Ear Crunch Following Sudden Noises? Anyone? Please Help Me Diagnose!

Discussion in 'Support' started by maz1, May 4, 2016.

tinnitus forum
    1. maz1

      maz1 Member

      Tinnitus Since:
      2015
      Cause of Tinnitus:
      who knows
      Hi All,

      I've had tinnitus for the better part of a year and now I have a new and more painful affliction. I am hoping that someone else can shed some light on my newest ear condition:

      When I hear a sudden sound, plates, people speaking close by, my own voice, or following any other abrupt sound I have a spasm like 'crunch' in my ear.

      This painful 'crunch' feeling (that of sounds like a 'woop' in my ear) occurs following the noise.

      For example:
      If I speak a full sentence loud enough, following the completion of the last word I will experience what feels like a 'crunch' spasm inside my ear.

      The 'crunch'/spasm and pain always follows the offending sound and is never occurs at the same time as the sound.

      My Oto. Dr has proposed cutting either the stapedius or the Tympani (I cannot recall which).

      I wanted to get some feedback to see if any other have had or have heard of such an issue?

      Comments welcome
       
    2. Nick Pyzik
      Depressed

      Nick Pyzik Member

      Tinnitus Since:
      6/23/15
      Cause of Tinnitus:
      Listening to in-ear headphones & playing in a band
      Maz, have you ever tried plugging your nose and popping your "ears"? I believe what you are hearing is the movement of your Eustachian Tube. I also hear a crunching noise when sounds around me happen. I usually don't even pay attention to it anymore. If you try blowing air out of your "ears", you should be able to hear a similar crunching/popping noise just like the one that happens after noises go off around you.

      I also don't like the sounds of having those two areas of the inner ear cut. What did your Oto have to say about why you should cut either one?
       
    3. lapidus

      lapidus Member

      Location:
      Sweden
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Noise induced
      Sounds like Tonic Tensor Tympani Syndrome. There are people on the H network that have reported both good and bad results after having surgery. I think surgery should be the very last resort since not enough is known yet about this condition and it's causes. Maybe @japongus can give you some answers. He's pretty informed about this.
       
    4. japongus

      japongus Member

      Tinnitus Since:
      1998

      I'm not sure if I have this issue, but I've been told by a neurotologist that I could as a have pretty deep thumps to sound. If he saw it with his otoscope on your eardrum then he probably suggested cutting the tympani, but if he saw something on an impedance test he might have suggested the stapedius. Mine saw neither and still suggested cutting them, and though he has some experience with this and I was recommended him by other happy customers and he's well published in pulsatile tinnitus academic literature, I'm not sure how much. Was it like I said it was?

      Wow, after the last sentence? That's not something I was aware of. Mine has a latency, but it still is pretty much alongside the external sound. That's not something I'd heard about before but it may very well be common.

      The chat-hyperacusis forum has experiences from people with definite myoclonus if you're interested were operated and were very happy with the op, if you search for lib or JoeM or mk and plenty others, others who tried the operation like supersmooth and the thumping didn't stop, and others who had more odder symptoms before op and complained about worsening in the op, like astrid.

      It might be a good idea to read academic literature and the experiences of those forum members to get an idea. I had one patient who though extremely happy that her myoclonus type of sound sensitivity had disappeared now, sometime later, had autophony from possible patulous eustachian tubes, though I'm not sure if it was from the operation and it seemed to have been acquired sometime later. And that may be an issue with the tensor tympani I dunno. Generally with definite myoclonus, the academic literature is pretty positive about tenotomies, but they do tend to suggest drugs before the operation. And my neurotologist suggested amitryptiline, which I have not yet taken because I forgot to detail that I have a weak esophageal sphincter...
       
    5. Mithrandir
      Ape-like

      Mithrandir Member

      Tinnitus Since:
      10/2015
      Cause of Tinnitus:
      Acoustic Trauma + NIHL
      @lapidus @japongus

      I have questions about the surgery for TTTS, did you read some report/experience ? Have you a link ?

      Thanks.
       
    6. lapidus

      lapidus Member

      Location:
      Sweden
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Noise induced
      • Like Like x 1
    7. Mithrandir
      Ape-like

      Mithrandir Member

      Tinnitus Since:
      10/2015
      Cause of Tinnitus:
      Acoustic Trauma + NIHL
      @japongus I have 15 drops of amitryptiline each night, it's not so bad ;-P
       
    8. japongus

      japongus Member

      Tinnitus Since:
      1998
      I've read the testimonies from people on chat-hyperacusis, I went through their user accounts and threads, emailed a few of them too, and I've looked it up on google and libgen.io/scimag, with search terms like ''middle ear myoclonus'' or ''middle myoclonus'' and so on, and you get a few that talk fairly ambiguously of things like subjective hyperacusis when they're looking for myoclonus, so I'm not sure which is hyperacusis and which is myoclonus. And as a starter, I read dizziness-and-balance.com and hyperacusisfocus.org to get a sense of the basics.
       
