How to Handle Hyperacusis?

Discussion in 'Support' started by Geekysugar, Jan 5, 2019.

    1. Geekysugar

      Geekysugar Member

      Tinnitus Since:
      11/2018
      Cause of Tinnitus:
      Ototoxic meds, Chiari
      Hi everyone! I just started experiencing hyperacusis. Every little sound seems to hurt and make a thumping sound in my ear. Utensils on a plate, people coughing, opening a can, doors opening are all very distressing.
      I'm not sure if I should put on earplugs for little sounds like that or only when I might be exposed to something louder.

      Does anyone have any tips on how to deal with this? Thanks!
       
    2. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Noise induced
      HI @Geekysugar

      I have written a post on Hyperacusis that you might find helpful below. I have also include a link to my post: Tinnitus, A Personal View.

      All the best
      Michael

      Hyperacusis, As I See It

      Some members have asked for my opinion on hyperacusis as they are finding it increasingly difficult to live with. They want to know if there is a way of treating this condition so that their life can become a little easier? Or whether it can be completely cured? For a few it has become so distressing they have decided to only leave their homes when it’s absolutely necessary. This is because of the fear of making the symptoms worse, by subjecting their ears to the hustle and bustle of everyday road traffic noise and other environmental sounds that we are all familiar with.

      Reading some of the posts in this forum, one can easily see that certain people daren’t leave their homes without first checking they have their earmuffs and an assortment of earplugs in various degrees of attenuation, in readiness for any potential environment that they happen to find themselves in. The cinema, nightclub, restaurant, or on public transport. If money is no object aspiring to custom made moulded earplugs for some is the way to go. It can bring the added assurance they will be getting the best hearing protection. Whether this is true or not doesn’t really matter because it’s what the person believes and this helps to give them that peace of mind which is something many of us strive for at one time or another.

      The above may seem a little extreme until I tell you one member provoked a lot of discussion here, when he mentioned having the air bag in a car that he had just purchased disabled in case it was deployed in an accident. I suppose the thought of 170 decibels raining down on his auditory system and the possibility of his tinnitus and hyperacusis shooting through the roof was too much too bear and is more important than a potential life saving device. As strange as this might seem, others have discussed doing the same thing elsewhere on the Internet.

      I am not an expert in this field but do have the experience of living with very severe hyperacusis that was brought on with the onset of my tinnitus twenty years ago due to loud noise exposure. It was so severe; conversation with someone at times caused immense pain. However, it was completely cured in two years with TRT and having counselling with a hearing therapist. I wore white noise generators for 10hrs a day and used a sound machine throughout the night until morning for sound enrichment. My tinnitus had reduced to a very low level.

      Some people believe hyperacusis cannot be cured and if treatment such as TRT works then it merely suppresses the condition. In the event of future loud noise exposure it will return and the condition will be worse than before. I believe it up to the individual to take care of their hearing and not subject themselves to loud noise exposure. However, accidents do happen as in my case.

      I have previously explained in this forum that my tinnitus increased to very severe levels 2008 due to noise exposure so won’t go over it again. To my surprise the hypercusis did not return and has remained the same till this day, completely silent. This summer I went onto the Brighton Pier and into the arcade. The place was a hive of activity and many people were using the slot machines. Music was playing and mixed with loud laughter so everyone seemed to be having a good time. I had my sound level meter and also a sound App on my mobile phone. Just in case things got too uncomfortable I had my noise reducing earplugs with me that reduce sound levels by 18 decibels. This was a test and not something I normally do or recommend anyone else to try.

      The sound level in that place remained constant at just over 100 decibels. My ears didn’t feel uncomfortable and I felt no pain. I stayed at the venue for 30 minutes and then left. The next morning my tinnitus was silent and I experienced no symptoms of hyperacusis. I do not believe that it is a good idea for someone with tinnitus or hyperacusis (or both) to wear earplugs or noise-reducing earplugs with filters too often, because it’s possible for the auditory system to become hypersensitive. In some cases it could make matters worse and cause a condition called phonophobia. This is literally having a fear of sound.

      I used to counsel someone that had phonophobia like symptoms although she wasn’t diagnosed. This person had hypercausis that gradually got worse and at every opportunity she kept away from sound. This got so bad going out the front door because of the noise was a problem. Her ears couldn’t tolerate the sound of the microwave, dishwasher or the washing machine. She even complained of the sound of rain falling on her conservatory roof that was made of glass. Fortunately she has improved.

      There is much discussion on this in the medical field from experts saying that the overuse of hearing protection isn’t good and therefore discouraged as it will lower loudness threshold and I completely agree with this. I think if one isn’t careful they can become paranoid over sound making their hyperacusis and tinnitus worse and I don’t think it’s healthy.

      I believe the answer is to seek proper treatment. If TRT is unavailable then start using a sound machine by the bedside at night for sound enrichment. This usually helps to desensitise the auditory system. Try going out for long walks and getting used to everyday sounds instead of keeping away from them by staying at home. I don’t normally recommend anyone to use white noise generators unless they are under the care of a hearing therapist. However, if your tinnitus is under control and you have habituated but experience hyperacusis, that some call: Reactive tinnitus. Then white noise generators could be the way to go. Two should be used to keep the auditory system in balance and set the volume level low, preferably below the tinnitus. This will help to desensitise the auditory system and treat the hyperacusis.

      Hearing protection is important and does have its place. If I am going to venues where I believe noise level could become loud then I have my earplugs with me. Night clubs, parties etc. I would always use them at the cinema although I haven’t been to one in years. Reading some of the posts on this forum people say those places can be very loud.

      When I use my petrol lawn mower or electric power tools for those DIY jobs around the home, I always use my ear defenders. I want to live life and enjoy it. Not to be living in fear of hearing a fire truck or ambulance siren coming towards me and I have to panic and quickly insert earplugs or reach for earmuffs to protect my hearing. I just think this is overkill.

      https://www.tinnitustalk.com/threads/tinnitus-a-personal-view.18668/
       
    3. Juan

      Juan Member Hall of Fame

      Tinnitus Since:
      08/2014
      Cause of Tinnitus:
      Several causes
      Listen to your body, no one really know how hyperacusis works or how it can evolve over time.

      It is reasonable to have hearing protection on if objectively loud sounds, as read in an accurate decibel meter, are hurting you. Plates, doors etc are quite distressing. Some people get used to those sounds again and some do not, some hyperacusics lose hearing and others are more or less ok for a long time, some develop tinnitus and others dont..

      When you are outside home sounds can get unexpectedly and suddenly loud. If your hyperacusis is very bad try to be cautious about those kind of sounds and impulse noise, motorbikes, power tools, car horns, all those sort of things.
       
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