G. P. Taylor: Tinnitus — a Life Sentence and a Curse That Takes Away the Joys of Life

Discussion in 'Awareness & Fundraising' started by David, Nov 12, 2018.

    1. David

      David Member Benefactor BTA

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    2. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

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      Now these are the kinds of articles people should be exposed to as they illustrate the full depth of tinnitus. Is it just me, or has there been a recent spike in tinnitus interest and stories? Does this coincide with A Star is Born?

      Anyway, he would be a great asset if he was interested.

      Excellent work, David.
       
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    3. Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

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      I have edited the thread title and posts to change it from GP Taylor to G. P. Taylor to reflect his proper naming scheme (as is on Wikipedia, etc.).

      GP Taylor gave me the impression that he is a medical doctor, a general practitioner, who also happens to be an author.

      But alas, he is not a doctor and the G. P. stands for Graham Peter - he has authored the Shadowmancer novels etc.

      Bloody fantastic piece he wrote. Hopefully he wants to work for the cause more.
       
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    4. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

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      I admit I thought the same, but in all honesty, I don’t think it changes much. He wrote a great piece and I think it’s his personal experience with tinnitus that is of importance.

      Maybe @David contacted him believing he was a GP like I did? In either case, I still think he’d be a great asset being a writer.
       
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    5. AUTHOR
      AUTHOR
      David

      David Member Benefactor BTA

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      No - Googled him first. I just cut and pasted the subject title from the website, although I did correct the typo in the headline...at least the one I spotted! Thta
       
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    6. Agrajag364

      Agrajag364 Member Benefactor

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    7. TuxedoCat
      No Mood

      TuxedoCat Member Benefactor Ambassador Advocate

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      The title of the article is a great one line description of tinnitus.

      And, he wrote this himself which means no reporters involved to twist things up.

      Yorkshire..... so beautiful there.

      TC

      .
       
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    8. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

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      Thanks for this. It's simply the truth and not downplayed. The ATA board chair didn't lie when she said most tinnitus cases fade, but who cares about them? When I think of tinnitus I think of CHRONIC TINNITUS. That should be implied.
       
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    9. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

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      Great article. FINALLY someone bring awareness of just how horrible this condition is.
       
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    10. TuxedoCat
      No Mood

      TuxedoCat Member Benefactor Ambassador Advocate

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      Hi John, I'm not challenging you on this, simply asking because nowadays medicine is evidence based and I've been scouring ATA's website for the evidence to support their statement that tinnitus fades away or disappears in 34,000,000 of those afflicted with the condition. Would you happen to know if there is a study or something to support that assertion? Many thanks, TC
       
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    11. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

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      Actually no I know of no study.
      I figured Dr. Sherlock wasn't lying. If she did just pull that out of her rear then she needs to lose her job now.
       
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    12. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

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      I think it was @Bill Bauer who posted a study to that effect. Something like "70% of tinnitus cases get better within a couple of years" - I don't remember exactly, but it was the gist of it.
       
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    13. annV
      Fine

      annV Member

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      @David why hasn't BTA posted Taylor's article on their Facebook feed?
       
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    14. TuxedoCat
      No Mood

      TuxedoCat Member Benefactor Ambassador Advocate

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      @Bill Bauer

      I've been scouring ATA's website for the evidence to support their statement that tinnitus fades away or disappears in 34,000,000 out of the ~50,000,000 Americans afflicted with the condition. GregCA thought you might have posted a study that supports that assertion. Can you please confirm and direct me to the post?

      Many thanks, TC
       
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    15. valeri

      valeri Member Benefactor Hall of Fame

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      Finally somebody who says it how it is.

      I’m doubtful though of celebs mentioned as true sufferers.

      Good article overall!
       
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    16. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

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    17. TuxedoCat
      No Mood

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    18. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

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      I’ve said this before but it depends how you look at it. As we know, information can be presented to reflect many different outcomes which is what makes statistical analysis so difficult.

      Technically, if you include everyone in the population, and don’t give any stipulations on how you’re measuring tinnitus, then I could say without any doubt that tinnitus fades for nearly everyone. I can say this because most people get gig tinnitus that fades after a couple of days. Some can have it for up to a week before it fades, and for others it can be a bit longer. Obviously, this is being somewhat disingenuous and insulting to people who have a chronic case that hasn’t changed in over two years or more.

      So, when someone says it fades for most people, and then doesn’t elaborate with a study or source, it can be freely interpreted as it gives no detail. Wouldn’t it be better, if it were true, to say something like: for most people who have a chronic case of tinnitus (for two years or more) it's likely to fade over time. Otherwise we are free to add everyone into the equation and I personally know tinnitus fades because of the amount of times I’ve had it before it became chronic.

      Clarity and distinction of exactly what is being discussed is paramount.
       
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    19. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

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      Very well said and I agree.

      I had many episodes of temporary tinnitus before I got chronic tinnitus. But there is a vast difference between having temporary tinnitus after attending a loud event and chronic tinnitus. Just like there is a huge difference between feeling depressed and sad for a few days and having an actual depression.

      They should be more specific about which cases that usually fades. Putting all tinnitus in one box is insulting to chronic sufferers.
       
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    20. AUTHOR
      AUTHOR
      David

      David Member Benefactor BTA

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      I passed it onto Emily who does our Facebook feed (I'm not on FB), so it probably will get used. We're trying to post less then we did previously though (as the feedback we got was we posted too much).
       
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    21. Contrast

      Contrast Member Benefactor Hall of Fame

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      I wish you guys could recruit more scientists to do clinical testings and hard research.
       
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    22. Bam

      Bam Member Benefactor Hall of Fame

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      Crikey. Old G. P. could even give me a run for my money in the tinnitus realism stakes.
       
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    23. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

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      tDMF-M.gif
       
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    24. TuxedoCat
      No Mood

      TuxedoCat Member Benefactor Ambassador Advocate

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      @JohnAdams

      Now really John, that's not really very nice.

      Do you really expect BTA's Executive Officer to be spending time posting on Facebook? And, do you really think BTA shouldn't take feedback seriously?

      I mean really,
      TC
       
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    25. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

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      This is what we as sufferers want. Attention. Instead we get, <paraphrase> "oh I passed it down the ladder and we don't even really want to post much anymore".

      If I were the head of the BTA my response would be to get the article posted which would take 30 seconds and then respond on Tinnitus Talk with, "alright, the article is posted! Let me know if there's anything else I can do for you."

      And don't scold me. Thanks.
       
    26. TuxedoCat
      No Mood

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      @JohnAdams

      OK. So it was more his management style that you were commenting on and not the fact that he didn't post it on Facebook himself. Thanks for clearing that up. I see where you're coming from. Sorry if I scolded you I was just having fun with the reallys. -TC
       
    27. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

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      Really?
       
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