Dave’s Tinnitus Story

Discussion in 'Awareness & Fundraising' started by Jazzer, Feb 3, 2019.

    1. Lane

      Lane Member

      Tinnitus Since:
      February, 2018
      Cause of Tinnitus:
      Ototoxic Drug
      Hey Dave, I very much appreciate your video, AND your decision to make it widely available. Thanks for posting it; I feel it will almost assuredly touch many people's lives in a positive way (quite apparently, already has). I agree with others who said it took courage to share your story with the world.

      If I may--I could see the joy in your face of a life well lived. I also could see the sorrow and pain of tinnitus, and the losses in has inflicted on your life. But, I also saw a dignified grace as you choose to "live the best way" you can, which I truly admire. Takes courage to do that my friend (and lots of supportive love as you often allude to). -- Thanks again!
       
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    2. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Thank you Lane.

      I was determined to ‘tell the truth’ of just how horrible this ‘thing’ is.
      At the same time I felt quite a responsibility to every sufferer to show that, even though we have lost so much - for me, my peace and quiet, my entire way of life, my total income, my beautiful jazz making passion - the best way forward, in fact the only way forward, is too find a personal adjustment to it, and to embrace other things, family.....er......have I mentioned pussycats yet?.....and the huge challenge of still making something of our lives.
      I always took tremendous pride in my artistry;
      I now need to take pride in my ability to survive this ‘thing’ well.

      I really appreciate your response my friend,
      Dave x
      Jazzer
       
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    3. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      As promised a handful of Facebook responses to ‘Dave’s Tinnitus Story’ video.
      7E360A6E-995B-4384-8699-279E0B88BA0C.jpeg
      I have copied and pasted these responses verbatim and just removed the names.

      Truly an informative vid. It not only showcased that wonderful sense of humor, amazing musical talent and kind heart but an educated response to a much misunderstood ailment. (Pics of fur babies were great too) Thank you for sharing your wisdom.

      Dave, I have just now had the opportunity to watch your Tinnitus video. My heart breaks for you - to give up something in your life that was SO important - your music. I can't begin to imagine what my life would be like without my music....My husband suffers from tinnitus. When he was in the Army, they fired the "Little John" rockets. The army's idea of ear protection back then (in the 60's) was a cotton ball swabbed in petroleum jelly. DUH!!! Then, after the Army, he became a policeman. Did a lot of shooting - handgun, rifle, shotgun. Also, he got into police combat shooting. Again, no ear protection back then. So, the damage was done. His tinnitus is a constant high pitch ringing in his ears.
      Thank you for making the video..I know it was difficult for you to get through it at times.

      Thank you. I'm sorry and I'm grateful for your story. We know many will benefit from your story. You two touch our hearts again with your love and caring. Forward with research!

      I'm a retired nurse and found this video very helpful for teaching those who are initially diagnosed with tinnitus. I'll be sharing it with my nurse friends. You obviously did your homework!

      Dave x
      Jazzer
       
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    4. annV
      Fine

      annV Member

      Tinnitus Since:
      2005
      Cause of Tinnitus:
      unknown - possibly hereditary
      My heart skipped a beat reading the lovely feedback you received. YOU deserved it. Go Dave!
       
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    5. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      A few more responses to our video.
      These are from abroad - wherever that is
      - and I love the broken English.

      “With a lot of attention I have been listening to your story. I think it’s very handsome that you can explain it all. A lot of strength I hope you can give it a place, and also find it very unfortunate that you can’t play music anymore.
      You’re a Champ!”

      “I usually write in Dutch because my English is not sufficient. Dave I have great admiration for the way you tell what Tinnitus has impacted on your life.
      The tears were all over my cheeks.
      I wish you a lot of strength and then more strength.”

      “Thank you for sharing my husband suffer for it . I will tell him about the awesomeness group don't think he knows of it. his is work in a factory related and I'm always telling the younger ones where I work to wear ear protection . I will share the clip thank you for trying to making people aware keep up the good work Dave ”

      @Markku - did you appreciate my plug for
      Tinnitus Talk - now known as ‘The Awesomeness Group?”
       
