. Seeing me in a movie or something.
        Mar 7, 2021
        JPGL likes this.
    4. wwtsai
      wwtsai
      Ugh my BP has been high since my worsening.. it really isn't just a sound, it's so much more.
    5. wwtsai
      wwtsai
      I don't know how I'm going to survive with my T being this loud and high-pitched :(
      1. JPGL
        JPGL
        lo mismo haria lo que fuera por deshacerme de esta tortura de sonidos
        Mar 27, 2021
    6. wwtsai
      wwtsai
      Had a video call with a new AuD who actually keeps up with research and was fairly excited about FX-322. Now that's a keeper.
      1. View previous comments...
      2. twa
        twa
        Is he better now with his T?
        Feb 10, 2021
      3. wwtsai
        wwtsai
        @twa He said his T still fluctuates a lot but he's habituated to it.
        Feb 10, 2021
      4. NTV
        NTV
        Hi! I see that you are also from SF. Would you mind sharing who your new audiologist is? Thanks.
        Feb 14, 2021
    7. wwtsai
      wwtsai
      Feels like my T is getting worse and worse :( Why is this happening?
      1. Ilias T likes this.
      2. Ilias T
        Ilias T
        Too much anxiety, maybe you focus too much on it. Your life itself. Are you in a loud city or a local farm inside a field? Try to find your triggers or the cause
        Feb 5, 2021
    8. wwtsai
      wwtsai
      Pitch change on one of my tones is causing me anxiety and nausea.. anyone got tips to deal with both?
      1. View previous comments...
      2. convolution
        convolution
        you learn to uncouple your feelings from events that used to generate a reaction in your body.
        Feb 3, 2021
        TomS97, wwtsai and Steph1710 like this.
      3. wwtsai
        wwtsai
        @Steph1710 I've had it for 5 years but only noticeable in the last 6 months. I do fluctuate on a daily basis, but I was to the point where the fluctuations were predictable. This new pitch threw me for a loop but I know I'll get used to it eventually.
        Feb 3, 2021
      4. wwtsai
        wwtsai
        @convolution I love the way you framed it! I just wish my first crush wasn't so cruel lol.
        Feb 3, 2021
        convolution and Steph1710 like this.
    9. wwtsai
      wwtsai
      This pitch change for one of my tones is causing so much anxiety.
    10. wwtsai
      wwtsai
      First setback since worsening.. not fun.
    11. wwtsai
      wwtsai
      Played a video game with a high pitched victory fanfare and now one of my tones is mimicking it? This is a joke.
      1. BrOKeN_1
        BrOKeN_1
        Curious if you were using headphones. And if you think it makes a difference.
        Jan 30, 2021
      2. wwtsai
        wwtsai
        @BrOKeN_1 Nope, it was just thru my phone speaker at a low volume. I stopped using headphones after my tinnitus worsened back in August
        Jan 30, 2021
    12. wwtsai
      wwtsai
      They really need to make hearing aids that can amplify the higher frequencies. These are doing nothing for my T.
      1. tracyNYC likes this.
      2. Drachen
        Drachen
        Hold strong for FX-322/OTO-413. You shouldn't need any hearing aids after those!
        Jan 30, 2021
        wwtsai and tracyNYC like this.
      3. tracyNYC
        tracyNYC
        Agreed. Mine are useless as well.
        Jan 30, 2021
    13. wwtsai
      wwtsai
      Went for a walk cuz it was nice out and someone blasted their power tools right as I walked by their house. So freaking loud.
      1. Drachen
        Drachen
        This sort of thing is why I hesitate to ever go outside and talk walks. Doesn't help that I live right on a decently traveled street, so cars go whooshing by every so often. It's amazing how we even put up with this before.
        Jan 20, 2021
        Lucifer, tracyNYC and Steph1710 like this.
    14. wwtsai
      wwtsai
      My right hearing aid which costs $2,500 crapped out after only 3 months of normal use. This is why hearing loss needs better treatments.
      1. Lucifer and aot like this.
      2. tbuzz89
        tbuzz89
        Just one of the MANY reasons hearing issues need better treatments.
        Dec 14, 2020
        Phendran and wwtsai like this.
      3. Lucifer
        Lucifer
        Hopefully FX-322 should solve our issues and no one needs hearing aids.
        Dec 14, 2020
      4. Phendran
        Phendran
        I agree. Sorry for your troubles. 3:
        Jan 8, 2021
    15. wwtsai
      wwtsai
      It's so hard waiting day after day for something to come out
      1. TrevorSanders
        TrevorSanders
        Stop waiting and start living. A cure will come when it comes.
        Dec 8, 2020
        Steph1710 likes this.
    16. wwtsai
      wwtsai
      I think since my T is so high pitched/shrill, its causing me headaches. Anyone got any tips to deal with those?
