First 20 Days of Tinnitus

Hello everyone! I have T for 20 days now. It started out of blue in my left ear and now it's driving me crazy! The sound feels like hissss and crickets like in my head and plus to this I sometimes hear some kind of signal sound but it is mostly only for a few seconds. My jaw is clicking for the past 11 years and I can not easily open my mouth widely . I also have anxiety disorder for past 6 years and this occured during the week 7 since I have quit them. (Benzo) I still only use Seroq**l for sleep. I saw 2 ENTs and my hearing and ear seems perfect. (MR etc.) What do you guys think about this may cause from? Do you think I have TMJ? I saw a dentist and he diagnosed me three different things but never told me anything. Well, this is what health service system looks like in Turkey...
Hugs for all xo

 

Hi Beste,

Welcome to the forum, we all are in the same ship and will give you all the help you need.

First, things will settle down, believe me. We as humans, don't understand, accept or handle very well when something is not working "normal" in our bodies, and worst for something so annoying like T.

You are not still be considered as chronic T sufferer (it takes at least 6 months to 1 year), so there are ALOT of chances that it goes away.

If don't, you will start a process that includes anxiety, rage, frustration, and maybe depression. It's part of the process. But you have to keep fighting this feelings, and when you get them at bay, Tinnitus is bearable, you can live "normally" as a T sufferer. In some point your new reallity includes this sound, and your brain will accept it, habituate to it.

BUT, never give up. Keep searching for answers, but do not rush for finding a cure. Just search for things that can help you handle the condition better. Accept, search, manage, live normally. In that order.

Yes, look answers for your TMJ. You could definitively find some relief there. Also, there are alot of stories about people that stoped using benzo like drugs just before getting their T. Look in that way also.

The best for you, thinks will get better.

Regards!
Johnny.

PD: I came back from being a "living death", anxiety, big depression. I was not taking care of my kids, wife, profession. But now, I'm up un running again. I can hear my T inside of and airplane, I don't know how many decibels, but I'm pretty sure that is loud. So there is hope

 

@JohnnyMx thank you for your calm welcome and responding. I also am really happy for your process in this situation. I want to ask some question. Can benzos still be the cause after guiting them seven weeks before the T? Or Can TMJ still be the one reponsible for my T after 11 years? I'm living in hell right now. I can not go to school and I'm about to lose my bf. Do you think my anxiety disorder may cause this and after getting some meds this will be cured? Sorry if I'm bothered you but I'm so panicked right now.

 

Thank you for your answer Glynis. I'll give it a try as soon as possible. Hugs.

 

hi betse , its very difficult to diagnose where your T comes from . For the history could be anxiety related . You have to take care in quitting benzos because of the body reacts with stress . To quit them one must taper the doses , like little by little and ones sees how each persons feels . if TMJ in my country (chile) we use muscle relaxants mouth guards and some excercise to relax the jaw . I general if TMJ the patients when wake up feels like a numb jaw , like if you have eating gum for a long time . Thats the sign that you close very hard your jaw during the night . In general when we use 3 weeks of benzo the mechanism of toletarion starts , so imagine 9 months . Try not to panick and have patience , a good idea will be take again some medication and see what happens , if all goes good then use it for a while and taper the dose ver softly ..

 

I used to take benzo 1mg for each night for my insomnia. I think that's why my doc said I could cut it out completely at once. I'll ask him about it by the way. Thank you so much for your help.

 

let me know what molecule you were using . clonazepam ?? let me know . in general 1mg is low dose . but depends on each person , some person found 1mg very high , others low . but its difficult to cut at once , even on low dose , when cutting at once and youre body doesnt tolerate it , you will feel inmediately more nervous , like with fine tremor or anxiety or little insmonia depends on each person . let me know anything

 

I only used Rivotr*l on 1mg and Seroqu*l 50 mg. When I quited benzo, I started to get Seroqu*l on 100 mg. Now I see why I used to get angry so easily and even could not stand myself. It was also pretty hard to fall asleep first 4-5 days but I coped with it later. But there was no T. It occured in 7th week. Btw there is an update to my situation. 3 doctors suspect that my T can cause from my jaw and neck problem. I'll see another doc and my psychiatrist next week. I'll inform you here

 

You are not bothering anyone here, your questions are very welcome, make as many as you want.

It is very "normal" that you feel panicked right now. Its part of the process. Tinnitus its pretty much like grief. You can't really stand up from the lose of a loved one, before you first feel panick, depression, anxiety, pain, frustration, desolation, angry... things start to improve as soon as you start to accept it.

I don't have much experience with the Benzo situations, I've never used benzo like drugs for anxiety or depression. But here in TT are many people that have vast experience (personal experience, the best) I hope they jump in the conversation to give you some advise.

I've suffer for long time (long before my T became loud) from Anxiety, Hyperactivity, so I really think (alot of people here do) that anxiety, depression, are very strong connected with Tinnitus.

There are alot of combinations, that only alot of research will help you to figure out what helps yous. Example. Anxiety can defenitively make your TMJ worst, then, TMJ can make you T worst. Once your T is bad, your anxiety, depression and panick get bigger, so your TMJ... and just like that, you start a very dangerous cycle that needs to be stopped.

My best advise for you now, is 1) Keep looking for answers, but ONE at a time. Go for the benzos thing, and then for the TMJ issue. 2) Try to control your anxiety, depression and panick. This last is very hard to accomplish, but you need to "fake it until you make it". If you don't feel good to go to school, just go. If you dont feel well to have dinner with your BF, just go. and always try to have a good time. This is, one of the most powerfull tools you have now. And please, protect your ears from loud noise. Just as people with eye problems have to use glasses forever, we will need to use earplugs in loud places forever.

You will be ok!
Johnny.

 

if its neck , must ask for doppler of four vessel to see if any vessel of the neck its getting thight for some reason . I dont have experience of TMJ but im glad to hear youre improvement , well we keep an eye on you and hope we all go through this . If using again ravotril , try so switch for newer molecule clotiazepam (rize) is from a japannese laboratorie I do not know if in youre country is avalable , but it has fewer side effects , feels more relaxed and easy to cut off . only probelm is that the pills are very little so when cutting off need very good pulse or some device to make it without destroying the pill , when cutting off is like this , one week 1/2 , then other week 1/4 then other 1/8 and next week clean . that , or two weeks each one .

 

I just read some comments on Turkish forums that are saying tinnitus causeing from neck issues can not be healed. Is this true? I feel so sad right now. I need right answers.

 

one need to know what kind of neck issues one has . In general must check , doppler of 4 vessels , and mri study from cervical spine . what issues do you have , have you any diagnositc yet?

 

An update:
Just came back from doc's office and he said my T has nothing to do with my withdrawal and indeed I'm not in any withdrawal syndrome as he claimed. What the hell ? I'm so confused what is going on? Guys, is there anyone who has T related to TMJ and completely recovered? I know people who are completely cured are not here but there is hope.

 

Hi. I know it is not what you want to hear, but it is very unlikely that you will ever know with certainty what "caused" your tinnitus.

Given that, it probably makes sense to start with the other things that are going on and perhaps one of them will help with tinnitus. A place to start would be with your TMJ issues.

Sounds like you also need to figure out your meds. It isn't clear which doctors are prescribing which meds, but I would explain all of the medication issues to your psychiatrist whether he or she has prescribed them or not. Explain your concerns about tinnitus and see if you can come up with a plan.

 

Hi
This was my psychiatrist who told this to me. And he said just because that came out of blue, my T still count as acute and this would go away anytime. Is this true? Even I will never find a cause, can it still be gone for a sudden? Today I barely heard it but now it's here.