Four Days, No Tinnitus — Thanks Greg Sacramento

Discussion in 'Support' started by Fleegle, Dec 6, 2021.

    1. Fleegle
      Curious

      Fleegle Member

      Location:
      Australia
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Unknown
      Firstly, I want to shout out to @Greg Sacramento who has made the single best contribution to my well-being through this forum. In fact I would say Greg listened more than specialists and doctors.

      I am sure that we are half-a planet away from each other, but Greg provided the right support when I most needed it. See below for the discussion that changed my life.

      Now, what am I talking about? If you have picked up on my posts, then you will know what is going on. But recently I re-tried Greg's information and advice. I have tinnitus in (mostly) my left side: a high hissing noise (cicadas, crickets, shrill hissing, etc), but not a "tone".

      In the past sometimes my tinnitus has gone from my self-assessed 4/5 down to 1/5 (1 is faint, 4 is loud, and 5 is I-dont-wanna-know). For almost two years now I have not had an extended period of 1-level days. I had enjoyed a 9 day stretch in the past that I have never been able to repeat, and things have been getting so bad that I could not remember the last time that good things happened for me. I used to, in hope of recovery, track my tinnitus everyday. I tracked it for a few years hoping for a pattern that would explain it. And then eventually I gave up on doing this because there were no "good" days and filling out that tracking register was going to be super-easy because it would be 4's forever. Recently life has been #$%^.

      But after re-assessing my life and my emotions and frame of mind, I went back to this forum and I re-read my posts and the always-helpful, always-generous advice from others.

      Short: you guys are awesome, and please don't stop being awesome.

      So what happened?

      Recently I "declicked" my neck - as Greg would say the C1/C2 vertebrae etc. But I am guessing.

      I was brushing my teeth and I convulsed on the toothbrush (sorry for the TMI but I want to tell you the thing that did it). So I gagged and the gag reflex took over. And something clicked in my neck. Almost instantly the tinnitus was gone. It was quick. By the time I was catching up on what just happened I noticed that the tinnitus was gone.

      But then it came back after 1 day. Oh well. Back to level 4 days and nights.

      Until Friday when I woke up and it was gone. And my neck felt different - a little bit like something had "settled" and worked itself out. So for four days now my tinnitus has been at a 1 or a 0.1. It is really low. So low that I am right now struggling to hear any tinnitus.

      And now I am super mindful of my posture. Neck positions, shoulder lifting, desk leaning, etc. I don't want to go back to where I was.

      But I am at the place where I used to be. Where the tinnitus rises when I clench my teeth or hiccup in a funny way or crunch my core muscles. And the sound would go "weee-ooo". I am back at that place now. That is my 1/5 level that I had before.

      So I plan to beat my previous 9 day record at this level, and then some.

      Thanks again to @Greg Sacramento for the kick in the pants I needed, especially when I cam back here after two years with nothing to show for it, and I came back for a re-kicking.

      I bet you have questions. I will see if I can answer.

      Cheers.
       
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    2. OnceUponaTime
      Wishful

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
      This is fantastic!
      So happy for you!!
      :huganimation:
       
    3. NYCGuy
      Wishful

      NYCGuy Member Benefactor

      Location:
      NY
      Tinnitus Since:
      10/2021
      Cause of Tinnitus:
      Neck, Jaw or Stress, who knows.
      Great news, enjoy the silence.
       
    4. AUTHOR
      AUTHOR
      Fleegle
      Curious

      Fleegle Member

      Location:
      Australia
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Unknown
      I woke this morning very worried that the tinnitus had come back.

      But no. Day 5 now.
       
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    5. illegalmonkey77
      Fine

      illegalmonkey77 Member

      Location:
      New Hampshire
      Tinnitus Since:
      10/20/2017
      Cause of Tinnitus:
      Likely due to fluid in ears, and then it just stuck around.
      I was hoping for more than "I gagged on my toothbrush and my T was gone"... lol

      Recently(like last day or two) my T has shot up for some unknown reason. I haven't done anything different or blasted music for long periods of time. I get a temporary spike on my left side when I look straight down without bending my neck, and a spike on my right side when I jut my lower jaw forward. In general my T was on my right and hadn't been too bad but now it's both sides with the left just coming out of nowhere.
       
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    6. Lane

      Lane Member Hall of Fame

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Single 25 mg dose of (anticholinergic) drug Promethazine
      Hi @illegalmonkey77 -- I find that very interesting. What I do know is that the very strong sheath that surrounds the brain and spinal cord is the same sheath that makes up the whites of our eyes. It's called the dura mater (tough mother), and from my reading and research can become impinged or spasmed for a variety of reasons.

