Chiari Malformation

Discussion in 'Support' started by Coyotesheaven, Oct 14, 2016.

tinnitus forum
    1. Coyotesheaven
      Depressed

      Coyotesheaven Member

      Location:
      Utah
      Tinnitus Since:
      02/18/2015
      Cause of Tinnitus:
      Acoustic Trauma, Dysautonomia/Vascular
      This is one of those diagnoses I have been considering for a long time. I have had the tests and examinations to be evaluated for it, but it seems that neurologists and doctors have repeatedly forgotten to look for it in the MRI and don't ever get back to me on the answer. I certainly cannot read MRI's, but from what I saw there did seem to be some kind of 'crowding' or things looked like a can of sardines in the area where chiari defects occur, but no obvious dropping of the cerebellum below its normal position.

      For those who don't know what this is, here is some basic info:

      http://www.mayoclinic.org/diseases-conditions/chiari-malformation/symptoms-causes/dxc-20249662

      Anyway, the symptoms part explains me all too well. I have migraine-like episodes daily (they don't usually come as the headaches but as inner ear disturbances or other auras), bad muscle tension and infrequent numbness right in the area where chiari defects occur, and my hearing also goes through changes every day. These symptoms are usually not spontaneous and are often exacerbated by coughing, straining, bending over, doing sudden movements with my muscles, oh and especially being exposed to shockwaves like sitting down too fast, running, going over bumps on a road, etc. This is all consistent with a chiari defect.

      I guess my point of this post is...are there any chiari sufferers out there on this forum? Has anyone considered this as an explanation for their tinnitus?
       
      • Hug Hug x 1
    2. Jkph75

      Jkph75 Member

      Tinnitus Since:
      2/27/16
      Cause of Tinnitus:
      Unknown
      You need a upright MRI completed to be sure about this.

      I really think you should start using a hearing test app to monitor changes in your hearing. You are right that it isn't accurate, but if you take it in the same place it is reliable. This will help you see if there is a loss and how big it might be.
       
    3. Coyotesheaven
      Depressed

      Coyotesheaven Member

      Location:
      Utah
      Tinnitus Since:
      02/18/2015
      Cause of Tinnitus:
      Acoustic Trauma, Dysautonomia/Vascular
      @Jkph75

      Already had an MRI done. The professionals just need to actually rule this out like I told them too.
       
    4. Jkph75

      Jkph75 Member

      Tinnitus Since:
      2/27/16
      Cause of Tinnitus:
      Unknown
      An upright MRI machine is different than a regular one and can show Chiari malformation much better than a standard MRI.
       
      • Helpful Helpful x 1

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