If the Cure for Tinnitus Appeared Tomorrow, How Much Would You Pay For It?

Discussion in 'Support' started by Vkis, Jul 28, 2013.

tinnitus forum
    1. Vkis

      Vkis Member

      Tinnitus Since:
      03/16/2012
      If the cure for tinnitus appeared tomorrow, how much would you agree to pay for it?
      I bet 20 000 USD.
       
    2. daedalus

      daedalus Member

      Location:
      Brussels
      Tinnitus Since:
      04/2007
      Depends on how much money i had. A lot. Actually i already pay for tinnitus research so well before getting a cure.
       
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    3. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      Everything I own, simple as that.
       
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    4. James White
      Anime

      James White Member Benefactor

      Location:
      Toulouse, France
      Tinnitus Since:
      April 2013
      Cause of Tinnitus:
      Maybe loud music. Not sure.
      Nothing, because it should be reimbursed by social security.
       
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    5. jes
      Familiar

      jes Member Benefactor

      Location:
      copenhagen denmark
      Tinnitus Since:
      10/2012
      For 100% free I pay the Price.
       
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    6. Per

      Per Member

      Tinnitus Since:
      06/2013
      I agree with James White, this should be paid trough the tax bill. Hypothetically, to be 100% cured from both T and H I would pay what it cost. End of story. Let that be a motivation for any giant pharmaceutical company out there. Find a cure.
       
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    7. carlover
      English

      carlover Member Benefactor

      Location:
      London
      Tinnitus Since:
      1986
      Here's one for you.Watching some young soldier being interviewed with no legs (afghanistan)

      so...To get rid of your Tinnitus you have to swap places....would you???

      Bearing in mind 3 years ago I had very, very dark thoughts... and it still drives me to depression, obsessiveness, constant ear pressure pain..no I wouldn't.
       
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    8. Hudson
      Cowboy

      Hudson Member Benefactor

      Tinnitus Since:
      2003
      Peace of mind is worth something very dear to me. When I'm dead and gone from this lovely place I won't get to take the shirt off my back. I would live under a bridge if it meant that I got to be tinnitus free. Some may think that I am joking, but I am not.

      Trade my legs for no tinnitus? That's a difficult question. I think questions like these are always beside the point, we will never (most likely) be faced with such a question in actuality, so we can't place any real value on it. But I think I would remember my what my grandpa used to say: "Trust the devil you know over the devil you don't." I honestly think it will be easier for science to cure tinnitus than regrow a pair of functioning legs.

      I signed up for the GRE, by the way. I'll put in an application at some select schools. I have picked out several programs that really tickle my fancy. We'll see if they think I'm good enough.
       
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    9. jes
      Familiar

      jes Member Benefactor

      Location:
      copenhagen denmark
      Tinnitus Since:
      10/2012
      You are all invited.I think it is best to do the cure in germany.When it comes you are all invited to stay in my house in wedel outside hamburg.Then we make a big party (not too loud music) jes
       
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    10. dan
      Chatty

      dan Member

      Tinnitus Since:
      06/2011
      having no legs is a small price to pay for disabling tinnitus cure. problem is since tinnitus is a phantom auditory pain, having no legs may induce severe phantom limb pain - since the tinnitus brain is probably susceptible to phantom sensations. However I wouldnd't think twice about trading since it would be at least quiet in my head.
      It all depends how bad your tinnitus is-simple as that.
       
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    11. daedalus

      daedalus Member

      Location:
      Brussels
      Tinnitus Since:
      04/2007
      While i would still pay a lot for a complete cure if had money, i now wouldn't trade any part of my body nor any ability to get rid of the tinnitus. I still hate it but it doesn't disable me anymore so i wouldn't want to get a disability, even a small one.
       
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    12. Danny
      Fine

      Danny Member Benefactor

      Location:
      Near Toronto Canada
      Tinnitus Since:
      2012
      my right testicle, and $18.00 USD, and if Hudson would let me live under the bridge with him I'd be ok with that....
       