      Some health care practitioners specialize in working out the kinks in the dura mater (Bio Cranial Therapy), sometimes resulting in dramatic improvements in health for the person getting the treatment. -- @hartstreet -- I would not be the least bit surprised if some cases of tinnitus could be traced to some kind of involvement of a dysfunctional dura mater.
       
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    7. AUTHOR
      AUTHOR
      Fleegle
      Curious

      Fleegle Member

      Location:
      Australia
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Unknown
      I did mention the click in my neck?

      I have mentioned the entire experience in another post:

      https://www.tinnitustalk.com/posts/626533/
       
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    8. Greg Sacramento

      Greg Sacramento Member Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      04/2011
      Cause of Tinnitus:
      Syringing + Somatic tinnitus from dental work
      @Fleegle, so glad. Big Hug.

      The C2 - C3 junction is where flexion and extension occur (flexion is the movement of the chin toward the chest and extension is the backward movement of the head). C3 vertebra is in line with the lower section of the jaw and hyoid bone, which holds the tongue in place. The flexible C3 vertebrae helps aid in the bending and rotation of the neck.

      Say thank you to your tongue/gag reflex as you most likely had a trapped nerve between C3 and C4.

      Your tinnitus should be permanently gone.

      :)
       
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    9. AUTHOR
      AUTHOR
      Fleegle
      Curious

      Fleegle Member

      Location:
      Australia
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Unknown
      Well it is not.

      I went for 5 days, and then it came back. But today it is gone. Again I woke up in a strange position and definitely something in the neck. I am so convinced of it.

      But it's like I have to surprise it.
      Look over there! What? <crack> (tinnitus gone)
      Later...
      Look over there! Ahhh not falling for that again.

      And just as I am typing this and looking down at the keyboard the tinnitus is gone.
      Down gone.
      Up back.
      Down gone.

      This is weird.

      I wonder @Greg Sacramento what nerve it could be?
       
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    10. Greg Sacramento

      Greg Sacramento Member Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      04/2011
      Cause of Tinnitus:
      Syringing + Somatic tinnitus from dental work
      Go to first large photo of Accessory nerve at look at C3. Without pain, it would be a rootlet in (yellow).

      Give it time to heal. Two weeks. Then if needed very light flexion - head down a bit (2 inches) and then slowly up to free it. You probably have little space between C2 and C3.

      Just try a couple of times a day until it's free.

      Accessory nerve (CN XI): Anatomy, pathways and function | Kenhub
       
    11. Lane

      Lane Member Hall of Fame

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Single 25 mg dose of (anticholinergic) drug Promethazine
      .
       
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    12. AUTHOR
      AUTHOR
      Fleegle
      Curious

      Fleegle Member

      Location:
      Australia
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Unknown
      I am not sure which one is C1/C2/C3?

      Is C1 the top one that looks joined to C2 with a gap between C2 & C3?

      Or is C1 really the two that look joined and C2 & C3 are another one lower down?
       
    13. Lane

      Lane Member Hall of Fame

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Single 25 mg dose of (anticholinergic) drug Promethazine
      My understanding is that C1 is the uppermost vertebra, often called the atlas; C2 is the 2nd one down, and is often called the axis; C3 is the 3rd one down, and has no specific name other than that as far as I know; C4 is 4th, etc. I think there are a total of 7 cervical vertebrae in total.
       
    14. David S

      David S Member Benefactor

      Tinnitus Since:
      10/2013
      @Fleegle, what is your tinnitus like? High pitched? Tonal? Cicadas? In head or ears?
       
    15. AUTHOR
      AUTHOR
      Fleegle
      Curious

      Fleegle Member

      Location:
      Australia
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Unknown
      Like cicadas - thousands of them in a forest of cicadas. I clocked it at around 8 kHz. It is a constant sound, from waking to sleeping - takes an effort to sleep though. Louder than main street traffic.
      Seems front left in my head. Probably at 10 o'clock position looking 12 ahead and 6 behind.

      It has returned after 2 days.

      Which reminds me that I am going to give up posting daily updates about it.

      But

      5 days off
      4 days on
      2 days off
      1 day on = today

      I knew that it would come back after the first 5 days. I ate dinner at a low table and watched TV looking up. I knew it knew it knew it knew it that I was hyperflexing and that it would cause it to come back and then next day it did.

