Dave’s Tinnitus Story

Discussion in 'Awareness & Fundraising' started by Jazzer, Feb 3, 2019.

    1. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Hey - did you see that guys?

      {{{Big Hug}}} from a very pretty lady.

      Spring in my step now lads.

      Seriously
      Thank you
      Once.

      Dave x
      Jazzer
       
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    2. Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      No Jen. Your story is incredible and will be told. It deserves its own spot, not combined with anything else. I'm still thinking if it's going to be text only, or if you would be open to joining one of the podcast episodes and share it that way...
       
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    3. Starthrower
      Wtf

      Starthrower Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      January 2002
      Cause of Tinnitus:
      Dental Surgery
      Thank you @Markku. Wow I am not sure. I break down in tears unable to talk sometimes and other times it is like talking about the weather. Definitely worth giving this some thought.
       
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    4. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Hi folks - Over 1,000 Views.
      This from my producer/photographer/ and good mate Phil Swallow this morning.
      Thanks to everybody that took the time to watch: “Dave’s Tinnitus Story” and special thanks to those who left a comment up on the YouTube comments option.

      Hi Dave,
      It was a very active night of views last night as we went over 1000 views, currently at 1037.
      Here are a few additional stats:
      • 600 unique viewers, the average views per viewer is 1.6
      • Traffic source type: 73% external views, 13.3% found it by searching within YouTube, the rest found it through various means, suggested videos etc.
      • Breakdown of external views: 70.5% from Facebook, 7% from Tinnitustalk.com, 4.5% from within YouTube, 2.4% from Twitter, 2.3% from Gmail
      • 94% of viewers don’t subscribe to YouTube, 3.4% of viewers do
      • Top countries by watch time: UK 42.5%, USA 18.6%, Australia 1.8%, Canada 1.4%
      • Devices used to watch it: Mobile phone 57.9%, Computer 25.5%, Tablet 16.1%, TV 0.5%
      Perhaps my favourite letter from scores of them written to me - from the wife of a helicopter crew chief:

      “Dave, thanks so much for making this video. My husband suffers from tinnitus, most likely from when he was in Vietnam Nam and crew chief on a helicopter. I never really understood what he was going through until I watched your video. Now I can certainly appreciate his trauma whereas before I truly didn’t.”

      Thanks also to @TuxedoCat
      for giving me a shove!

      Dave x
      Jazzer
       
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    5. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      ‘Video still raising awareness folks.’

      Dave,
      I have enjoyed your playing at Sylvie's Place for several years and I am really sorry to learn that you have had to retire. It was always so obvious that you were having a great time so I can understand a little how much you must be missing being able to play. Having watched the video, I really hope that you can find ways to alleviate the problem. By taking part in the video you are alerting many to the awfulness of this condition, thank you for that. And thank you for bringing joy to so many people over the years. Best wishes, Tony Pearson.
       
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    6. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Another ‘thank you’ from great jazz pianist
      Martin Litton, for my video raising awareness to the jazz fraternity in the U.K.

      Martin Litton.
      We're grateful for the warning. I worked many years with Tomas Ornberg of the Swedish Jazz Kings and he suffered tinnitus after a military aircraft flew below the regulation height above his home in Uppsala. As a result, he seldom slept more than 3 hours a night and would spend most of his time on tour resting in bed. It really does wreck lives. We miss you, Dave, on the jazz scene: one of our most underrated players, although not by musicians. Love to you and Sylvie.
       
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    7. TuxedoCat
      No Mood

      TuxedoCat Member Benefactor Ambassador Advocate

      Location:
      US
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      high frequency hearing loss
      This is a perfect one-liner to describe tinnitus. Proud of you @Jazzer and thank you again! TC
       
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    8. Bobbette

      Bobbette Member

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Unknown
      WOW this was so inspiring! Thank you @Jazzer!
       
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    9. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      You’re very kind.
      I did get a bit uptight once or twice but I’m not ashamed of showing the intensity.
      People need to know what we go through.
      Best wishes
      Bobbette
      Dave x
      Jazzer
       
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    10. Daniel Lion
      Ape-like

      Daniel Lion Member Podcast Patron Benefactor Hall of Fame

      Location:
      SE Asia
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Noise trauma, hearing loss
      Hey big man. Mr. Dave, Jazzer.

      Thanks for making this film.

      It's really helpful to the community, and for helping loved ones understand our condition.

      All of your contributions are top notch, thanks.

      Daniel
       
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    11. JaiSea
      Cool

      JaiSea Member

      Location:
      Glastonbury, UK
      Tinnitus Since:
      01/2000
      @Jazzer I just watched this on YouTube. Loved it. :beeranimation:
       
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    12. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Currently over 1,500 viewings.

      I just want the public to realise what we have to live with, and to consider supporting us if they can.
       
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    13. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Contrary to popular opinion Ems - I am still the same person that made that film.
      I still live in considerable noise, I still try my best to help anybody who calls on me for help,
      I still hurt and cry sometimes.
      I am very well aware of being discriminated against in certain quarters, but my integrity is firm and my approach honest.
      I have not been able to reach you recently, but I hope you are well and doing okay these days.
      Give my love to Jcb if you see him,
      Best wishes
      Dave x
      Jazzer
       

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