Does Sleeping at an Angle or Using a Pillow Wedge Help Anyone's Pulsatile Tinnitus (PT)?

Discussion in 'Support' started by Stu1983, Aug 10, 2019.

    1. Stu1983
      Studious

      Stu1983 Member Benefactor

      Tinnitus Since:
      Around 2008/spiked Dec 2018
      Cause of Tinnitus:
      2008 sound?Meds?Not sure/Dec 20 2018 meds doubled the volume
      Hi everyone,

      I'm a bit confused on what to do as this issue wakes me up every single night, usually a few times.

      I have regular severe tinnitus during the day but when I wake up in the morning or middle of the night I wake up due to my tinnitus becoming a pulsatile beeping along with my normal T. It is occurring partially in sync with my pulse but disappears when I'm awoken completely. This only occurs when I’m lying down and am partially asleep (like the point where you are about to doze off).

      Does anyone else experience this, or have any advice to offer?

      I’m wondering if anyone here has had any success with sleep by putting their mattress on an incline or using a pillow wedge of some sort to help with blood flow? I have lately been experimenting without success.

      Thank you for taking the time to read this and for your responses.
       
      Last edited: Aug 10, 2019
    2. Juan

      Juan Member

      Tinnitus Since:
      08/2014
      Cause of Tinnitus:
      Several causes
      My guess is this has something to do with brain activity.

      As for mattress, pillow etc I would suggest trial and error. Your neck may have a role on the tinnitus maybe, if you are sleeping in a wrong position.
       
    3. AUTHOR
      AUTHOR
      Stu1983
      Studious

      Stu1983 Member Benefactor

      Tinnitus Since:
      Around 2008/spiked Dec 2018
      Cause of Tinnitus:
      2008 sound?Meds?Not sure/Dec 20 2018 meds doubled the volume
      Hi @Juan and thanks for the advice. I agree that my neck tension or positioning is involved here somehow.

      I will be purchasing an adjustable bed frame to play with different angles to see if this helps along with neck stretches and posture correction exercises.

      It's the strangest thing, only in a state of half consciousness does it begin, so study of it is difficult lol

      Love and respect
      Stu
       
    4. Juan

      Juan Member

      Tinnitus Since:
      08/2014
      Cause of Tinnitus:
      Several causes
      For me T changes too when dozing off. Actually it can disappear, and it rings louder when waking up slowly in the morning. So my guess is it has to do with brain activity. Like if our brain was starting like a computer does, some program, or the starting process is wrong at some point.. just to give an example.
       
    5. spinnaker

      spinnaker Member

      Tinnitus Since:
      1980s
      Cause of Tinnitus:
      Unknown / hearing loss
      Mine is only on the left and it is more like a heartbeat thing than beeping. I sleep on my left and it seems to go away. It is very mild. Plus my left is my bad ear so I can't hear the alarm form tat one anyway. ;)
       
    6. AUTHOR
      AUTHOR
      Stu1983
      Studious

      Stu1983 Member Benefactor

      Tinnitus Since:
      Around 2008/spiked Dec 2018
      Cause of Tinnitus:
      2008 sound?Meds?Not sure/Dec 20 2018 meds doubled the volume
      @Juan @spinnaker,

      Thanks for the responses. I recently purchased a automatic fully adjustable bed and new mattress (free trial for several weeks) to experiment with angles and positioning of my body. Hopefully this solves the problem.

      Love and respect.
       
    7. AUTHOR
      AUTHOR
      Stu1983
      Studious

      Stu1983 Member Benefactor

      Tinnitus Since:
      Around 2008/spiked Dec 2018
      Cause of Tinnitus:
      2008 sound?Meds?Not sure/Dec 20 2018 meds doubled the volume
      Does anyone else on Tinnitus Talk have any experience/knowledge regarding this issue? It would be greatly appreciated.
       
    8. carlover
      English

      carlover Member Benefactor

      Location:
      London
      Tinnitus Since:
      1986
    9. AUTHOR
      AUTHOR
      Stu1983
      Studious

      Stu1983 Member Benefactor

      Tinnitus Since:
      Around 2008/spiked Dec 2018
      Cause of Tinnitus:
      2008 sound?Meds?Not sure/Dec 20 2018 meds doubled the volume
    10. rainbowjade

      rainbowjade Member

      Tinnitus Since:
      1997
      Cause of Tinnitus:
      Unknown after tests
      Spinnaker. Mine is a heartbeat sound and I thought it was my blood pressure and it freaks me out. I had a bp regular check a month ago and my doc said it was fine. Do you have elevated bp for it to sound like a heartbeat or is yours normal?
      Regards.
       