      So I am going to watch my posture - try some hanging flexion and see it it comes good.

      Sometimes on a good day I can here a "chit chit chit" like something is happening and it is coming back but then I tuck my head a little and I can stop it.
       
    16. AUTHOR
      AUTHOR
      Fleegle
      Curious

      Fleegle Member

      Location:
      Australia
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Unknown
      Thanks Lane - I was referring to the picture. I can't tell from the picture which vertebrae is C1 as it looks like the C1C2 are one thing or are they separate things?
       
    17. Greg Sacramento

      Greg Sacramento Member Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      04/2011
      Cause of Tinnitus:
      Syringing + Somatic tinnitus from dental work
      @Fleegle, received some medical thoughts from a trauma vein, artery and aortic vessel system and Aag radiologist. He also specializes in hypertension and pulsatile tinnitus, where most of his patients already have bothersome tinnitus.

      Very possible... A very small osteophyte pressuring a rootlet, (probably not a CN) at C3 - third cervical vertebrae most probable. With a small amount of hearing loss, but with tinnitus, pressure would grade <5% as no/pain.

      All you may need is a microscope needle - (there's many terms). Area is numbed and you won't notice a thing.

      I should have posted this article a long time ago.

      https://www.tinnitusjournal.com/articles/upper-cervical-nerves-can-induce-tinnitus.pdf
       
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    18. David S

      David S Member Benefactor

      Tinnitus Since:
      10/2013
      @Fleegle, I have cicadas as well. Sometimes a swarm but sometimes just more like low distant Morse-code/tickling. I perceive it more in my ears than the head. I go from 6/10 which is a good day to 8/10 which is harder but still manageable.

      Is yours always constant (once you have your tinnitus days)?

      Is it reactive to external sounds?

      Is it easy to mask by every day sounds or does only like the shower mask it?

      Do you find any trigger points that lower your tinnitus or is it only head moments or posture that helps?

      Does biting hard or opening your jaw to its maximum position have any effect?

      When I bend my head backwards and open and close my cheek, I can modulate my tinnitus but never eliminate it.

      I am trying to figure out if my tinnitus is connected to my forward head posture or to cochlear damage. It might just be a bad combination of both. Sorry if I bug you with too many questions...
       
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    19. Sonic17
      Wishful

      Sonic17 Member Benefactor

      Tinnitus Since:
      04/2017
      Cause of Tinnitus:
      ? neck injury/unknown
      Interesting... I have had tinnitus since I injured my neck in 2017. I wish I could find a way to untrap a pinched nerve if that is what is causing this.
      Where could I get this done?
       
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    20. Greg Sacramento

      Greg Sacramento Member Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      04/2011
      Cause of Tinnitus:
      Syringing + Somatic tinnitus from dental work
      @Sonic17, you and I had a conversion about this - here. https://www.tinnitustalk.com/posts/588208/

      I would consider a consultation with an interventional radiologist that has experience with specified treatment. Some IR's perform this or they may know of another specialist - doctor.
       
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    21. apple core

      apple core Member

      Location:
      Milwaukee, Wisconsin, USA
      Tinnitus Since:
      12/2020
      Cause of Tinnitus:
      most likely noise
      @Greg Sacramento, while I believe my tinnitus is primarily noise-induced and I cannot modulate my tinnitus with head/neck/jaw movements I also have strange cervical spine issues - I have constant tingling in my neck and shoulders that produces shaking-like sensations and muscle twitches. I'm unable to clench my teeth perfectly still. This condition predates my tinnitus by about 10 years. The tingling/shaking/twitching is mostly present on the left side and my tinnitus is also mostly left side. I had an X-ray of my cervical spine completed last year and here are the details:

      Levocurvature of the cervical spine. Mild (grade 1) retrolisthesis of C3 on C4 and C4 on C5.
      No vertebral body compression fracture.
      No facet dislocations.
      Prevertebral soft tissues are unremarkable.
      Craniocervical junction is unremarkable.
      The C1-2 junction is unremarkable on the open-mouth view.
      Neural foraminal narrowing noted on the right at C5-6.
      No osseous masses.

      Does any of this sound like a medical intervention might help? Which specialist should I look into? I've tried acupuncture and chiropractor with no success. Or is this lead probably a dead end in my search for relief from tinnitus?

      Thank you for your time!
       
