Blue28

@Biaxca how are you doing now? I’m almost 1 month out from microsuction with no sign of the new tinnitus letting up. No hearing loss on the Audiogram thankfully.

@Ant315 hey! Sorry for delayed response haven’t been on here. I’m on clonazepam from my neurologist, made my T fade into background not even a bother anymore. However, I still have my constant pulsatile tinnitus which is not really a noise is just a feeling of pulsing in my ear so having surgery to hopefully fix it it’s cause of my myoclonus. if ur struggling rlly bad with T see a neurologist and ask about meds

@Biaxca all good, I’m going to wait and see if mine fades before I take any more action. Sounds like you have a few things going on.

I don't sleep well, I've been awake since 4am. My life was destroyed by an ENT who did microsuction badly. I don't have hearing aids... Although my hearing is getting worse. I believe the noise trauma from the microsuction caused cochlear hydrops.

I truly am sorry to read this. I completely understand your anger, it enrages me that microsuction is not better reglemented and that the dangers of this procedure are not recognised or admitted. As its so difficult to sue Drs etc, microsuction is performed without a second thought as its quick and easy... A fast way to get money. It sickens me.

Hi @NightOwl, I'm so sorry to read that you are another victim of microsuction. It happened to me in 2016 and it seems that nothing has changed. ENTs etc that perform this procedure are still in denial of the damage it causes. Personally I just try to cope best I can but it's hard... I push through the worst times and cherish the better times.

@NightOwl how are you doing now?

Hi @Rali, I'm truly sorry that you are suffering too because of microsuction. This procedure is very dangerous yet its done with the least amount of caution. I will send you a PM tomorrow (it's middle of the night here).

Hi @Ava Lugo, I don't really listen to music now, it just doesn't sound the same... And it irritates my ears even at a low level. It's heartbreaking.

@Rali, i'm so sorry to hear that you too have suffered damage because of microsuction. It breaks my heart read that another person has become victim to this terrible procedure.

Preach

.....and everyone" A fact often ignored. It costs the society huge amount of money because people are disabled and can't work, and family and friends suffer from the stress of our condition, because they can not take our pain away.......It is a tragedy not only to the sufferer.

I had mine done I’m not sure if it’s responsible for my recent spike and don’t remember it being loud just the sound of wax getting suctioned out. @brownbear are you an ENT have you heard of this before

@Vicki14 had microsuction and it caused her VERY mild tinnitus to become extremely loud. It also caused hyperacusis, and no end of stress. I think at the wrong hands this procedure can be extremely damaging to our auditory system, and our health in general.

@Blue28 exact same thing happened to my mum. Her T went from mild to extreme, because of an ENT using microsuction.

My ENT was baffled when I told him the tinnitus community regarded microsuction as unsafe. We really need updated medical practices.

:(

Hi @Agrajag364 , no I had never had wax removed before by any means. I didn't even know what options there were, apart from syringing. I only went as the wax had softened and moved after a swimming session and seemed to be too far down to come out with drop (I tried this for approx 10 days)s...I wish I'd left it and continued with drops...if only. Microsuction is EXTREMELY DANGEROUS IMO.

Struggling against it is where we suffer the most. At least for me. I'm finding that being engaged in my life and work - many times faking it - puts T into the background. Not always easy but with practice, I'm convinced I can move past it, ie habituate.

❤ Goodluck Blue.
We know how hard this is

@Rubenslash I had an audiologist measure it, played different levels at my pitch until one corresponded with what I hear

Then you hear it in the shower right?

@Rubenslash Yep, I can pick it out if I listen for it

Don't we all... :( Sadly, we don't know what we have until we have lost it.

I've read your posts Blue and all I can recommend is Ativan.

It's a benzo so not a long term solution but it literally turns my T off and reduces my H by 50%

You could also look into round window reinforcement for your H, I'm getting it done shortly so will let you know how things work out.

The same !