    9. japongus

      japongus Member

      Tinnitus Since:
      1998
      Astrid, who starts the first thread, no doubt cast a cold veil over operating sound-provoked thumps, but Lib who intervenes in many other interesting threads, was convinced something must have gone wrong with Astrid's surgery. And because we don't know where astrid went, maybe even banned by Rob, the born-again sound therapist that moderates the forum, I'm not sure if she was permanently damaged by the op or only temporarily so, as she implies both things.

      Supersmooth doesn't seem to talk so much about sensibility but about sound-independent thumps.

      The biggest study on myoclonus is made by a bunch of south koreans, and they seem to possibly be treating both kinds. And I'm quite sure Lib and JoeM had both kinds. And I have a suspicion from reading a couple of myoclonus academic articles that if a tendon vibrates fast enough, it can melt into a continuous sound instead of discontinuous.
       
    10. Saadc

      Saadc Member

      Tinnitus Since:
      2015 january
      Hello maz1

      I have the same condition : a crunch noise feeling that occurs actually during the noise and being heard right after the noise (my own speech, voices, loud noises,..)
      This crunch noise feeling also occurs when I m touching slightly my ear (targus) or the zone near my ears (Could you do that as well?).
      It starts with my left ear, but now this is mainly the right one.

      I have also some distorsion (blown effect speaker) in one ear when I hear very loud continious noises (Like music).
      My own voice seems weird to me, like a robot voice, I feel my auditory system vibrates when I am talking and this is very unpleasant.
      I feel also a pressure near my nose and ears.

      I have had this for 1.5 years. I have been to a lot of ENT, no one could really heal me.
      I'm not sure this is Myoclonus (As some people cut all the tendons and still hear this crunchy noise).

      Even healthy people have stapedius contraction when they are about to talk. The difference is that we hear this contraction.

      I have also autophony when I'm doing tennis.
      For my case, I think this could be :

      - Diplacusis
      - Minor syndrom (Dehiscence of the canal)
      - Patulous eustachian Tube.
      - Paralymphatic fistula
      - Dysfunction of stapedius/tensor tympani (but not myoclonus)
      -Sinus issues
       
    11. Mithrandir
      Ape-like

      Mithrandir Member

      Tinnitus Since:
      10/2015
      Cause of Tinnitus:
      Acoustic Trauma + NIHL
      Hello Saad I think I've already talk with you on french Facebook page...

      Did you make a CT-Scan ?

      Do you want to cut your tendons in the ears ?
       
    12. Saadc

      Saadc Member

      Tinnitus Since:
      2015 january
      Hey mithrandir
      Î'm planning to visit Dr Venail
      As my ear racts also to touch (with the very same crunchy organic sound), I m not really keen to cut my tendons: I want to be properly diagnosed first
       
    13. Mithrandir
      Ape-like

      Mithrandir Member

      Tinnitus Since:
      10/2015
      Cause of Tinnitus:
      Acoustic Trauma + NIHL
      @Saadc

      When will you go to visit Dr Venail ? Did you made ct-scan ?
       
    14. japongus

      japongus Member

      Tinnitus Since:
      1998
      Yours is the same as maz1 in the sense that after the sound finishes the contraction themselves start is what you're saying? During the external sound you have no contraction?


      Do you also feel the contraction? Or do you only hear the contraction?
       
    15. Saadc

      Saadc Member

      Tinnitus Since:
      2015 january
      I would say that the contraction starts at the beginning of the sound but the crunchy thing is actually heard at the end of sentance just like something is released.

      I kind of feel the contraction the sound is something mechanical
       
      • Agree Agree x 1
    16. japongus

      japongus Member

      Tinnitus Since:
      1998

      But do you feel it or merely hear it?
       
    17. Saadc

      Saadc Member

      Tinnitus Since:
      2015 january
      I would say that I feel it, it's not just a sound but a feeling that something is moving or something is sticked to my tympani/eustachian tube.
      It moves whenever I talk, I yawn, I touch around it , sometimes even if I move my head.

      The noise is just like when you try to plug a audio jack, and sometimes it makes a crunchy sound at the beginning. But mine is more "wet" and organic.

      I don't know if my stapedius is so much sensible to react even to touch
       
      • Agree Agree x 1

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