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    6. PDodge
      Cowboy

      PDodge Member Benefactor

      Location:
      Woods of Alberta
      Tinnitus Since:
      01/2017
      Cause of Tinnitus:
      Bear ate my Cochlea
      Thanks for sharing this @Jazzer. I'd love to play music again...

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    7. Markku
      Inspired

      Markku Founder Staff Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      I absolutely - and humbly - did!

      But hey, without folk like you Dave enriching it, it wouldn't be The Awesomeness Group! And let it be stated that you not only make the online group better, but you also have extended your presence at important events! You do know everyone told me you were awesome at the BTA Expo! While of course wearing the Tinnitus Hub t-shirt! :rockingbanana:

      No question about it, as others have said, you present yourself on video so breathtakingly well. Not everyone is able to do that. What a massive tragedy it would have been if you hadn't published this! The comments you have received speak for themselves.

      :thankyousign:

      jazzer-dave-1.jpg

      jazzer-dave-2.jpg
       
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    8. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Hi bud
      - a crying shame for us both.
      But what can we do.
      All I can think of is still to make
      something of the rest of my life.
      Best wishes PD,
      Dave x
      Jazzer
       
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    9. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      @Markku,

      Thanks Markku - I’m just so pleased that with the help of my great mate, photographer and director, Phil Swallow, and his lovely misus Sue, who was in charge of the Kleenex tissues, we produced something worthwhile.

      Dave x
      Jazzer
       
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    10. TuxedoCat
      No Mood

      TuxedoCat Member Benefactor Ambassador

      Location:
      US
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      high frequency hearing loss
      Wow, that is very touching. It was very nice of her to let you know about it.

      Messages like this really drive home the point that stories like yours need to be told.

      Hat's off to you, Phil and Sue Swallow for getting the message out.
       
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    11. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Just a few more responses from people who have found this video helpful...

      *If you have a spare few minutes sit down with a cuppa and watch this. I feel blessed to have shared the bandstand with Dave Hewett on a few occasions. (Wish it had been more)
      He is one of the many in the jazz world who have been very encouraging on my journey in this great music. A top guy and player who’s jazz career has been finished far too early due to Tinnitus.
      Touching video and also hits home why we should take a little more care with our lugholes!

      *Listened to it all. So sad that your stellar career was lain low, but at least I did have the joy of knowing you while you were still playing. An inspired solo at the end of the video. We miss your playing.

      *I must admit I knew little about Tinnitus but was aware that it ended the career of one of the best jazz trombonists around. This remarkable video explains this debilitating condition. Thanks for raising awareness Dave Hewett.

      *What a good explain. From Tinnitus... I know I am going sometimes crazy of the noise.. piping and zooming and blinking when I am going to sleep.. I am always tired . Not only because the fibromyalgia. Also from this...sound.. god bless you. Dave ❤

      *What a wonderful person you are to do this video! It is very helpful to understand what you and others endure. I have a friend in Chicago that was just diagnosed with this condition. When I was told about it, I knew what it was because of your previous communications. But this video really puts some perspective on what you and others endure. I have shared your video with him and friends for better understanding. Thank you so much for doing this. I know so much more about you now and consider you a dear friend. Just know that your video will definitely help others! Well done! I love that the kitties are there to help... just like when we were kids.
      Love to you and Sylvia.
       
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    12. Starthrower

      Starthrower Member Benefactor Ambassador

      Tinnitus Since:
      January 2002
      Cause of Tinnitus:
      Dental Surgery
      @Jazzer :huganimation:

      You have touched people's lives because of your courage to step forward and speak out. Thank you.

      Not to forget your smile. :rolleyes:
       
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    13. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      @Starthrower,
      when my mate did a photo shoot he said,
      “Dave - I need a ‘smiley’ picture.”
      I said “I’m sorry Phil - I never could smile to order - I can’t do it.”

