Exploding Head Syndrome?

Discussion in 'Support' started by Deepsky24, Oct 2, 2016.

?

Do You Have Exploding Head Syndrome?

  1. Yes, I have it

  2. Yes, I used to have, but no longer

  3. No

Results are only viewable after voting.
    1. Deepsky24

      Deepsky24 Member

      Tinnitus Since:
      2006
      Cause of Tinnitus:
      Live music, alcohol.
      So I posted on here a little while ago and was disappointed with the lack of feedback but now I have a new theory on what's going on in my head.

      I've been experiencing a zapping like jolt that I hear in my head but only when I lie down and the best explanation I've found for it is Exploding Head Syndrome. How about that for a name!

      I don't hear it sitting up or standing. I can hear approximately 5 of them at any one time if I lie down, along with the tinnitus. It's like an electricity shock coursing through your head. Apparently the syndrome is benign, a para insomnia and/or an auditory hallucination and the attacks are known to disappear but most likely will return at some point. There is no pain associated with them, but they are very distressing even though I'm almost getting used to them. I'm hoping these attacks will subside.

      Has anyone else experienced this?
       
    2. Michael B
      No Mood

      Michael B Member Benefactor

      Location:
      San Diego
      Tinnitus Since:
      '11
      Cause of Tinnitus:
      Noise Induced
      Sorry for the lack of feedback. It doesn't sound pleasant at all! I hope it's a temporary condition and that you find relief soon.
       
    3. PaulBe

      PaulBe Member Benefactor

      Location:
      Cairns
      Tinnitus Since:
      11/2013
      Cause of Tinnitus:
      Probably sound, though never proven
      Sounds kind of vascular.
       
    4. Jacob83
      Balanced

      Jacob83 Member

      Location:
      Wisconsin
      Tinnitus Since:
      06/2000
      Cause of Tinnitus:
      I <3 punk rock and metal
      I've had this happen to me before a handull of times in life, the 'exploding head syndrome.' Right when I first fall asleep, I've heard a large bang similar to a door being slammed and jump up in fear. Yours sounds incredibly different, but it could be that, too. I'd ask a doctor if I were you
       
      • Good Question Good Question x 1
    5. Lex
      Blah

      Lex Member Benefactor

      Tinnitus Since:
      07/2016
      Cause of Tinnitus:
      Bad decisions
      I have this, but upon waking up (and not falling asleep). :( It's like I have an internal alarm clock. It first happened last weekend. Friday morning, I woke up to the sound of running water. Saturday morning, to the sound of a slamming door. Sunday morning, to the sound of a firecracker. Monday and Tuesday, didn't happen. But today on Wednesday, I woke up to the sound of a thud. I know these sounds aren't coming from anywhere because I'm alone in the house.

      The sounds don't cause pain but they make me panic for a few seconds or so upon waking up.
       
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    6. Ricardo1991
      Tired

      Ricardo1991 Member

      Tinnitus Since:
      01/2016
      Cause of Tinnitus:
      The world may never know..
      Hey! I have this sometimes, does it sound like this?
      Exploding Head Syndrome Sound Experience
       
    7. Elmer B Fuddled

      Elmer B Fuddled Member Hall of Fame

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      plugged nasal eustachian tube
      I've had it the bang and like the electric shocks at first I thought I was having dementia starting but no it's all exploding head syndrome
       
    8. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      • Like Like x 1
    9. Backpacker

      Backpacker Member

      Tinnitus Since:
      2018
      Cause of Tinnitus:
      SSHL
      My favourite part is "as no one is really sure what it is, it might be linked to...stress, anxiety...". Sure, why not. Never get tired of that one.
       
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    10. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      Blaming stress and anxiety is so damn stupid. Almost all mysterious diseases will be labelled as pyscho-somatic before they are given valid medical explanations. In the meantime all we can do is laugh at the sick humor of this whole epidemic.
       
      • Agree Agree x 3
      • Like Like x 2
    11. AlbertJ

      AlbertJ Member Benefactor

      Location:
      Philippines
      Tinnitus Since:
      12/2018
      Cause of Tinnitus:
      Otitis Media
      I am now 15 months into tinnitus and have been noticing that I sometimes develop other auditory dysfunctions alongside - dysacusis last December and paracusis (auditory hallucination) when stressed out and sleepless.

      The past several nights, I hear some loud sound when trying to drift off/get back to sleep in the middle of the night. Sometimes it is a buzz, sometimes I think it is my own voice amplified, sometimes it is like a snort, sometimes it feels like a mild vibration from a smartphone, and sometimes it is like a semi-loud thud from something that fell.

      I have read about exploding head syndrome and some sounds I have been hearing might qualify. It is just that the past successive nights, I wake up 3AM and then try to get back to sleep when I hear the sound. Recently, it has been repetitive - a few minutes of trying to sleep and then I hear it and won't sleep anymore.

      My tinnitus has been manageable as of late but having this new symptom affects my sleep. And sleep deprivation makes my tinnitus worse in the day.

      Has anyone from you experienced this?

      Thanks in advance.


      Best regards,
      Albert
       
    12. Mitt

      Mitt Member

      Tinnitus Since:
      I don’t have tinnitus
      Cause of Tinnitus:
      I only have exploding head syndrome
      I just barely asked this question of the internet, “why do I hear an explosion in my head when I’m asleep?” It took me to this forum. That’s exactly what happens to me on occasion. I will be sound asleep and jarred awake by what sounds like a gun shot in my head. I shoot straight up in bed and am so happy once I realize I am fine. I always knew it was inside my head so I wondered if it was an aneurism or something like that. Now I am used to it so I am able to go back to sleep. I have wondered if it is apnea. To think there is something actually called exploding head syndrome.
       