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    13. carlover
      English

      carlover Member Benefactor

      Location:
      London
      Tinnitus Since:
      1986
      Jes Im on the way!!!!;)
       
    14. carlover
      English

      carlover Member Benefactor

      Location:
      London
      Tinnitus Since:
      1986
      Hi Dan

      I know what you mean mate. I cried today and as a former seargent in the RAF Regiment when I was younger that is not easy to admit to but we are all mates here.
       
    15. Kellster
      Furious

      Kellster Member

      Location:
      Kissimmee, Florida
      Tinnitus Since:
      2009
      My right. Hand! Then the left to cure my migraines! :(
       
    16. 2014winner
      Inspired

      2014winner Member

      Location:
      upstate New York
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      otitis media with permanent hearing loss
      I would try to make arrangements to buy it even though my income is limited at the present time. If it were proven and effective and worked for me, is the qualification
       
    17. Per

      Per Member

      Tinnitus Since:
      06/2013
      Well, prostheses is an option. I think it would be impossible to compare the conditions too. I do however know that I would risk my life to bee free from T. If the odds where 20% chance of dying I would risk the operation. As long as the outcome was 100% cure if I survived. Anywho, let's just conclude that everyone with a life altering condition would do a lot to get well.
       
    18. Luca
      Amused

      Luca Member

      Location:
      Vienna, Austria
      Tinnitus Since:
      3/2010
      Cause of Tinnitus:
      Neck injury
      So you mean like 200 bucks a month from your taxes :D
       
    19. James White
      Anime

      James White Member Benefactor

      Location:
      Toulouse, France
      Tinnitus Since:
      April 2013
      Cause of Tinnitus:
      Maybe loud music. Not sure.
      hehe not so much !! i pay something like 80 euros / month for social security, but i live in France, best health system worldwide :)
       
    20. Luca
      Amused

      Luca Member

      Location:
      Vienna, Austria
      Tinnitus Since:
      3/2010
      Cause of Tinnitus:
      Neck injury
      Somehow I believe that if I knew I could just pop in a pill whenever I wanted to get rid of tinnitus for a while I wouldn't even feel that bothered by T anymore. It's a control thing.
       
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    21. Relic Hunter
      Cynical

      Relic Hunter Member Benefactor

      Tinnitus Since:
      01/1990
      Interesting question and replys.

      I get most of my Tinnitus treatment at the VA hospital..They ask a lot of personal questions as to how T effects your personal life..

      One question my doctor said they once asked was "What would you give up to cure your tinnitus" It was not uncommon to hear " an arm'' or "a leg" as the answer.

      I have often pondered that question. As to money I would give up as much as I could afford or borrow or steal.
       
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    22. Erlend
      Question it

      Erlend Member Benefactor

      Location:
      Scandinavia
      Tinnitus Since:
      05/2013
      How loud is your T?
      I would do anything as well
       
    23. Per

      Per Member

      Tinnitus Since:
      06/2013
      Well, T is basically a brain disorder and you can't have that organ replaced. There's no way to operate the auditory cortex to cure T as of yet, no medicines to take, no cure. If you loose any limb you can replace almost anything with a modern prostheses, I've seen people with so real life looking prostheses that you wouldn't notice if you didn't know. With wearable technology so much of todays physical injuries can be fixed to a point where life goes back to being 90% normal. My life is far from 90% normal with severe T&H, perhaps it will reach a better percentage in the years to come, but I would say my life is considerable less worth right now. Perhaps as much as 45% went down the drain when this hellish noise started. Perhaps even 50%. So would I sacrifice a limb for a T cure? It's so hypothetical but on paper I guess I'm saying I would. On the other "hand" I have no clue how a life really IS with a prostheses and I would hate to underestimate it or disrespect anyone that struggles with it - but the aspect of eternal head noises and hypersensitivity is still worse in my book. But the strange thing with this condition of ours is HOW each individual is coping. So I guess it's the same with people that loose an arm or a leg.

      There's one thing that I would never switch for and that is paralysis, especially those that goes from neck down. I have so much respect for the people that live large with that condition. Also being both deaf and blind, can't imagine how that must be, especially if it occurs late in life when you have all references to a normal life. Not to forget those who are 100% deaf with severe T. I saw an interview with a blind person that lost his sight when he was over 40. He said that it was ok cause he had already seen so much in life - that impressed me and made me think. Wow, some people are great at dealing with setbacks, I guess its a mental strategy. It's impressing. Something to learn from indeed.

