Do I Have Acoustic Trauma (Microsuction) Induced Cochlear Hydrops or AIED?

Discussion in 'Support' started by Liam_Cairns, Jun 4, 2021.

    1. Liam_Cairns

      Liam_Cairns Member

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Originally loud Music and was worsened by Micro-suction
      Hey guys, so I've obviously been on these forums for three years now since my tinnitus went from being stable to unstable due to microsuction. I have spent thousands of dollars on doctors' appointments and different drugs and I think I have finally come down to the conclusion that I possibly have acoustic trauma (microsuction) induced cochlear hydrops.

      I have consulted with my ENT and he seems to think that it is either this or AIED (autoimmune inner ear disease).

      All I know is that when I am exposed to either loud sound or intense exercise, my ears become really full feeling and my tinnitus becomes really pissed off and the only thing that seems to return it to baseline is corticosteroids, whilst benzos produce a transient reduction.

      I also have noticed that Betahistine seems to help with the full feeling in my ears.

      The only other things that I have really found to set off my ears are drugs that affect Serotonin in one way or another, which from my understanding is super common amongst all tinnitus sufferers.

      I have suffered a couple of bouts of very brief vertigo over the past few years since the vertigo, however they have never been extreme enough to cause me concern and only ever happened after super strenuous weight lifting.

      I have had mild hearing loss since the microsuction incident that has slowly increased, however, it is across pretty much all frequencies, not just low ones which is the norm with Meniere's. If anything, my low frequencies and ultra high frequencies seem relatively untouched, with my mid frequencies dropping around 10-15 dB.

      I know asking for advice online is not normally advised but I just wanted to see what your guys take on this is. My doctor has offered to put me on 25 mg a week of Methotrexate (starting at 10 mg) to see if that will help abate my symptoms and since I respond so well to steroids.

      Are there other treatments that I should try and give a go first?
       
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    2. Vicki14
      Panicky

      Vicki14 Member Benefactor

      Tinnitus Since:
      January 2016
      Cause of Tinnitus:
      Stress
      Hey @Liam_Cairns, so sorry that you’ve experienced this after microsuction and I’d definitely say that this was the cause. Exact same thing happened to me, @Blue28 and many others after getting this unsafe procedure. My ears went from very mild tinnitus to very loud and unstable with hyperacusis.

      I definitely wouldn’t recommend microsuction to anyone! x
       
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    3. Blue28
      Doubtful

      Blue28 Member

      Location:
      Europe
      Tinnitus Since:
      04/2016
      Cause of Tinnitus:
      Acoustic Trauma from Microsuction
      Hi @Liam_Cairns, sadly as @Vicki14 pointed out, many people are being permanently harmed by microsuction. I also believe I suffer from cochlear hydrops following an acoustic trauma brought on by microsuction. This was over 5 years ago. After three months of researching my symptoms I came to the conclusion I had cochlear hydrops but as I don't have classic Meniere's symptoms, the doctors I saw dismissed my theory. My hearing fluctuates all the time but on the whole is on a steady decline. I suffer constant fullness, ear pain, extreme tinnitus, mild vertigo at times and like you, my hearing has dropped around 15 dB in all frequencies. I take a diuretic and Betahistine but my ent won't prescribe corticosteroids. I'm absolutely at my wits' end with it all.

      I'm with @Vicki14 on this, microsuction is an extremely dangerous procedure that is needlessly damaging people's hearing (and much more as a result), and should be banned!
       
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    4. AUTHOR
      AUTHOR
      Liam_Cairns

      Liam_Cairns Member

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Originally loud Music and was worsened by Micro-suction
      Yeah, I remember reading your story when I first joined Tinnitus Talk, Blue, I don't know if you really remember me but both you and Vicki were kind and supportive which I am forever thankful for.

      If I may ask, have you ever tried LDN (Low-Dose Naltrexone), and also I wanted to ask if you find the diuretics helpful?

      I was going to try giving those a go before stepping up and starting on Methotrexate.

      As I personally believe (and this is total speculation), our group who suffers with this very specific form of cochlear hydrops that seems to be greatly aggravated by sound is almost an immune response to noise. In the way that some people with Meniere's can't touch salt our allergy is literally noise.

      It is the only reasoning I can come up with why

      a.) prednisone helps with most of my symptoms, and

      b.) why noises that don't affect normal people have such a profound effect on our ears.

      I think there is also a neurological component as I have found that mega dosing Clonazepam (2 mg or greater) seems to stop all the physiological symptoms as well, it's almost like the brain tells the body to attack the ears.

      I hope this makes some kind of sense I have read a tonne of research papers and plan on starting a Master's in Audiology at some point in the future to help people like us who have been left behind.
       
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    5. Lukee

      Lukee Member Podcast Patron Benefactor Ambassador

      Location:
      Toronto, Canada
      Tinnitus Since:
      01/2021
      Cause of Tinnitus:
      Wim Hof Breathing Exercises
      I think you would be wise to try LDN before harsh steroids. Have you tried a mild diuretic (like dandelion tea) to see if it helps your symptoms? I believe LDN will help people with hydrops, inflammation or issues of an autoimmune origin. The problem is that there is still such an overlap and no one has done the research to figure out the correlation between hydrops and autoimmune conditions.

      It's becoming generally accepted that autoimmune diseases can stem from stress to our system (physical, emotional, prolonged mental stress, etc.). I believe that many people, through some event actually develop a form of hydrops/AEID and that's where LDN might help the most. "Regular" tinnitus from noise exposure probably doesn't respond at all to LDN unless that stressor causes hydrops/AEID at which point LDN should help. You also mention that prednisone helps your symptoms which points to inflammation or issue in the CNS, both of which LDN has impact on.

      BTW, if it turns out to be hydrops, there is an Italian doctor currently living in Vietnam, Dr. La Torre, who claims to treat hydrops. I have seen success stories and a few posts against him but generally I think his claims are legit.

      I hope you get a positive result with whatever route you decide to take. Keep us updated.
       
    6. Ava Lugo
      Gloomy

      Ava Lugo Member

      Tinnitus Since:
      10/03/19
      Cause of Tinnitus:
      Virus
      I'm curious, because I think in one of your posts you said that your tinnitus is reactive, do you still listen to music and watch TV or does it sound distorted because your tinnitus intrudes during those times?

      I am sorry to hear about your microsuction experience.
       
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