Hi everyone, my name is Hannah
Warning- I'm going to go on a typing rant right now. Here's a little about me and a lot about my tinnitus: I'm 22 years old and my tinnitus started one night over two years ago. I was relaxing at home when my ears started high pitch ringing so loud that I couldn't hear / think about anything around me. It lasted for about two hours then stopped completely. The same episode happened six months later, and around another six months again. The first times caused me panic attacks (tingling in feet and legs, troubling breathing etc.) but not anymore because it's so frequent. Fast forward to now, tinnitus has become a part of my everyday life. It is very high pitched in both ears, not always ringing at the same time. It's causes me to socially isolate myself and miss class and work. More recently, doing dishes and hearing my dogs bark is extremely uncomfortable and almost painful. Sometimes my ears feel like they are rumbling. I can hear a loud click in both ears with almost any jaw movement. I've had really bad neck pain episodes over the last six months, with vertigo and nausea.
It's super frustrating not knowing what's going on because I've always been very healthy. It's hard to talk to people in my life about it because they don't really understand the magnitude of it and how it controls my life everyday. The other night I had my worst tinnitus "volume" yet. I was trying to sleep and it was getting SOOO loud. I usually just focus on my breathing and it helps calm me a little bit, but nothing was working. I also have sleep paralysis about 4 nights a week and this started after my tinnitus began. So all of the sudden, I had the strangest feeling and it was my nerves on the left half of my back felt as if they were intensely firing, like way more intense that a tingling feeling. It threw me up out of the bed because I didn't know what was happening. But then even weirder, the tinnitus stopped!! I had slight tingling in my back still and very faint tingling/numbness on my face. Oh and when I have the neck pain episodes, I get a tingling sensation on the top half of my back, kinda over my shoulder blades. I have no idea if they're related but who knows at this point. It makes no sense to me anymore what's going on!!
I just hope my doctors can figure out what's going on so I can take my life back. My primary doctor said my ears are very clean so it's not ear wax. I got an audiogram a month ago and my hearing is completely normal, but the lady who administered the audiogram said that my ear drums had bad reflexes. I'm waiting for my ENT appointment but it's not until June.
Anyways, thanks for reading
It's helpful to lay it all out there on a forum for people who understand!

It's super frustrating not knowing what's going on because I've always been very healthy. It's hard to talk to people in my life about it because they don't really understand the magnitude of it and how it controls my life everyday. The other night I had my worst tinnitus "volume" yet. I was trying to sleep and it was getting SOOO loud. I usually just focus on my breathing and it helps calm me a little bit, but nothing was working. I also have sleep paralysis about 4 nights a week and this started after my tinnitus began. So all of the sudden, I had the strangest feeling and it was my nerves on the left half of my back felt as if they were intensely firing, like way more intense that a tingling feeling. It threw me up out of the bed because I didn't know what was happening. But then even weirder, the tinnitus stopped!! I had slight tingling in my back still and very faint tingling/numbness on my face. Oh and when I have the neck pain episodes, I get a tingling sensation on the top half of my back, kinda over my shoulder blades. I have no idea if they're related but who knows at this point. It makes no sense to me anymore what's going on!!
I just hope my doctors can figure out what's going on so I can take my life back. My primary doctor said my ears are very clean so it's not ear wax. I got an audiogram a month ago and my hearing is completely normal, but the lady who administered the audiogram said that my ear drums had bad reflexes. I'm waiting for my ENT appointment but it's not until June.
Anyways, thanks for reading