      Writing this I feel I have a lot to live for, in the darkest despair there's always something to grasp onto. Something bigger than me, I believe I have become a more humble character after T and I think a little differently on life strategies now. More compassion perhaps also, without sounding too melodramatic. T is a life changer, that's for sure...
       
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    24. MissionForTheCure
      Woot

      MissionForTheCure Member

      Tinnitus Since:
      06/2009
      Very good thread and interesting question.

      I would, without a doubt, give up my entire net worth including all assets to get rid of T.

      I am relishing the day and clinging onto the hope I will one day hear silence again/be able to train my mind to better ignore the phantom sounds! More pertinently, I would love to be able to go to restaurants and shopping centres without ANY thoughts of "how loud is it going to be" For instance this evening I popped out for some late night shopping and my T just shot up volume, like my brain was turning up the gain to ensure I could still hear it (impossibly high hissing sound).

      I honestly do believe that this day is coming soon!
       
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    25. Sherri786
      Dreaming

      Sherri786 Member Benefactor

      Location:
      Canada
      Tinnitus Since:
      03/2013
      Yes everything I own , and sell myself too if possible !
       
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    26. cmurem

      cmurem Member

      Tinnitus Since:
      08/05/2012
      In case of need i will pay all life long. Extra work is better than living with a damaged and irritated cochlea..
       
    27. LadyDi
      Busy

      LadyDi Member Benefactor

      Location:
      Florida, USA
      Tinnitus Since:
      06/2013
      Cause of Tinnitus:
      Barotrauma/airplane
      [quote

      Writing this I feel I have a lot to live for, in the darkest despair there's always something to grasp onto. Something bigger than me, I believe I have become a more humble character after T and I think a little differently on life strategies now. More compassion perhaps also, without sounding too melodramatic. T is a life changer, that's for sure...[/quote]

      First off, everyone will answer this question in accordance with how disabling T is to them. We are each unique in that regard. Having said that, I already now am driving a junker car just to pay for therapies like TRT that may help, not even cure me. I would be willing to spend all of my savings for a cure.

      But I was very taken with this part of Per's post. I, too, feel I still have very much to live for, even though I never will again have the life I once did. But life altering changes come for us all, at some point. And how we deal with them can be transforming. My tinnitus has made me love an appreciate my husband more. It has made me respect and listen to my body and mind, instead of expecting them to keep up with my unreasonable demands without offering loving care in return. I have learned none of us, really, have true contro, and acceptance sometimes needs to trump objection when there is change. And it has taught me compassion. I think of friends in recent years who I did not spend enough time with when they were sick or alone. I am trying not to be that distant person anymore.

      So lately, when I am depressed, I think about: what has my tinnitus taught me? And does it really keep me from now moving forward to being the person I want to be? Look at Hudson: he is taking steps to get into grad school to help others with hearing disorders because of what his T has taught him.

      Thanks, Per
       
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    28. JTP
      No Mood

      JTP Member Benefactor

      Location:
      Finland
      Tinnitus Since:
      5/2013
      Cause of Tinnitus:
      Shit happens
      I could give my right eye that is pretty useless anyway.
       
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    29. Erlend
      Question it

      Erlend Member Benefactor

      Location:
      Scandinavia
      Tinnitus Since:
      05/2013
      A finger: Yes

      $100 000 only if I could only decide right now. But then I would pay anything I think i suppose.

      The scary scenarios I have played with is who's lives I would sacrifice.
      I've had some dark thoughts here lol.
       
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    30. Riikka

      Riikka Member

      Location:
      Finland
      Tinnitus Since:
      09/2007
      I have also been thinking that I would like to give my right arm for getting rid of this sound...

      I am not sure about living under a bridge though. I think that is a very miserable life, I doubt homeless people are sleeping well, even if they might not have tinnitus.

      I think during the day when I'm out and busy I'm not so much disturbed by T. But I would like to have this switched off at least for 2-3 hours in the evening when I want to relax. Would also be nice to have a quiet night once in a while.
       

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