      1. Snake
        Snake
        I get headaches too with burning head sensation after recent worsening (First orthodontic drill, then glass shattering in front of me...) :(
        Dec 7, 2020
    17. wwtsai
      wwtsai
      It's always fun guessing what my head tinnitus is gonna be like for the day.
    18. wwtsai
      wwtsai
      What's worse: higher pitch/lower volume or lower pitch/higher volume?
      1. Steph1710 likes this.
      2. View previous comments...
      3. Orions Pain
        Orions Pain
        Higher volume
        Nov 15, 2020
        Rogi Cetpla, wwtsai and Steph1710 like this.
      4. Gareth Davies
        Gareth Davies
        Definitely higher volume.
        Nov 15, 2020
        Rogi Cetpla, Steph1710 and wwtsai like this.
      5. starrynights
        starrynights
        Definitely lower pitch, higher volume. Lower volume tinnitus that is high pitch is easy to mask and usually gets masked in ambient noise, from my experience.
        Nov 16, 2020
        Rogi Cetpla and wwtsai like this.
    19. wwtsai
      wwtsai
      If I could just have the smallest control of my T it’d go a long way. Nothing I do or take affects it.
      1. musicblue, Nadia231 and Steph1710 like this.
    20. wwtsai
      wwtsai
      Went out for a run and came back with a new, prominent hiss.. great.
      1. aot likes this.
      2. Steph1710
        Steph1710
        Running always temporarily spikes my T. Usually goes within a couple of days.
        Nov 11, 2020
    21. wwtsai
      wwtsai
      Why is head tinnitus even a thing
    22. wwtsai
      wwtsai
      It's not the silence I miss (haven't known that in years), but the ability to easily ignore my T.
      1. Kriszti and Steph1710 like this.
      2. Bill Bauer
        Bill Bauer
        That ability often comes back after 2-3 years.
        Oct 20, 2020
        Steph1710 and wwtsai like this.
    23. wwtsai
      wwtsai
      Kinda sucks waiting while we're possibly on the cusp of something. I wish my T spike could have waited a couple of years.
      1. James1977, Kriszti, Lilah and 4 others like this.
      2. aot
        aot
        Seriously! Hard agree.
        Sep 22, 2020
        Steph1710 and wwtsai like this.
      3. Bill Bauer
        Bill Bauer
        Has there been a new development that I am not aware of?
        Sep 24, 2020
      4. wwtsai
        wwtsai
        @Bill Bauer Nope, but I am being optimistic with what we've seen in the Research News section
        Sep 24, 2020
    24. wwtsai
      wwtsai
      First day taking NAC and it seems like my T might be higher today? Don't think I'm gonna continue.
      1. Bill Bauer likes this.
    25. wwtsai
      wwtsai
      Had an MRI today.. wow that was loud. T seems to be the same so far thankfully.
      1. Bill Bauer, Lucifer and Steph1710 like this.
      2. sleepingsiren
        sleepingsiren
        I remember my first, well and only MRI. I felt SUPER dizzy the first few minutes. I was in panic and wanted to hit the emergency button.
        Sep 14, 2020
        wwtsai likes this.
    26. wwtsai
      wwtsai
      If a spike subsides to baseline would you need to habituate to your baseline again?
      1. Steph1710 likes this.
      2. Steph1710
        Steph1710
        I guess so. Also would you even remember what your baseline was, or what it sounded like?
        Sep 13, 2020
        wwtsai likes this.
      3. wwtsai
        wwtsai
        @Steph1710 That's true.. I tried to recall what my baseline sounded like before my spike and can't remember anymore.
        Sep 13, 2020
        Steph1710 likes this.
    27. wwtsai
      wwtsai
      Tone in my left ear is now a hiss.. hopefully a good sign albeit it is more noticeable now.
      1. Steph1710 likes this.
      2. Bill Bauer
        Bill Bauer
        The pitch of the hiss ought to get lower and then it will become less noticeable.
        Sep 9, 2020
        Steph1710 likes this.
    28. wwtsai
      wwtsai
      Does anyone else have fleeting T that only shows up while napping/sleeping?
      1. HeavyMantra
        HeavyMantra
        It's pretty common from what I've heard
        Sep 8, 2020
    29. wwtsai
      wwtsai
      Can coq10 affect sleep? Took it last night and could not lie still at all
    30. wwtsai
      wwtsai
      Low pitched droning whenever I sleep. Sometimes it stays the next day. Can't tell if its something besides T due to SNHL
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  • About

    Gender:
    Male
    Location:
    San Francisco
    Tinnitus Since:
    Mild (2016) Bothersome (8/20)
    Cause of Tinnitus:
    SNHL