    22. Sonic17
      Wishful

      Sonic17 Member Benefactor

      Tinnitus Since:
      04/2017
      Cause of Tinnitus:
      ? neck injury/unknown
      Thank you, somehow I missed your post. You are so knowledgeable, you must be a doctor?

      I live in rural Canada and I likely do not have the same options in health care as some other countries, I will pursue this though. I could even make a trip to the Mayo clinic once travel opens up again (COVID-19).
       
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    23. Greg Sacramento

      Greg Sacramento Member Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      04/2011
      Cause of Tinnitus:
      Syringing + Somatic tinnitus from dental work
      Hi - since you can't modulate your tinnitus, my guess is that your tinnitus was noise-induced, but what is discussed below, can cause (modulations) somatic tinnitus.
      It would not be MS or ulnar nerve damage unless you had same concerns with your hands. More likely a pressured nerve. Read on.
      You have some degenerative changes of your discs and facets in your neck. Most of us do.

      The anterolisthesis (forward slip) of C3 on C4 occurs from facet wear and retrolisthesis at C4-5 is generated from degenerative disc disease. You probably do not have significant ligamentous instability unless there is significant shifting of one vertebra on the other with flexion/extension views.

      If you have failed chiropractic treatment and a good course of physical therapy, you should seek out a well experienced interventional PM&R doctor or interventional anesthesiologist for potential injection therapy or bracing as the next step.

      They will also consider - a bit of cervical spondylosis (arthritis) and if there's a pinched nerve in the neck/shoulder from development from neural foraminal narrowing on the right at C5-6.
       
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    24. hartstreet

      hartstreet Member Benefactor

      Tinnitus Since:
      10/19
      Cause of Tinnitus:
      Ear infection?
      Thanks for the shout here. I’m excited for the possible relief, to tinnitus and/or my other symptoms, that may be possible. Seeing a physical therapist for some trigger point/myofascial massage later this week before getting into some chiro treatment.
       
    25. AUTHOR
      AUTHOR
      Fleegle
      Curious

      Fleegle Member

      Location:
      Australia
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Unknown
      Mine is always constant but your question supposes that the tinnitus is on some days and off other days - it is not. Only recently has it turned "off" for a few days but I have not been able to correct it, so it continues almost everyday.
      No, definitely not. However, I know I am sensitive to loud noise. So much so that I experience headache and cringe at these sounds.
      Shower is probably masking it, and music perhaps. I have an app that really helps.
      Nothing triggers it to lower, only physical it seems. So a bit of yard work or physical activity MAY stop it, but not always and it seems if I try to do something about it then it doesn't work. But if I don't pay attention then sometimes it goes away.
      Yes, both make it flare up from the "off" to "on". Also abdominal crunches and a certain type of hiccup will make it momentarily flare "on".
      Sometimes I can do this when bending my head down - also never eliminate it.
      Or one only. I have kind of a "blocked" ear on one side, and it feels like a blocked tube or something. I might have had an infection in that ear and maybe still do. But I don't know it is related or not.
      A: No, please. Bug me with questions. When we are limited in our experience and search for answers, we look to others who may have similar experiences and perhaps the answers we need.

      I would like to know more about your experience to help me too - this is what Tinnitus Talk is for as well. Together we can all come to understand what we are looking for and I don't think we all will have the same answer because tinnitus is varied and different for a lot of people.
       
    26. Greg Sacramento

      Greg Sacramento Member Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      04/2011
      Cause of Tinnitus:
      Syringing + Somatic tinnitus from dental work
      @apple core and @Sonic17, how are the both of you doing?

      It's been difficult for me to stay in touch with tags/questions with what I have physically going on, but will try if I can.

      Medical discussion on the internet has some faults as not being live person to person and often someone will add more information and history later.

      For @Fleegle and @IntotheBlue03, I contacted Interventional Radiologists with both tinnitus and pulsatile tinnitus knowledege for their thoughts. Much that goes on physically with physical tinnitus and pulsatile tinnitus can be more categorized from those without tinnitus.

      :)
       
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    27. IntotheBlue03

      IntotheBlue03 Member

      Tinnitus Since:
      12/2021
      Cause of Tinnitus:
      Cervical/TBD
      Hi @Greg Sacramento,

      Hope you are doing well.

      Thanks for checking in with the interventional radiologists. This is actually news to me when it comes to a treatment for tinnitus. Is it only pulsatile tinnitus that is treatable or physical tinnitus as well?

      I’ve had a few facet blocks in my day before the prolotherapy (and before the tinnitus).
       
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