      He set up the camera and just looked at me for a good couple of minutes.
      When he got tired of waiting, he said,
      “.....er.....some teeth would be nice...”

      That statement was so clever, I laughed like a drain....and he got his smile on the way down!

      B7EF4793-B5EB-4228-90F5-5BC4B6EEF6AC.jpeg 1BDFE396-0835-4E8F-94BF-055C3413939C.jpeg
       
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    14. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      One more batch of responses to our video,
      then I’ll call it a day.
      Don’t want to bore the pants of anybody....x

      *Dave has made me realize how important it is to protect my hearing. If I go anywhere with hard music, I have my earplugs. Most people find it weird and exaggerated - but that doesn't interest me at all.
      Thank God tinnitus has been spared me so far and I have often exposed my hearing enough to loud music, especially in the time, that I was in a music shop.
      Please check out the video of Dave and share it! Thank you....

      *Of all the shares I’ve posted on here, few, if any, are more important than this one. I’ve had low-level tinnitus for years now and it hasn’t got any worse, thankfully. It’s made me much more careful about my lugholes and watching Dave’s video here serves to emphasise the danger we face as musicians .

      *This is great for awareness building Dave. We jazz musicians are not looking after our ears properly. I left the army with tinnitus and now try to manage it ongoing to stop it from becoming a worse problem. Your story needs to be out there to help musos understand the issue.

      *I have it from being hit by a car and landing on my chin. It shoved my jaw back and I got TMJ also. Mine is the high pitched eeeeee Dave said. No fun. Sorry you suffer from this Dave.

      *Thank you for sharing your story with us Dave, very moving. We have fond memories of your fantastic performances on the jazz nights at Sylvie's Place. Big hugs Barbara x

      *Im glad you made this video. I have had to deal with Tinnitus for over 20 years. I am 62 years old. I have tried a couple of different hearing aids, but they didn't block out the noise. It started out quiet one day and over the years its gotten louder. I have the high pitch noise constantly. Doctors have told me I will have this all my life. I may eventually go deaf. It's hard to hear people especially when I am in a crowded place like a restaurant. I had to learn how to live with it.

      *Thanks for sharing this video Dave & “company”. So much I never knew about this condition. I’m so sorry you’re going through this and had to give up something you love so much, but the way you’ve handled it is an inspiration to all.

      *Thank you. I'm sorry and I'm grateful for your story. We know many will benefit from your story. You two touch our hearts again with your love and caring. Forward with research!

      *Dave, I never knew about tinnitus before, thank you for sharing your incredible story. You have had a wonderful life, and I didn't know what a celebrity we have been texting too. And we were giving all the credit to Percy!!! Thank you again.
       
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    15. Jcb
      No Mood

      Jcb Member Benefactor

      Location:
      UK
      Tinnitus Since:
      December 2017
      Cause of Tinnitus:
      possible TMJ, came on after severe cold and chest infection,
      @Jazzer much respect my friend, got me a bit emotional. It hits home especially when you think you may never hear silence again. You are a gent my friend.

      Then of course you have to post your “catalogue modelling” pictures ;)

      In all seriousness I enjoyed that, I’m happy you decided to post it.
       
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    16. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      It is only by raising awareness that civilians (those not conscripted into the tinnitus brigade) will have any real idea of what it is we suffer and how we have to live, and consequently how we should be treated and respected.

      I do not believe in hiding the truth.
      It is only the truth of this condition that will raise awareness and stimulate preventative attitudes in those at risk - i.e. everybody.
       
    17. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      @CrystalB
      Dear Crystal
      I saw your comment about relationships.
      I made this video to explain to partners and others what we are going through.
      I wonder if watching it might help.
      Best wishes
      Dave x
      Jazzer
       
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    18. CrystalB

      CrystalB Member

      Tinnitus Since:
      11/2017
      Cause of Tinnitus:
      Unknown
      Thank you for sharing this! It does help!
       

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