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    13. Matchbox
      Wishful

      Matchbox Member

      Location:
      BC Canada
      Tinnitus Since:
      08/2020
      Cause of Tinnitus:
      Noise Induced, Prednisone (drones), Barotrauma (distortions)
      This shit. I hate this shit. This kept me up all damn night.

      I feel like people with tinnitus and distortion are predisposed.


      Just keeps coming.

      The ONE link I have is Z-drugs, like benzos, seems to catalyze them (they can come randomly, but way more prominent it seems when taking them, and over and over and over again).

      The culprit last night was Zolpidem. Zopiclone/other benzos do not seem to have this effect. Could be a sub-unit thing.

      One thing for sure, Zolpidem doesn't help tinnitus, and triggers this. So screw that drug.
       
    14. Ken77
      Frustrated

      Ken77 Member

      Location:
      Belgium
      Tinnitus Since:
      04/2018
      Cause of Tinnitus:
      Unknown. Possibly benzos (lorazepam) and/or stress
      Sometimes when I wake up my tinnitus turns into a loud electrical "zapping" sound, similar to how people describe exploding head syndrome. I have no idea why.
       
    15. linearb
      Psychedelic

      linearb Member Benefactor Hall of Fame

      Location:
      beliefs are makyo and reality ignores them
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      karma
      Z-drugs and benzos are quite distinct, Z-drugs are weirder and more unpredictable. Z-drugs are also referred to here as "nonbenzodiazepine sedatives" which is kind of silly to me since they're basically benzos that also have deliriant / anticholinergic effects.

      I had this a lot in like years 2-4 after my worsening and then it stopped happening. I wasn't using many Z-drugs at all at that period, if any.

      I take benzos on a regular basis now but I hadn't had any EHS wakeups in a couple years prior.

      Give your brain time to plasticize changes, and, when it happens, try to remind yourself it's just a fleeting sensory phenomena that doesn't have any inherent meaning attached to it. If you can do that over a period of time, my experience is you can learn to detach the emotional response, and then you don't really get the adrenaline spike, and it's just "more weird shit that happens because our brains are strange sponges trying to model a strange world".

      It's annoying but it's nothing to be afraid of, and the more I learned that the less sleep I lost over it. Huge difference between waking up with a POP and then getting a huge adrenaline rush and just being awake, vs waking up to a POP, thinking "oh yeah, there's that" with no emotional judgement attached to it, and then going back to sleep easily.
       
      • Like Like x 1
    16. Matchbox
      Wishful

      Matchbox Member

      Location:
      BC Canada
      Tinnitus Since:
      08/2020
      Cause of Tinnitus:
      Noise Induced, Prednisone (drones), Barotrauma (distortions)
      Huh crazy. Did you notice it was one ear only? It's in my "bad ear" moreso, seems to feel like it emanates from the back of my head to there... and only when juuuust about to sleep.
       
    17. Gman45

      Gman45 Member Benefactor

      Location:
      Oklahoma USA
      Tinnitus Since:
      12/13/2020
      Cause of Tinnitus:
      Concussion or ETD
      I've had exploding head syndrome happen right before falling asleep. Very rare for it to happen to me. It hasn't happened since I developed tinnitus. Seems sort of an unrelated phenomenon.

      It is weird though. You are dozing off to sleep and boom. It's like a lightning bold goes off in your head. It will prevent you from falling asleep for a bit. I see a flash of light with the boom sound.
       
    18. linearb
      Psychedelic

      linearb Member Benefactor Hall of Fame

      Location:
      beliefs are makyo and reality ignores them
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      karma
      For me it was more like being hit in the head with a bat, honestly? Like a grenade going off behind my eyes. I don't remember it being unilateral.

      Before my TMJ was somewhat managed I used to sometimes wake up to insanely loud blasts of usually unilateral tinnitus, but that was pretty different than EHS, and also usually would go to baseline after 10-15 mins in a hot shower. One time it happened when I was camping and I remember feeding all the quarters I had into the 3-mins-for-$0.75 camp shower and hoping for the best.
       
    19. one-light
      Sunshine

      one-light Member

      Location:
      England - up North, Near Manchester
      Tinnitus Since:
      2010
      Cause of Tinnitus:
      stress/adrenalin + forgetting to breathe enough when online
      Yes, Exploding Head Syndrome, what a name — science hasn't got a clue... I called it Sonic boom. I even set up a thread on a spiritual forum searching for answers months ago — just as going to sleep 'boom' in my head nightly for months...

      I found the answer 'for me' my spirit guides teaching me so I could share with others. Yes, I know what you're thinking, as if! Guides after attention, after they spend decades trying to guide us, when we don't pay attention as in the gut feeling — listening when resting and 'knowing stuff'... It happens to songwriters and inventors over the last 100 years, great ideas 'coming to mind'. You just have to listen as in knowing/learning/guiding...

      If that's the case with anyone else here, just except and acknowledge what it could be - nothing lost 'everything' to gain...

      I must just add though, someone local to me had a similar problem and the hospital drained some fluid, simple procedure - so there's 2 options from me...

      Just to mention here, as I'm talking spiritual - anyone thinking of ending their life in a dark place right now - get help, we are to see our life plan through 'no ending it' - get help now, pick the phone up, do it now - get some help...
       
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