    11. tiniturtle

      tiniturtle Member

      Tinnitus Since:
      3/19/2017
      Cause of Tinnitus:
      Paromomycin
      Pulsatile tinnitus is completely seperate from tinnitus. The change seems to be due to your change in position, which would be expected. Pulsatile tinnitus is caused by some abnormality in the fluid dynamics inside your head, usually from some alteration of the venous blood flow. Often times it can be from a stenosis or narrowing of the vein, or from another abnormality like a dural arteriovenous fistula. Part of the characteristic is the variability in the PT. Have your had yours investigated?
       
    12. Greg Sacramento

      Greg Sacramento Member Benefactor Hall of Fame

      Tinnitus Since:
      April 2011
      Cause of Tinnitus:
      syringing and now somatic T dental work
      Whenever posting about pulsatile tinnitus it would be very helpful to know the person's age because that can made a big difference on what the cause is. Next would be the following: Exposure to radiological scanning done for the neck, head, mouth and jaw. Blood testing for infection and thyroid. Any neck movement exams and multiple stethoscope exams done. Any GERD, hiatal hernia or salvia gland problems. Sores in the mouth.

      Often neck arteries have involvement with bone marrow, thyroid gland, esophagus, salivary glands, mouth sores, skin, bone surface, sternocleidomastoid muscles, brain, pituitary, facial, any nerves or processes above the shoulders and eyes. One example: Multiple CT exams (radiation effect) can cause thyroid problems and then this can also cause any problems in the sentence above including arteries of the neck. So neck arteries is not always cause by itself.
       
      • Like Like x 1
    13. tiniturtle

      tiniturtle Member

      Tinnitus Since:
      3/19/2017
      Cause of Tinnitus:
      Paromomycin
      It's usually the veins of the head and neck where this originates, the arteries can be involved, but that's rather rare. And if/when arteries are involved, that's almost always a very dangerous situation.
       
    14. Greg Sacramento

      Greg Sacramento Member Benefactor Hall of Fame

      Tinnitus Since:
      April 2011
      Cause of Tinnitus:
      syringing and now somatic T dental work
      True, no problem with that, but both terms (artery - vein) are used in medicine. Such as with subclavian, carotid and superior thyroid. Jugular is mostly referred to as a vein. Some doctors will call any of the 16 majors blood vessels. You may know more than me per pulsatile tinnitus. I have PT and I know my cause - it involves several events and pathways.

      I study case histories and I feel that overall biology problems/conditions is important to know when assisting with physical and pulse type tinnitus. One thing can involve or lead to another.

      I never knew much about regular tinnitus before getting it and I still don't. I do know a fair amount about physical and pulse tinnitus and involved anatomy, but treatment sometimes is trial and error. I had been around many ER and OB doctors for many years. I also have read over 5000 science articles on physical tinnitus and conditions of cause and probably more case studies.
       
      • Like Like x 1
      • Informative Informative x 1
    15. tiniturtle

      tiniturtle Member

      Tinnitus Since:
      3/19/2017
      Cause of Tinnitus:
      Paromomycin
      Listen, it's not a competition. I'm speaking from my experience and from talking with, and being treated by some of the best doctors in the country. They've educated me very well on my condition, as well as the lack of knowledge of most doctors, and their ability to diagnose and treat. I've had 3 cerebral angiograms to date, 3 brain surgeries to repair these issues. This consisted of two dural arteriovenous fistula, which caused pulsatile tinnitus (among other things), and were cured. Also a cerebral venous sinus thrombosis, and a pulmonary embolism. With all of this, I have gotten through without any lasting damage and with curative treatment. This is due in part to my persistence, diligence, and choice of the best doctors I was able to go to. There are a lot of people on this forum suffering from this ailment for a variety of reasons, and a large portion of them, unneccessarily. Most times this is a curable issue, and can also indicate a life-threatening situation, as it was in my case. I'm leveraging my experience to try to help others, and to motivate them to seek appropriate treatment and diagnosis, rather than guessing and speculating about the causes, and not doing anything about it. I'm frustrated by the amount of misinformation here.

      I suffer from general tinnitus as well, which was drug induced, that will probably never go away. I also had pulsatile tinnitus, which is not even related in any way, which was cured.
       

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